Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Northern Virginia Gi Doctor?

CantEvenEatRice

By CantEvenEatRice
in Doctors

Recommended Posts

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted

Hi Everyone,

I was wondering if someone could recommend a good doctor who is familiar with Celiac in the Northern Virginia area? I was diagnosed with Celiac about 3 years ago, but have since developed so many food interolances. I feel like I get sick from just about everything. Any help would be greatly appreciated!

Thank you!

  • 3 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Do we have any other nova residents on board who can give a recommendation? Please?

I might be moving to nova soon and would also appreciate someone's experience with Celiac docs up there. Thanks.

Guest NancyS
Guest NancyS
Posted

:D Yes! Yes! Yes! :D

I am new to this and have just found out I (probably-although I am certain) have celiac disease. I have been so sick, especially for the last 3 months...I can't seem to recover this time. I happened to meantioned that I can't eat wheat/gluten to some of my friends at work, and they told me another lady at work has this same disease! So, I just spoke with her today and asked for the name of her doctor, here in Northern Virginia.

Here is the info:

Dr. Michael Garone

Gastroenterology Associates of Northern Virginia

(703) 716-8700

The lady at work has already been helped greatly with his help and she is doing great! I just called today and the first appointment for a new patient I could get was Oct. 5th. I am anxious, also, to get help.

Although, with just 2 1/2 weeks of removing gluten from diet and reading every post possible on this site,

I am feeling and bit better, but, mentally I am much better because of all of the great and helpful information from everyone here!

God Bless You All!!!

Thank you!

Nancy

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted
  • Author

THANK YOU THANK YOU THANK YOU! I was so hoping that someone would recommend someone. Nancy, were you ever a member of a Chronic Fatigue board? There was a teacher in NOVA named Nancy from another board and I was just curious if it was you? Thanks again for the Dr.'s info!

Guest NancyS
Guest NancyS
Posted
THANK YOU THANK YOU THANK YOU! I was so hoping that someone would recommend someone. Nancy, were you ever a member of a Chronic Fatigue board? There was a teacher in NOVA named Nancy from another board and I was just curious if it was you? Thanks again for the Dr.'s info!

:) Oh my goodness...you are so welcome!

Actually, last night was my first post, because this is brand new to me also. I had seen your post in my own despiration, and it pushed me to contact the lady at work that suffers with the same disease, to ask her of the doctor here in No. VA. So, the thank you should be to YOU! But, I guess that is what it is all about, all of us together, helping each other! You made me feel so good inside. Thank you. And, no, I was never a member of the chronic fatigue board. This is my first experience, but a VERY GOOD one at that.

Pleaseeeeeeeeeeeeeeeeeeee let me know how you are and if you called this doctor. And I will let you know my experience, also. But, I feel very positive that he will help us!

happygirl Collaborator
happygirl
Posted

hey nancy-let me add my thanks as well! I will be in touch with both of you when my potential new jobby job works out....i really appreciate you posting!! welcome to the board---this will be a great resource for you and we are happy to have you here.

xoxo

Guest NancyS
Guest NancyS
Posted

Hi Laura,

Thank you for the welcome to this site! I'm soooo happy to be here. :D I feel like I have found my "home" and my "health" here.

I've only been in the No Virginia area for about 4 years, but if you need help in your move to this area, let me know. At least I could try and point you in the right direction!

The good news is a good GI doctor awaits you!

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

hey nancy-where do you live in nova? as a military brat, I lived there twice....once when I was very young and once for four years in elementary school. We still have a lot of family friends there, so we are hoping that it works out. we would be moving to fairfax, near GMU. I'll have to learn the ropes in terms of where to shop for food and such...I think I have multiple food intolerances (dx Celiac for two years, recent new probs, but thats a whole other story) so its looking like I'm going to have to cut out dairy, soy, etc. At least there are Whole Foods up there!!!

this is a great board---i found it a year after being dx (darn it-sure would've made it easier on me) and it has been my resource for all that is gluten free. :) Lots of great people, and almost all the time, you'll get an answer. Sometimes, lots of answers filled with opinions :P, but always answers.

Guest NancyS
Guest NancyS
Posted

Hi Laura,

I live in Sterling, work in Reston, and my parents live in Alexandria...so I am kind of all over the place. You won't be too far in Fairfax, near GMU. I 'm not a military brat, but I have moved alot in my life...my dad liked to change jobs alot. But, basically, I was born and raise in Southern California. This East Coast life is sure different. Although I have pretty much adapted <_< , and like it ok. It is pretty here. And, yes, Whole Foods is a blessing. I have also found spme things at Safeway, believe it or not. And there are a few things at Trader Joes. The hardest thing, is having to shop at so many different stores to find the items needed to complete a meal. Oh well. I am sure I will get use to it. I don't have any choice! When will you be moving here? It'll be good to be able to share things with another person in my area.

Nancy :)

  • 2 weeks later...
colleenmc Newbie
colleenmc
Posted

Not entirely unrelated, just wanted to mention that the Northern Virginia restaurant chain Great American Restaurants has just completed their gluten free menu for all their sites. This includes Artie's in Fairfax, Mike's American Grill in Alexandria, Silverado in Falls Church, Sweetwater Tavern in Merrifield and Centerville, Carlyle Grand in Shirlington, and Coastal Flats in Fairfax and Tysons. It's not on their web site yet, but they have a laminated copy at each location. It's nice to find a real restaurant that has a gluten free menu, not just the chains.

Open Original Shared Link

happygirl Collaborator
happygirl
Posted

Colleen---Thank you so much for sharing that! I appreciate it!

  • 1 month later...
Mountaineer Josh Apprentice
Mountaineer Josh
Posted

I live in Northern VA too and I drive to Baltimore to see Dr. Alessio Fasano one of the world's top experts on Celiace Disease. He's the director for the Celiac Research Center at the University of Maryland.

Open Original Shared Link

happygirl Collaborator
happygirl
Posted

Josh,

I just moved to Fairfax. I am having issues beyond Celiac at this point, but it is good to know that you have had a seemingly great experience with Dr. Fasano. I have heard wonderful things about him. I heard the head of Alba Therapeutics (the drug company that was started because of Dr. Fasano's research) speak at a support group in Richmond this spring.......talk about inspiring!

Laura

Tim-n-VA Contributor
Tim-n-VA
Posted
I just moved to Fairfax.

I live in Burke. If you haven't tried the Wegman's for groceries, I'd recommend it. Their store brands are well labeled for gluten-free. A new Whole Foods is being built in the Fair Lakes area. The Whole Foods in Springfield is a little cramped so I'm hoping the new one will be more spacious.

Can't help with a doctor recommendation. I was diagnosed by a doctor at the National Naval Medical Center in Bethesda.

happygirl Collaborator
happygirl
Posted

Thanks for the recommendations, Tim! I appreciate it.

Because of my other food intolerances and other health issues, I can't eat any of the pre-made gluten free products anymore. (See my signature). The irony is that I finally move to a place with an abundance of gluten free products......and I can't eat them because of their other ingredients.

I'm now seeing a doc at NIH and John Hopkins (for post-Celiac stuff).

  • 3 weeks later...
gandm Newbie
gandm
Posted

HAPPYGIRL, sounds like your body has refined to a Paleo diet, which many actually decide to go on...without having celiac disease....by choice feeling that is the original diet that our bodies were designed for. That's Paleolithic diet or hunter-gatherer diet. One starter explanation - but there are several - is at: earth360.com/diet_paleodiet_balzer.html. The Neolithic version adds in cooked grains, dairy, sugars...sort of natural but not original to our human creation. (because, for example, grains weren't edible until man found out about fire and cooking them.) So the purists do without them. Check it out. Maybe your food intake situation will stabilize and then you won't feel so bad, knowing you might actually be quite stylish in some circles with your Paleo diet:)

happygirl Collaborator
happygirl
Posted
HAPPYGIRL, sounds like your body has refined to a Paleo diet, which many actually decide to go on...without having celiac disease....by choice feeling that is the original diet that our bodies were designed for. That's Paleolithic diet or hunter-gatherer diet. One starter explanation - but there are several - is at: earth360.com/diet_paleodiet_balzer.html. The Neolithic version adds in cooked grains, dairy, sugars...sort of natural but not original to our human creation. (because, for example, grains weren't edible until man found out about fire and cooking them.) So the purists do without them. Check it out. Maybe your food intake situation will stabilize and then you won't feel so bad, knowing you might actually be quite stylish in some circles with your Paleo diet:)

gandm, thank you for your concern, but my issues (it is a long story) are much more detailed than just some foods. I react to almost all. I am being tested for eosinophilic disorders which are related to multiple food intolerances and allergies. I cannot tolerate any legumes/beans, eggs, nuts, and only some veggies/fruits.

Thank you for thinking of me.

GFinVA Newbie
GFinVA
Posted

Hello to all the other Northern Virginia people :)

I just had my first appointment with a new GI in Fairfax (in the medical buildings outside Fair Oaks Hospital). He and his nurse were both quite knowledgable about Celiac and related autoimmune disorders. He actually spent almost 45 mintues talking with me and answering my questions and didn't rush me out the door like many doctors do. I would highly recommend him to anyone that is looking for a doctor in the area. His name is Myron Shoham and his phone # is 703-281-1023.

  • 4 months later...
JennaB Newbie
JennaB
Posted

YES! Go to www.doctorgi.com and look for Dr. Darren Baroni. He has been WONDERFUL from my first visit! Does anyone know a good Nutritionist in Northern Virginia?

  • 7 years later...
RobinsEggBlue Newbie
RobinsEggBlue
Posted

Josh,

I just moved to Fairfax. I am having issues beyond Celiac at this point, but it is good to know that you have had a seemingly great experience with Dr. Fasano. I have heard wonderful things about him. I heard the head of Alba Therapeutics (the drug company that was started because of Dr. Fasano's research) speak at a support group in Richmond this spring.......talk about inspiring!

Laura

Hi, I was finally diagnosed by Dr. Leila Zachrison in Fairfax after visiting untold numbers of gastroenterologists and told I had IBS. Finally someone who understood and tested me for Celiac. She got to the bottom of all my problems where no other doctor could. She is a traditional M.D. (rheumatologist, internist) but trained in integrative medicine. She and her staff are amazing and can really help you if you have more going on than just celiac. I got to a point where I could no longer work and needed a doctor that took insurance. I found a Dr. Robert Ducati in N. VA not for from Tysons Corner in Merrifield. He is a Functional Medicine doctor, chiropractor and nutritionist! We like him a lot. Not the same as Dr. Z but also very good! I would recommend them both. They will help you get better through diet, supplements, and getting to the root of the problem instead of just writing a prescription. Your visits with them are frequently an hour long, not 10 minutes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JoJo0611
      - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks.
    2. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But...
    3. Seabeemee
      - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea). I also have been diagnosed with GERD and some associated issues hence the endoscopy. ...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment
      7

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      The link at the bottom of the article is the source: https://www.science.org/doi/10.1126/scitranslmed.adr8941
    5. trents
      - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,165
    • Most Online (within 30 mins)
      7,748
    AmynDevyn
    Newest Member
    AmynDevyn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. Both of these conditions would thrive on carbs and you do say you feel better when you don't eat a lot of carbs. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done? You have had over 1 foot of your small bowel removed by that surgery in 2022 so that would certainly challenge digestion and nutrient absorption.  Edited
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      EMA Result

      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      Violent reaction to gluten after going gluten-free?

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.