Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out I Have Be Glutening My Son

Nic

Recommended Posts

Nic Collaborator
Nic
Posted

Back when my son was first diagnosed, I called all of the places we eat at or order from to see what he can still eat. I called my Chinese take out place and asked them if there is soy sauce in the fried rice. They said "no" only after a very difficult time of getting them to understand that I don't want to order any right now. So I went in to ask them in person and again they said there was no soy sauce in the rice. Now we eat with my mother every Friday night and have been alternating between the Chinese Food and one other place for the entire time he has been supposedly gluten free. About a month ago I noticed that the rice looked darker and I thought there has got to be soy sauce in here. I went back to the place and the same person said, "yes, there is soy sauce" in the rice. I asked to see it and they showed me those little packets. Surely you do not cook with these packets so then they show me a big bucket of soy sauce, second ingredient is "wheat". I almost fell over. This poor kid has been still symptomatic on and off for a year. No one knows why, we blame it on lactose (which I do believe he has a problem with) or IBS. No, it is probably the gluten I have been feeding him every other week. I am very upset with myself. What I do find odd though, is that he had a celiac panel run in the spring and it tested negative for antibodies. Why would he test negative if he certainly has been eating gluten at least 2 times a month for a year?

Nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Maybe the soy sauce is such a small amount that it's enough to cause symtoms/damage, but not enough for it to be in his bloodstream. I was tested by Enterolab and had both the antibodies and autoimmune antibodies and was gluten-free. However, the antibodies did not show up in my bloodwork. Since they're in the intestine, they are doing some damage, but not enough for them to leak into the bloodstream. You can read more about this at www.enterolab.com, but I'm not suggesting he needs to be tested by them as you already know he has it.

Don't feel bad, we all make mistakes.

key Contributor
key
Posted

I don't think you can feel bad, but I personally have discovered that I will stay sick if I eat out. I can't eat out without getting sick from gluten, so I have given up. It is very frustrating, because I think even products in the grocery store that are on shared lines can have a very high risk for cross contamination ,but it usually isn't listed.

I am trying to cook most of my food from scratch and eat mainly unprocessed foods, because it is better for my family and I am tired for feeling sick. So far it is working wonderfully.

I think if it was a small amount then it would make him test negative.

You didn't knowingly feed your child wheat, but I wouldn't eat there again. They can't be trusted.

Monica

wonkabar Contributor
wonkabar
Posted

Don't beat yourself up over it...mistakes happen. You did everything you could; it sounds like there was a communication barrier. We unknowingly gave our son gluten for an entire week by giving him Apple-Cinn Quaker Ricecake mini's. His poops became gross again and his behavior was just awful until we realized that the cross-contamination was what the problem was. Isn't "mother guilt" a wonderful thing?? :P

Nic Collaborator
Nic
Posted
  • Author

The guilt is horrible. Of course we won't eat there again and I feel sorry for him because for some reason, fried rice is like his favorite take out food (nothing else, just the rice :blink: ). I have checked into a bigger restaraunt and they said they will cook according to the our dietary needs but I can't imagine it will taste the same without the soy sauce (that I obviously never knew was there).

Nicole

penguin Community Regular
penguin
Posted
I have checked into a bigger restaraunt and they said they will cook according to the our dietary needs but I can't imagine it will taste the same without the soy sauce (that I obviously never knew was there).

Nicole

You could always ask them if they could use gluten-free soy sauce (kari-out has one) or use tamari when making things for your kid. Couldn't hurt to ask...

Even then, you could always add either of those things after the fact :)

Sarah8793 Enthusiast
Sarah8793
Posted

Sorry this happened to you. I know I feel guilty when I accidentally gluten myself, but when it is your kids it is even a worse feeling. The most important thing is that you are vigilant and when you suspected something you asked and took action. I'm finding more and more that I can't eat out, mainly because of cc. Don't be too hard on yourself, this is a learning process. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TCA Contributor
TCA
Posted

A good friend of mine said that there is one thing guaranteed to come with motherhood - GUILT!!! I gave my son syrup with gluten and felt terrible. I'm so glad you figured it out. Try not to beat yourself up too bad

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jay Heying
      - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    2. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    3. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    4. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    5. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,882
    • Most Online (within 30 mins)
      7,748
    Nicole King
    Newest Member
    Nicole King
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jay Heying
      Celiac friendly probiotics

      By Jay Heying · Posted

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.