Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions About Inhaling Wheat Flour And The Soy Family


Sarah8793

Recommended Posts

Sarah8793 Enthusiast

Last night I noticed that I had a slightly sore throat. Today I feel like my lungs ache a little and I had drainage in back of throat when I woke up. I would normally chalk this up to a cold, however I have noticed the sore throat and drainage in the morning at other times within the last few months. I thought back to yesterday and remembered that I made whole wheat pancakes for the kids (they aren't gluten-free as of yet) and that a puff of flour blew up in the air while pouring it in the bowl. It was enough to make me turn my head to avoid it. Then I realized that I only make pancakes on the weekends, and these are the times I have noticed the sore throat. Does it sound like they are related?

Also, I had a lot of soy in different products yesterday. So I'm considering experimenting with removing soy, but need to know if it is every form of soy(beans, oil, protein,lecithin ETC. ) :unsure: Are all types of soy equally offensive?

Thank you all for your help. I wouldn't even know to ask these questions if it wasn't for all of you.

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CDFAMILY Rookie

I think one of the first things I was told by many people was to get all the flour and wheat out of the house. Mainly because of what you just said...that flour poofs and gets into your nasal passage which empties into your stomach.

Ursa Major Collaborator

Valentine's Day I baked my husband a heart-shaped cake with wheat flour, and was sick with the usual gluten symptoms for a week! NOBODY is now allowed to bake with regular flour in this house. Either they have to go somewhere else to bake, or buy the cake. It sucks, but is necessary.

You may want to just make your kids gluten-free pancakes, they may not even notice the difference. If they complain, just tell them that making their usual pancakes makes you feel bad, and that they could either choose to eat something else for breakfast, or get used to the gluten-free pancakes. That's it, your health comes first.

As with soy: If you're intolerant to soy, everything made with it would be a definite problem. To know for sure, eliminate soy for a couple of weeks, and then have something obvious (like drinking a whole glass of soy milk, several times that day). Watch for delayed reactions, you could react the next day or even the day after that.

queenofhearts Explorer

This sounds to me like you might have an oral allergy to wheat. Look up oral allergies online & you might see similar symptoms... my son has a mild oral allergy to apples & carrots. It's akin to hay fever, not as dangerous as Celiac or anaphylactic-type allergies, but still annoying.

Leah

If you still really want to make gluten-flour foods, you could try wearing a dust mask. My husband has asthma & wears one to do dusty work, & it really helps. Hardware stores carry them.

Ursa Major Collaborator
This sounds to me like you might have an oral allergy to wheat. Look up oral allergies online & you might see similar symptoms... my son has a mild oral allergy to apples & carrots. It's akin to hay fever, not as dangerous as Celiac or anaphylactic-type allergies, but still annoying.

Leah

With oral allergy syndrome you definitely DON'T get aching lungs and postnasal drip. What you may get is just a sore throat, fuzzy/yucky feeling in your mouth and on your tongue, or stinging, even, possibly swollen lips (I get all those with various foods).

Be careful with oral allergy syndrome. If you still eat those foods, you may end up with a serious allergy in the long run. I hope you don't give your son apples and carrots. Mind you, he could just be allergic to RAW apples and carrots, cooked might be just fine.

Also, even if Sarah has an oral allergy to wheat, whatever gets into her mouth and nose will eventually end up in her stomach and cause celiac disease symptoms as well.

queenofhearts Explorer
With oral allergy syndrome you definitely DON'T get aching lungs and postnasal drip. What you may get is just a sore throat, fuzzy/yucky feeling in your mouth and on your tongue, or stinging, even, possibly swollen lips (I get all those with various foods).

Be careful with oral allergy syndrome. If you still eat those foods, you may end up with a serious allergy in the long run. I hope you don't give your son apples and carrots. Mind you, he could just be allergic to RAW apples and carrots, cooked might be just fine.

Also, even if Sarah has an oral allergy to wheat, whatever gets into her mouth and nose will eventually end up in her stomach and cause celiac disease symptoms as well.

That's a good point, my son's symptoms are all in his mouth & throat, not lungs at all. I wasn't paying close enough attention on that one! Yes, he's perfectly fine with cooked apples & carrots, & yes, sigh, he still eats them raw sometimes, though I've warned him it might escalate. He is 19 & no longer dependent on my food decisions... I actually think he has some possible Celiac symptoms but he refuses to be tested. Very frustrating.

What do you think of the dust mask concept?

Leah

Ursa Major Collaborator

Leah, I sort of think that it may be okay to bake with a dusk mask. Mind you, I have no idea how small the particles will be that are in the air, and if a dusk mask would keep them out. What has me concerned is, that fine particles will stay in the air for up to 24 hours. I wouldn't want to wear a dusk mask for that long, would you? :rolleyes: Because it would either be that, or leaving right after baking and staying overnight somewhere else (even though that seems like a good idea, too ;) )

Really, I prefer not to have anybody use normal flour in this house, because it's otherwise just another source of cc (and heaven knows I get enough of that around here, with nobody caring, lets not add another thing).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sarah8793 Enthusiast
I think one of the first things I was told by many people was to get all the flour and wheat out of the house. Mainly because of what you just said...that flour poofs and gets into your nasal passage which empties into your stomach.

Thanks, I hadn't thought of it emptying into my stomach. I think this is good advice. I guess I need to take gluten free to the next level, and get it out of the house. Don't know if my husband will want to part with his bread though.

Valentine's Day I baked my husband a heart-shaped cake with wheat flour, and was sick with the usual gluten symptoms for a week! NOBODY is now allowed to bake with regular flour in this house. Either they have to go somewhere else to bake, or buy the cake. It sucks, but is necessary.

You may want to just make your kids gluten-free pancakes, they may not even notice the difference. If they complain, just tell them that making their usual pancakes makes you feel bad, and that they could either choose to eat something else for breakfast, or get used to the gluten-free pancakes. That's it, your health comes first.

As with soy: If you're intolerant to soy, everything made with it would be a definite problem. To know for sure, eliminate soy for a couple of weeks, and then have something obvious (like drinking a whole glass of soy milk, several times that day). Watch for delayed reactions, you could react the next day or even the day after that.

Ursula,

Wow! I never would have guessed baking but not consuming gluten could cause that much of a reaction. Now I'm sure that must have been the problem. What do you make of the aching lung feeling? Do you think that is celiac related? I have made gluten free pancakes in the past for my kids and they couldn't tell the difference, so I will switch back. Thank you for the suggestion on how to check for soy intolerance. I am going to do that in the near future.

Sarah

queenofhearts Explorer
Leah, I sort of think that it may be okay to bake with a dusk mask. Mind you, I have no idea how small the particles will be that are in the air, and if a dusk mask would keep them out. What has me concerned is, that fine particles will stay in the air for up to 24 hours. I wouldn't want to wear a dusk mask for that long, would you? :rolleyes: Because it would either be that, or leaving right after baking and staying overnight somewhere else (even though that seems like a good idea, too ;) )

Really, I prefer not to have anybody use normal flour in this house, because it's otherwise just another source of cc (and heaven knows I get enough of that around here, with nobody caring, lets not add another thing).

Oh, that's true about the lingering haze. I'm lucky that I'm the baker in the family; they gladly eat my gluten-free things & I don't have to worry about the air pollution!

Leah

rinne Apprentice

I worked in a bakery when I was 23 and though I didn't eat the products, after the first couple of months, I would still experience exhaustion, brain fog, dry mouth and swollen eyes after a day at work. I also started to get migraines that year. These days I won't even go into a bakery nor is there any gluten in our home.

I definitely think the flour is giving you a problem. The soy might be but the flour for sure.

gfp Enthusiast

There is a completely seperate illness which is reasonably common within bakers from breathing in the flour which is unrelated to celiac disease. However if you have celiac disease as well then any particualates you breath in above a certain threshhold are transported via the mucous into the digestive system.

The bakers can often eat gluten if they do not have celiac disease as well

However even preparing non gluten-free flours you are going to breath in enough to potentially trigger an immune reaction if you have celiac disease. It is practically impossible to mix flour and not have it floating around the air or find its way into your mouth. If you do it you will get contaminated sometime.

emcmaster Collaborator

Do you all think someone could get glutened if the bread flour is poured into the loaf pan outside and then carried inside? It then gets put into the breadmaker with the lid closed, but with all the mixing the breadmaker does, I'm wondering if little puffs of flour could get out through the cracks in the breadmaker and/or when he's carrying the flour-containing loaf pan from the porch to the kitchen.

Thanks!

ms-sillyak-screwed Enthusiast

-

Ursa Major Collaborator

Elizabeth, I have a friend with a daughter with celiac disease. The girl goes to college, but when she comes home, her mom cannot use her breadmaker to bake her own bread (she normally never buys bread), because Liz (another Elizabeth :) ) would get really sick otherwise.

So, apparently, using a breadmaker with regular flour in a household of someone with celiac disease is NOT a good idea. Don't do it, you'll regret it!

Sarah8793 Enthusiast
Last night daddyO sat next to me at the kitchen counter eating 1/2 a box of WHEAT THINS. Within a few minutes I had to go for a walk I felt like I wanted to jump out of my skin, my nervous system was freakin out. Today I have a loose stool as a result.

Oh, and by the way... daddyO doesn't believe he is a celiac (his test was a false negative I'm convinced) in the middle of the night 4 a.m. I woke to the horrifly screams from his nighmares. It went on for 20 minutes I got worried something was happening to him, so I went down stairs and woke him up. The smell from farting was so bad I had to cover my mouth to walk in the room. I really felt bad for him when I woke him up he had a sore throat, and a headache today.

These sound like my symptoms. My body reacts a lot like yours and your father's. I'm glad you posted this. It is really helpful to hear similar experiences. Thanks, :)

Sarah

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.