Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Gluten Do You Have To Eat


acousticmom

Recommended Posts

acousticmom Explorer

I've heard comments about how long you need to be eating gluten to be tested for celiac (around 6 mos., if I remember right), but I'm wondering how much you need to consume.

Since only one member of our family is officially diagnosed with celiac, our family doctor recommended doing blood tests on the rest of the family every 1-2 years unless someone develops problems that warrant testing sooner--and I'm good with that approach. At home, we all eat gluten-free, which is 90% or more of the non-celiac kids' meals. They get gluten at social events and friends' houses, but it doesn't amount to nearly as much as a "normal" diet. So when they get tested next spring, will this mess up the blood test?

Carol


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

It will definately affect the blood tests. I have heard it's the equivalent of three slices of bread per day. But I wouldn't have them eating that if they're genetically predisposed to the disease!

AndreaB Contributor

If they are predominately gluten-free I would recommend Enterolab every 2-5 years, unless symptoms develop before hand. Open Original Shared Link for Enterolab's website.

acousticmom Explorer

Thanks! I think Enterolab testing may be our solution, but I do want to check on their accuracy rate, since I've heard some concerns regarding this type of testing in general.

Three slices of bread a day--yikes! We haven't had gene testing yet, but my own suspicions make me uncomfortable with that idea. Does anybody know where this estimate comes from?

Carol

VydorScope Proficient

Frankly there is no solid answer yet, this article here will give you some details though :

https://www.celiac.com/st_prod.html?p_prodi...-26106308354.ce

acousticmom Explorer
Frankly there is no solid answer yet, this article here will give you some details though :

https://www.celiac.com/st_prod.html?p_prodi...-26106308354.ce

Thanks, Vincent. That helps.

Cute kid you got there!!

Carol

gfp Enthusiast

From Vincents link

A 0.3 g/kg body weight/day of single gluten challenge causes immunological changes (cellular immunity) in the intestine (J Pediatr Gastroenterol Nutr 1989; 9:176-180) in patients on a gluten-free diet, however, the serological response is much slower.

Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests. However, if somebody experiences symptoms during the gluten challenge we recommend to perform serological tests earlier.

However if they have been eating random gluten outside then this will affect that too.

The question is really one of cost.... you could send off NOW... and bear in mind it might be a false negative BUT knowing you will be able to take them off gluten now if its positive. I would guess most insurance companies would not be happy testing now then again if its negative.

You could make them gluten free 100% for 2-3 months (no outside gluten) and then take the second paragraph .. that is as soon as you have positive reaction wait 2-3 days to a week then have a blood test.

Its all a compromise in the end.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748

    Butch68
    Newest Member
    Butch68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.