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Celiac & Gerd


glen4cindy

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glen4cindy Apprentice

In 2003 I had surgery for GERD an hoped it was the cure for my heartburn AND my other symptoms which I later learned were gluten intolerance.

I am again having problems with GERD and am seeing a GI dr. next week. My regular MD prepared me for being scoped, probably from both ends!

Since I have never sought nor been given a diagnosis of Celiac, nor have I been checked for any kind of damage, would this be a good time to talk to the Dr. about getting a biopsy while he is "in there"?

I don't even know if this is possible, so, if anyone has any advice, please advise.

Thanks,

Glen


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Kaycee Collaborator

Have you been following a gluten free diet since your were diagnosed gluten intolerant? If you have continued to eat gluten while being gluten intolerant this can lead to coeliac.

If you have been gluten free since 2003, chances are they if there was any damage this would've healed by now. Talk to the doctor see what he says.

Hope you get some answers to your question soon.

Cathy

glen4cindy Apprentice
Have you been following a gluten free diet since your were diagnosed gluten intolerant? If you have continued to eat gluten while being gluten intolerant this can lead to coeliac.

If you have been gluten free since 2003, chances are they if there was any damage this would've healed by now. Talk to the doctor see what he says.

Hope you get some answers to your question soon.

Cathy

Actually, my MD did not call it gluten intolerance or Celiac. He suggested I may be allergic to bread. I still ate "breaded" things for awhile until I realized that I was still eating bread. I did my own research and concluded that gluten was possibly the problem instead of just bread.

I have tried to be as gluten free as possible, but, three weeks ago, I made some fried chicken and used corn flakes as part of the coating. I ate this over three days and then ate cereal that I did not see had wheat starch in it. This made me really sick, so, there may still be evidence of damage since I have had recent exposure.

Thanks. I am planning on discussing this with the GI MD.

Guest cassidy

I had a nissen in 1988 (I'm assuming that is what you had). It worked well until 1 1/2 years ago. My heartburn came back like crazy. They told me the wrap was compromised and I needed another one. I was scheduled in February and I called off the surgery 3 days before it was to happen.

My mother was diagnosed (self diagnosed) with celiac in September and in January she told me she thought I had it. I went gluten-free and felt so much better. During that time I had an upper gi, an endoscopy, a 24 hour ph test and several others. I told the doctor I thought it was celiac and he said he didn't think so. That celiac was rare and that wasn't what was wrong with me. I told one doc was I had gone gluten-free and he said, don't you cheat and have a beer or two on the weekends?

Basically, I was supposedly seeing the best gi docs in town and none of them thought I had celiac and they were all willing to do another lap. I'm so glad I didn't trust them. My reflux is totally gone. It does come back when I'm glutened - and lasts for about two weeks. It did take about 2-3 months for it to go away in the beginning. That is probably because I was glutening myself fairly regularly in the beginning.

I don't have any advice on what to ask the doctors because I am fairly bitter about what they put me through and how they never figured out what was wrong with me or believed me when I told them what was making me better. I wouldn't recommend another nissen and I would recommend going gluten-free and seeing if that helps.

tiffjake Enthusiast

I had GERD so bad I was on Nexium and Reglan (nearly throwing up after every meal) and refused a surgery. I knew it had to be food related, and got tested. Found out about Celiac, had those tests, and went gluten-free. No more GERD! Proof for me!

Hope you feel better soon!

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