Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


Nate

Recommended Posts

Nate Apprentice

I'm so pissed!!! it seems as though as soon as I find anything that is actually good suddenly becomes impossible to get!!!!!!

Strongbow - They run out, order the stuff doesnt come in, have to wait 3 months. The only damn cold drink they sell that I can have that doesn't have a box of sugar in every bottle.

Corn Wraps - One place in the whole province to buy em and it happens to be the worste store for keeping stock

Glutino English Muffins - They run out almost immediately when it comes in. I love these, I use them for everything.

EnerG Nut Granola - This godsend I happen to score one box before it going on back order.

Namaste - Excellent! love this stuff, they lost their supplier and the store that used to sell it doesn't want to deal with the new one.

!@#$#$%#$@

That pretty much sums up everything that helps me reason with this damn disease. I thank Jeesus, the sun, the moon and the galaxie that I'm not allergic to COFFEE! Otherwise, I'd rather be sick.

N


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Order the stuff over the internet - it's cheaper that way too, most of the time. I ordered the Namaste mixes that way, and just got eight packages at once to make it easier. :-)

Nate Apprentice

yeah, I'm just venting, internet orders take awhile, up to a month sometimes, this really had more to do with frustration/coping with then Gluten-Free Foods, Products, Shopping & Medications,

but it got moved

N

tarnalberry Community Regular
yeah, I'm just venting, internet orders take awhile, up to a month sometimes, this really had more to do with frustration/coping with then Gluten-Free Foods, Products, Shopping & Medications,

but it got moved

N

I understand the frustration... it's really annoying to have happen. I've had it happen repeatedly as well, which is why, after a year, I caved and went with the online ordering. If you do some smart shopping, however, it won't take a month. You just have to find places that have the item in stock (usually not hard) and have reasonable shipping. In such cases, I've never had it take longer than a week, and you don't even have to leave home to get the items in question. And you pay less for them in some cases. Finding alternate ways to get the items you like is just one way of coping. (Venting's another one. :-) Totally acceptable, and understood, too. :-) )

hez Enthusiast

Tiffany-

Who do you use for your onlilne shopping?

Hez

Nate Apprentice

I'd like to know too!

for the most part, it usually costs more and takes a long time,

I'll have to look a little deeper into it, plus what about frozen stuff?

Nate

linz7997 Explorer

ok...so i know this is like the opposite of what everyone says..but i am having great luck just going to Krogers. mine has a TON of gluten free products in the organic/health foods section(bread, pasta, cookies)...I am also eating a lot of protein bars for breakfast...most of them clearly label at the end of the ingredients if they contain certain allergens. as far as frozen stuff...i have found a lot of healty choice frozen dinners that I can still have. pretty much all of the mexican varieties and the ones w/ meat and veggies. Also those Amy's dinner are pretty good...the cheese quesedilla and black bean enchilada are awesome!!!! I hope this helps some!!!! I know it can be frustrating but...maybe I have a better kroger than most!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I shop around, but often end up going through the manufacturer. I opt not to buy from places that are going to take a month to ship to me (I always check on shipping times and whether or not an item is in stock), but I also purchase in quantity so it doesn't really matter that it takes a week or two. Google and multiple internet windows are your friend. :-)

I generally don't buy frozen stuff - I don't buy much specialty gluten-free foods at all - so I can't help on that front. Those almost certainly wouldn't be worth the shipping trouble unless you had a stand alone freezer and were willing to fill it at once, and found a place that had great prices.

As for locally available stuff, it varies by location. The regular, mainstream markets in the Puget Sound area seem to have a better gluten free selection than the mainstream markets in the Northern California Bay Area which are slightly better than the mainstream markets in Orange County, California, which are better than the mainstream markets I saw in Huntsville and Detriot. But it also varies store to store - I have a Safeway and QFC right near me, one of them has lots of stuff, one doesn't. "Easy to find" is VERY relative.

Nate Apprentice

yeah, I grew tired of Glutino Bread and their dry cookies. We have tons of that stuff which is cool but there are better products coming out and no one seems to give a rats rear.

Thanks for the info, I'll dig into the internet option more.

N

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.