Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Watch What You Say


floridanative

Recommended Posts

floridanative Community Regular

Many on this board, including me, have expressed that we would never want most of our freinds and family to come on this site and read our posts, as they may not be so nice at times and could hurt the feeling of those we care for. Well something interesting just happened when I was searching online for gluten-free places to eat for an upcoming trip. My own post from here appeared about that town/visit. Now I had not said anything that would offend anyone but that is not always the case of course.

For instance, if one of your family members decdided to locate a place for you to eat while visiting with them, they could end up reading a post about how worried you are or that you're dreading the trip. Just thought I'd share what happened to me because I really was taken aback when I got a match that was a post of mine from this site. It's like we think we're just sharing with each other but of course we are sharing with the world.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator
Many on this board, including me, have expressed that we would never want most of our freinds and family to come on this site and read our posts, as they may not be so nice at times and could hurt the feeling of those we care for. Well something interesting just happened when I was searching online for gluten-free places to eat for an upcoming trip. My own post from here appeared about that town/visit. Now I had not said anything that would offend anyone but that is not always the case of course.

For instance, if one of your family members decdided to locate a place for you to eat while visiting with them, they could end up reading a post about how worried you are or that you're dreading the trip. Just thought I'd share what happened to me because I really was taken aback when I got a match that was a post of mine from this site. It's like we think we're just sharing with each other but of course we are sharing with the world.

Excellent point. I've always thought of the Internet as a completely public space. My kids were annoyed for years because I would not get a computer, then would not get on the internet. (We don't have television either) It's good to be reminded.

lisa

tarnalberry Community Regular

Yep. While some blogs have privacy filters, or at least filters that allow posts to not be indexed by search engines, this isn't a blog, and this doesn't have such a filter. It's always best to imagine that you're saying whatever you're saying to everyone you know now, and could meet in the future. It gives an interesting perspective on self-censorhip, I've learned the hard way.

ehrin Explorer

try googling your name, your friends names and your family members names

you'll be amazed at what you find!

CarlaB Enthusiast

Except that I have a very common name and there are thousands with it!!! Sometimes it's an advantage, usually it's a problem, like when trying to buy a house and suddenly my credit shows I owe thousands to someone ...

Carriefaith Enthusiast

That's a really good point. Anyone could read what we say here if they wanted and most of us have pictures so it's easy to tell who it is!

ms-sillyak-screwed Enthusiast

.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



schuyler Apprentice

I actually found this board by doing a search for gluten-free bread.

Thank goodness I did, because I don't know what I'd do without this board.

Guest BERNESES

I just googled my name and my hubby's and it turns out that he is deceased lead singer of Nirvana who just happens to have a cousin with my first name. Weird!!!!

Guhlia Rising Star

Thanks for the reminder... Now if only I could get a member of my family to actually do some researching on the subject!

Errrr... Becky, if you read this, I didn't mean you. :)

Idahogirl Apprentice

My mom has celiac and reads this site regularly, so that keeps me accountable. :D In fact, she is able to go to my user and read all of my posts! It makes me think about what I type a little more since I know I'm not totally anonymous!

Lisa

jenvan Collaborator

Oh, that's very true Tiffany! I had someone from my local Celiac group e-mail me that she found a post I wrote on a doctor....she was researching him. Another woman I didn't know found something I had written about a specific medication and e-mailed me b/c she just moved to my town. We had lunch together :) The internet makes it a "small world." I try to be consistent in character here online as I am in person so that I don't have to be worried about anything I write.

Rikki Tikki Explorer

I googled my first name and it took me to the page that had all the information about me. Now I am thinking I should change my sign on name for here. The problem is my name is so unusual. Any ideas?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

    2. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    3. - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

    5. - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748

    TDeb
    Newest Member
    TDeb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.