Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wish Me Luck! Flying To A Remote Island

Guest cassidy

By Guest cassidy
in Traveling with Celiac Disease

Recommended Posts

Guest cassidy
Guest cassidy
Posted

I leave tomorrow morning for 8 days. We are flying on a small plane to a remote island and the entire family (8 adults, 2 babies) has rented a house. We have weight limits on our luggage because the plane is very small so I'm trying to pack very light so I have room for my food.

I'm packing all my own food because they only have a small maket on the island and I don't feel like I can take a chance. I've been cooking for a month freezing food so that I have enough to bring. I'm doing fine with meals, I just need snacks to bring. Any snack ideas?

I am a bit nervous about the trip. I have shared a kitchen with some of these people before and it was tough. I really don't like food with gluten to be on top of/right next to my food, it freaks me out a bit. I label all my stuff so no one touches it, but then I feel like I'm being stingy because I won't share. I just don't trust them to not cc my food.

We had a family dinner a few months ago and someone reached over my plate to grab a hamburger roll and a crumb landed in my food. I held it together but interally I was like, can't you be a little considerate?

The plan is for them to eat most meals out. I'm not planning on the restaurants being able to accommodate me - getting sick there doesn't sound like fun. I'm learning to be ok with going to restaurants and watching others eat, but doing it day after day gets to me.

I am also an introvert so being around all these people in one house for a week will be a lot for me. I get up early and I'll go for walks because I really need my personal time & space.

I'm hoping this trip with be fun. I'm trying to have a positive attitude and be prepared to all situations.

Any advice?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


taz sharratt Enthusiast
taz sharratt
Posted
I leave tomorrow morning for 8 days. We are flying on a small plane to a remote island and the entire family (8 adults, 2 babies) has rented a house. We have weight limits on our luggage because the plane is very small so I'm trying to pack very light so I have room for my food.

I'm packing all my own food because they only have a small maket on the island and I don't feel like I can take a chance. I've been cooking for a month freezing food so that I have enough to bring. I'm doing fine with meals, I just need snacks to bring. Any snack ideas?

I am a bit nervous about the trip. I have shared a kitchen with some of these people before and it was tough. I really don't like food with gluten to be on top of/right next to my food, it freaks me out a bit. I label all my stuff so no one touches it, but then I feel like I'm being stingy because I won't share. I just don't trust them to not cc my food.

We had a family dinner a few months ago and someone reached over my plate to grab a hamburger roll and a crumb landed in my food. I held it together but interally I was like, can't you be a little considerate?

The plan is for them to eat most meals out. I'm not planning on the restaurants being able to accommodate me - getting sick there doesn't sound like fun. I'm learning to be ok with going to restaurants and watching others eat, but doing it day after day gets to me.

I am also an introvert so being around all these people in one house for a week will be a lot for me. I get up early and I'll go for walks because I really need my personal time & space.

I'm hoping this trip with be fun. I'm trying to have a positive attitude and be prepared to all situations.

Any advice?

chill out ;) enjoy your holiday, try to relax but just keep in mind of your diet. have a lovely time, it sounds a lovely place where you are going :rolleyes: wish i was going <_<

BRUMI1968 Collaborator
BRUMI1968
Posted

Last Christmas, my in-laws and I all went to Molokai, Hawaii for ten days in a house. There was one tiny store, one slightly less tiny store, and thankfully, a healthfood store (the tiniest of them all). My husbands dad baked bread every day, but other than that, it went well. I don't know what kind of island you're going to, but often the visitors you're with will become obsessed with mango, papaya, avocado, etc. and might not even have that much gluten around.

Admittedly, when I went I did not know I was celiac. I ate some of the bread...man was it good. Gary even tried making it from spelt since he knew I didn't eat wheat, and that was thoughtful.

Anyway, good luck to you. Which island are you going to? And where are you going from?

Lymetoo Contributor
Lymetoo
Posted

Sounds like you have things planned out. I hope it goes well for you and that you can enjoy the vacation!!

Carriefaith Enthusiast
Carriefaith
Posted

For snacks... I have a few ideas:

Baby carrots

Rice crackers and peanut butter

Glutino gluten-free bread sticks

Kinnickinick donuts mmmmmm

I personally like frozen corn cooked in the microwave with pepper

Hard Boiled eggs with pepper

Rice Crisps

Have a fun and safe trip!

  • 2 weeks later...
Guest cassidy
Guest cassidy
Posted

I'm back. This trip was very challenging. I was fine the first day, slept through the night and felt great. I woke up Tuesday for breakfast and they had gone to get fresh loaves of bread. ALL the counter tops were full of bread crumbs and the kids were walking around dropping cheerios every few steps.

I wiped all the counters down. Then I grabbed a bowl out of the cabinet. It had bread crumbs in it. I washed every dish I used from then on. I kept all my dry food in my room and tried my hardest to be paranoid. Tuesday night I had a stomach ache for 16 hours. That usually only happens when I'm glutened. Then I got reflux really badly (again glutening symptom) and had C for a few days. I didn't feel horrible, so I'm thinking just a bit of cc. I didn't sleep past 4am the rest of the week.

Then on Sunday I started getting really, really hungry. I woke up at 4am and had a snack because I was starving. Then at 7am I had two bowls of cereal. I cried because we were out of bananas (yes, I realize this is crazy). I went to get bananas and ate 3 of them. Then a piece of lasagna - all before 11am. Yesterday when we were going home I would get this hypoglycemia feeling (glutening symptom) and have to eat immediately. I ate so much food yesterday and I was nauseous the entire way home. I also had a headache.

We got home last night and I was shaking and I had to eat. My heart was pounding it it took a while for it to calm down. Now it is 4am and I just ate a banana with peanut butter because I'm starving again. This is after my two bowls of cereal at 10pm last night.

I don't know if I was glutened a few times when I was there, but I did not feel well at all. We are trying to get pregnant and finally ovulated on Saturday. I'm freaked out because I feel so bad I hope it doesn't affect our chances of getting pregnant. I have looked and it doesn't seem that being this hungry a few days after conception could be due to that.

Off on another trip on Friday. I hope that one goes better. At least we will be in our own hotel room and there won't be crumbs everywhere. I have had so many successful trips, but this one was the hardest by far.

  • 2 months later...
ajay Newbie
ajay
Posted
I'm back. This trip was very challenging. I was fine the first day, slept through the night and felt great. I woke up Tuesday for breakfast and they had gone to get fresh loaves of bread. ALL the counter tops were full of bread crumbs and the kids were walking around dropping cheerios every few steps.

I wiped all the counters down. Then I grabbed a bowl out of the cabinet. It had bread crumbs in it. I washed every dish I used from then on. I kept all my dry food in my room and tried my hardest to be paranoid. Tuesday night I had a stomach ache for 16 hours. That usually only happens when I'm glutened. Then I got reflux really badly (again glutening symptom) and had C for a few days. I didn't feel horrible, so I'm thinking just a bit of cc. I didn't sleep past 4am the rest of the week.

Then on Sunday I started getting really, really hungry. I woke up at 4am and had a snack because I was starving. Then at 7am I had two bowls of cereal. I cried because we were out of bananas (yes, I realize this is crazy). I went to get bananas and ate 3 of them. Then a piece of lasagna - all before 11am...

1) Ok, I am resisting the urge to yell that your family was SUPER INCONSIDERATE. Or, at least, I tried to...

2) I think this is the first time I've seen it mentioned by someone else, but I get really, really hungry after the cramps ease up. Like, "I've polished off everything in the cupboard, what can I eat now?" hungry. I've been wondering if there's a gluten connection.

And no, under the circumstances, it is NOT crazy to cry about a banana shortage. I think most of us would have done the same if we'd been in your shoes!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted

I think the extreme hunger and crying was due to being pregnant! That was the good thing that came out of the trip! I have been starving ever since and I'm 14 weeks pregnant now. I had no idea my symptoms would start that early but they did.

We were are Green Turtle Cay and so I call the baby Turtie. I like it better than "it" since we don't know if it is a girl or boy yet.

ajay Newbie
ajay
Posted
I think the extreme hunger and crying was due to being pregnant! That was the good thing that came out of the trip! I have been starving ever since and I'm 14 weeks pregnant now. I had no idea my symptoms would start that early but they did.

We were are Green Turtle Cay and so I call the baby Turtie. I like it better than "it" since we don't know if it is a girl or boy yet.

CONGRATS!

Great news. May you always have plenty of bananas! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.