Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


Nate

Recommended Posts

Nate Apprentice

I'm so pissed!!! it seems as though as soon as I find anything that is actually good suddenly becomes impossible to get!!!!!!

Strongbow - They run out, order the stuff doesnt come in, have to wait 3 months. The only damn cold drink they sell that I can have that doesn't have a box of sugar in every bottle.

Corn Wraps - One place in the whole province to buy em and it happens to be the worste store for keeping stock

Glutino English Muffins - They run out almost immediately when it comes in. I love these, I use them for everything.

EnerG Nut Granola - This godsend I happen to score one box before it going on back order.

Namaste - Excellent! love this stuff, they lost their supplier and the store that used to sell it doesn't want to deal with the new one.

!@#$#$%#$@

That pretty much sums up everything that helps me reason with this damn disease. I thank Jeesus, the sun, the moon and the galaxie that I'm not allergic to COFFEE! Otherwise, I'd rather be sick.

N


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Order the stuff over the internet - it's cheaper that way too, most of the time. I ordered the Namaste mixes that way, and just got eight packages at once to make it easier. :-)

Nate Apprentice

yeah, I'm just venting, internet orders take awhile, up to a month sometimes, this really had more to do with frustration/coping with then Gluten-Free Foods, Products, Shopping & Medications,

but it got moved

N

tarnalberry Community Regular
yeah, I'm just venting, internet orders take awhile, up to a month sometimes, this really had more to do with frustration/coping with then Gluten-Free Foods, Products, Shopping & Medications,

but it got moved

N

I understand the frustration... it's really annoying to have happen. I've had it happen repeatedly as well, which is why, after a year, I caved and went with the online ordering. If you do some smart shopping, however, it won't take a month. You just have to find places that have the item in stock (usually not hard) and have reasonable shipping. In such cases, I've never had it take longer than a week, and you don't even have to leave home to get the items in question. And you pay less for them in some cases. Finding alternate ways to get the items you like is just one way of coping. (Venting's another one. :-) Totally acceptable, and understood, too. :-) )

hez Enthusiast

Tiffany-

Who do you use for your onlilne shopping?

Hez

Nate Apprentice

I'd like to know too!

for the most part, it usually costs more and takes a long time,

I'll have to look a little deeper into it, plus what about frozen stuff?

Nate

linz7997 Explorer

ok...so i know this is like the opposite of what everyone says..but i am having great luck just going to Krogers. mine has a TON of gluten free products in the organic/health foods section(bread, pasta, cookies)...I am also eating a lot of protein bars for breakfast...most of them clearly label at the end of the ingredients if they contain certain allergens. as far as frozen stuff...i have found a lot of healty choice frozen dinners that I can still have. pretty much all of the mexican varieties and the ones w/ meat and veggies. Also those Amy's dinner are pretty good...the cheese quesedilla and black bean enchilada are awesome!!!! I hope this helps some!!!! I know it can be frustrating but...maybe I have a better kroger than most!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I shop around, but often end up going through the manufacturer. I opt not to buy from places that are going to take a month to ship to me (I always check on shipping times and whether or not an item is in stock), but I also purchase in quantity so it doesn't really matter that it takes a week or two. Google and multiple internet windows are your friend. :-)

I generally don't buy frozen stuff - I don't buy much specialty gluten-free foods at all - so I can't help on that front. Those almost certainly wouldn't be worth the shipping trouble unless you had a stand alone freezer and were willing to fill it at once, and found a place that had great prices.

As for locally available stuff, it varies by location. The regular, mainstream markets in the Puget Sound area seem to have a better gluten free selection than the mainstream markets in the Northern California Bay Area which are slightly better than the mainstream markets in Orange County, California, which are better than the mainstream markets I saw in Huntsville and Detriot. But it also varies store to store - I have a Safeway and QFC right near me, one of them has lots of stuff, one doesn't. "Easy to find" is VERY relative.

Nate Apprentice

yeah, I grew tired of Glutino Bread and their dry cookies. We have tons of that stuff which is cool but there are better products coming out and no one seems to give a rats rear.

Thanks for the info, I'll dig into the internet option more.

N

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,038
    • Most Online (within 30 mins)
      7,748

    Briannas01
    Newest Member
    Briannas01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.