Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ulceratice Colitis Or Not?


francelajoie

Recommended Posts

francelajoie Explorer

I've been having loose bowel movements accompanied by blood and mucus. Most of the time it's only blood and mucus...no stools. I go to the bathroom, and as soon as I get out of there, I feel like i have to go again. I don't know what is wrong with me. I haven't been glutened or anything cause i've had this over 2 months now. I don't feel sick at all. I just have gas and very rare bloating.

Anyone ever hear of Dr. Dahlman's protocol? I've actually ordered everything to do the first months treatment. (Not cheap...cost me 200$). I really hope it starts working. If not, I guess I'll have to go see a doctor again. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LKelly8 Rookie

Wow, that sounds like ulcerative colitis to me. My sister has UC, after years of on-and-off prednisone treatment she's finally in remission with a drug called 6-MP.

Open Original Shared Link

I went to Dr. Dahlman's website and read a few pages. To be blunt I think he's a quack :wacko:. Sorry!

Open Original Shared Link

Celiac is the only autoimmune disease that can be cured/treated through diet. I have rheumatoid arthritis and for years I got caught up in the diet-cure scams. A waste of money and worst of all a waste of precious, precious time. If you have UC get it treated by a board certified gastroenterologist now, before the disease progresses to a point of no return. (ie: surgery - or worse)

:unsure: I apologize if I offended. I feel very strongly because of my own experiences. YMMV.

francelajoie Explorer

I actually decided to call my family doctor and get referred to a gastroentorologist at the Celiac center in Boston. Hopefully they'll find something...not too serious I hope. I'm scared they'll make me do the gluten challenge cause I wasn't really diagnosed with Celiac (no colonoscopy)...just gluten intolorence by blood test.

I'll let you know when I find out.

Nancym Enthusiast

Dr. Fine says NSAIDS are terrible for colitis, are you taking any?

justjane Rookie
Dr. Fine says NSAIDS are terrible for colitis, are you taking any?

Sorry to take over your post but I have a question! Nancy, can you tell me what NSAIDS are? I have mild active colitis and chronic active colitis and this would help me sort it out and feel better. I was diagnosed with colitis and basically left in the dark because they were testing for Celiac all that time, which came out negative both in the blood tests and the biopsy. I have done much better on a gluten-free diet, however, so wondering if I still might have it or gluten intolerance. I was 16 when I was tested....

Thanks,

justjane

francelajoie Explorer
Sorry to take over your post but I have a question! Nancy, can you tell me what NSAIDS are? I have mild active colitis and chronic active colitis and this would help me sort it out and feel better. I was diagnosed with colitis and basically left in the dark because they were testing for Celiac all that time, which came out negative both in the blood tests and the biopsy. I have done much better on a gluten-free diet, however, so wondering if I still might have it or gluten intolerance. I was 16 when I was tested....

Thanks,

justjane

Same here...what are NSAIDS?

I am only taking the following supplements which are Dr.Dahlman's protocol:

Lactoviden, Bifoviden, Metagest, Intesol, Azeo-Pangen, and Ultrainflamx. I had to stop taking all this cause I have been waking up in the middle of the night with pain in what I think is the higher part of my large intestine or just to the right of my stomach. Not sure what it is. Thats why i decided to go to my doctor.

penguin Community Regular

NSAIDS are things like asprin, motrin, advil, pepto-bismol, excedrin, and other antinflammatories.

If you look on the bottle, there's usually a warning about ulcers and abdominal bleeding


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesscarmel Enthusiast
I actually decided to call my family doctor and get referred to a gastroentorologist at the Celiac center in Boston. Hopefully they'll find something...not too serious I hope. I'm scared they'll make me do the gluten challenge cause I wasn't really diagnosed with Celiac (no colonoscopy)...just gluten intolorence by blood test.

I'll let you know when I find out.

Hi

I go to the celiac center in boston. who are you seeing? i think you will like it there!

good luck and i hope you feel better!

Jess

Nancym Enthusiast

They always warn about ulcers but it can also affect the upper GI tract, like the small intestine. Yeah thing like Advil, Aleve, aspirin, ibuprofen. I guess Tylenol isn't an NSAID, but it has its own set of problems (liver damage).

IrishKelly Contributor

I was told by a regular gastro Dr. i might have UC...but then i went to a holistic Dr. and he went over a list of symptons (such as pale floating stools, bloody stools, leg cramps, headaches, etc...) and low and behold i'm glutent intolerant. Once i eliminated the gluten (even though all blood tests were negative) i'm sooo much better. He said the colitis would get even better/completely go away over the course of six months...as long as i stay gluten free.

lindalee Enthusiast

Just got an email that a specialist from Mayo is going to be in new mexico speaking of UC and crones if any one is interested I'll look it up.

Nancym Enthusiast

Dr. Fine got into the gluten sensitivity by way of researching UC and microscopic colitis. He said that basically microscopic colitis looks very similar like villious atrophy only in the large instestines. He thinks there is a big connection between gluten and colitis.

mle-ii Explorer
Dr. Fine got into the gluten sensitivity by way of researching UC and microscopic colitis. He said that basically microscopic colitis looks very similar like villious atrophy only in the large instestines. He thinks there is a big connection between gluten and colitis.

Having both Microscopic Colitis (Lymphocytic) and gluten sensitivity (and the gene for celiac) I agree 100% with Dr Fine's connection.

francelajoie Explorer
Hi

I go to the celiac center in boston. who are you seeing? i think you will like it there!

good luck and i hope you feel better!

Jess

Hi Jess,

I got an appointment with Dr. Cheney. I've hear really good things about her. She must be really good, I can only see her in February. I hope it all works out good. My appointment is Valentine's day. I think we're gonna stay in Boston and have a nice dinner.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.