Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


Nate

Recommended Posts

Nate Apprentice

I'm so pissed!!! it seems as though as soon as I find anything that is actually good suddenly becomes impossible to get!!!!!!

Strongbow - They run out, order the stuff doesnt come in, have to wait 3 months. The only damn cold drink they sell that I can have that doesn't have a box of sugar in every bottle.

Corn Wraps - One place in the whole province to buy em and it happens to be the worste store for keeping stock

Glutino English Muffins - They run out almost immediately when it comes in. I love these, I use them for everything.

EnerG Nut Granola - This godsend I happen to score one box before it going on back order.

Namaste - Excellent! love this stuff, they lost their supplier and the store that used to sell it doesn't want to deal with the new one.

!@#$#$%#$@

That pretty much sums up everything that helps me reason with this damn disease. I thank Jeesus, the sun, the moon and the galaxie that I'm not allergic to COFFEE! Otherwise, I'd rather be sick.

N


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Order the stuff over the internet - it's cheaper that way too, most of the time. I ordered the Namaste mixes that way, and just got eight packages at once to make it easier. :-)

Nate Apprentice

yeah, I'm just venting, internet orders take awhile, up to a month sometimes, this really had more to do with frustration/coping with then Gluten-Free Foods, Products, Shopping & Medications,

but it got moved

N

tarnalberry Community Regular
yeah, I'm just venting, internet orders take awhile, up to a month sometimes, this really had more to do with frustration/coping with then Gluten-Free Foods, Products, Shopping & Medications,

but it got moved

N

I understand the frustration... it's really annoying to have happen. I've had it happen repeatedly as well, which is why, after a year, I caved and went with the online ordering. If you do some smart shopping, however, it won't take a month. You just have to find places that have the item in stock (usually not hard) and have reasonable shipping. In such cases, I've never had it take longer than a week, and you don't even have to leave home to get the items in question. And you pay less for them in some cases. Finding alternate ways to get the items you like is just one way of coping. (Venting's another one. :-) Totally acceptable, and understood, too. :-) )

hez Enthusiast

Tiffany-

Who do you use for your onlilne shopping?

Hez

Nate Apprentice

I'd like to know too!

for the most part, it usually costs more and takes a long time,

I'll have to look a little deeper into it, plus what about frozen stuff?

Nate

linz7997 Explorer

ok...so i know this is like the opposite of what everyone says..but i am having great luck just going to Krogers. mine has a TON of gluten free products in the organic/health foods section(bread, pasta, cookies)...I am also eating a lot of protein bars for breakfast...most of them clearly label at the end of the ingredients if they contain certain allergens. as far as frozen stuff...i have found a lot of healty choice frozen dinners that I can still have. pretty much all of the mexican varieties and the ones w/ meat and veggies. Also those Amy's dinner are pretty good...the cheese quesedilla and black bean enchilada are awesome!!!! I hope this helps some!!!! I know it can be frustrating but...maybe I have a better kroger than most!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I shop around, but often end up going through the manufacturer. I opt not to buy from places that are going to take a month to ship to me (I always check on shipping times and whether or not an item is in stock), but I also purchase in quantity so it doesn't really matter that it takes a week or two. Google and multiple internet windows are your friend. :-)

I generally don't buy frozen stuff - I don't buy much specialty gluten-free foods at all - so I can't help on that front. Those almost certainly wouldn't be worth the shipping trouble unless you had a stand alone freezer and were willing to fill it at once, and found a place that had great prices.

As for locally available stuff, it varies by location. The regular, mainstream markets in the Puget Sound area seem to have a better gluten free selection than the mainstream markets in the Northern California Bay Area which are slightly better than the mainstream markets in Orange County, California, which are better than the mainstream markets I saw in Huntsville and Detriot. But it also varies store to store - I have a Safeway and QFC right near me, one of them has lots of stuff, one doesn't. "Easy to find" is VERY relative.

Nate Apprentice

yeah, I grew tired of Glutino Bread and their dry cookies. We have tons of that stuff which is cool but there are better products coming out and no one seems to give a rats rear.

Thanks for the info, I'll dig into the internet option more.

N

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.