Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breathlessness & Celiac's

Guest Norah022

By Guest Norah022
in Related Issues & Disorders

Recommended Posts

Guest Norah022
Guest Norah022
Posted

I have been having breathing issues (feeling like i wasn't getting enough air, etc.) since about march and was diagnosed with celiac's in may. Have been gluten free since the first week of june and the doctor said the breathlessness was due to anxiety.

Well along with the breathlessness i have had severe vertigo and nausea all of which has been associated with stress along with the breathlessness but it isn't gettig better.

Could this be because of the Celiac's? And does anyone have suggestions how to fix it?

I am a senior in college getting ready to write a thesis and the vetrigo and breathlessness is really affecting getting my work done.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

When I am under stress - as happens frequently wth my chidlren and their various problems - I get premature atrial beats...managed to catch it on a strip in emerg when it kept going for 8 hours (had been up all night with sick kid, so was stressed and fatigued).

I get out of breath, I sit down on stairs cause I can't make it up and then they go away as sudden as they start...and I do feel dizzy when they happen

I become a couch potatoe if they go on for an hour or more..

and yup it is stress related, "benign" - meaning that there is no underlying physcial cause.

When it happens to you - do you feel like pounding heart beat or feel like skipped beat and then your heart pounds in your chest?

gfp Enthusiast
gfp
Posted

Breathlessness is often just caused by severe acid reflux... excuse the just... because it is extremely frightening but you can get acid inhibitors that really help this. (omneparazole etc.)

Stress makes it worse and not being able to breath is about as stressful as it gets. Hence the danger of a catch-22.

Vertigo my mum had for a while....but I don't know much more.

chewymom Rookie
chewymom
Posted

The breathlessness could also be asthma. I was just diagnosed with asthma last year, although I've had some of the symptoms for a long time, and now I'm questioning whether I have gluten problems. I have read that celiac can trigger asthma.

queenofhearts Explorer
queenofhearts
Posted

I've seen many posts here regarding breathlessness so I do think there's a connection. Check out the asthma too especially if you wheeze when trying to get your breath.

Here's one thread: Open Original Shared Link

I would highly recommend looking into yoga breath control-- if you practice when your breathing is comfortable you might be able to marshall those resources when you are gasping.

Leah

gfp Enthusiast
gfp
Posted
The breathlessness could also be asthma. I was just diagnosed with asthma last year, although I've had some of the symptoms for a long time, and now I'm questioning whether I have gluten problems. I have read that celiac can trigger asthma.

Strangely enough this is where my celiac journey began...

The first thing the Dr did on my shortness of breath was give me a tube you blow into which measures lung efficiency and capacity.

First blow it went off the end of the scale... so he asked me to repeat..which I did....

Hardly a surprise .... really

Guest Norah022
Guest Norah022
Posted

well one of the weird things is that my breathlessness happens most when I am sitting down....it rarely happens when I am active.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


queenofhearts Explorer
queenofhearts
Posted

Did you read the other thread? I think hers was the same way. Asthma can have many triggers, as can other breathing issues. If you are under a lot of pressure from your schoolwork, it could be triggered by anxiety when you sit down to work. This is quite common, & yoga exercises are excellent for this type of breathlessness.

And by the way, anxiety is also linked to Celiac.

jennyj Collaborator
jennyj
Posted

One of the first symptoms of my anemia, I found this out later, was I would get out of breath walking from one place to another that weren't to far apart.

Guest Norah022
Guest Norah022
Posted
Did you read the other thread? I think hers was the same way. Asthma can have many triggers, as can other breathing issues. If you are under a lot of pressure from your schoolwork, it could be triggered by anxiety when you sit down to work. This is quite common, & yoga exercises are excellent for this type of breathlessness.

And by the way, anxiety is also linked to Celiac.

I did read the thread and what she is describing is not what i am dealing with. My breathlessness is all the time, worse at some points, but pretty much all the time and it doesn't matter whether i have eaten or not.

I have always had anxiety problems but they never showed themselves with breathing problems. It started happening at the same time as the vertigo since i have been at school it has been worse so i know stress is related but my problem is how to get it to stop because it is affecting my work and that makes me more stressed.

gfp Enthusiast
gfp
Posted
well one of the weird things is that my breathlessness happens most when I am sitting down....it rarely happens when I am active.

How about when you bend over... under a bed or tying laces standing up etc...

Guest Norah022
Guest Norah022
Posted
How about when you bend over... under a bed or tying laces standing up etc...

well i am bending over to write this now and i feel fine but when i was sitting here writing before i was feeling it.

Kat-Kat Newbie
Kat-Kat
Posted
well i am bending over to write this now and i feel fine but when i was sitting here writing before i was feeling it.

Do you feel like air want come from your lungs, like it is getting closed off alittle and does your ears or ear hurt do you have a ringing not bad but there all the time.

gfp Enthusiast
gfp
Posted
well i am bending over to write this now and i feel fine but when i was sitting here writing before i was feeling it.

If you have a lot of stomach acid it acts on your lungs and causes breathlessness.

Most people notice it worse if lying down, especailly if the head is not propped up or when really bending over like hands and kness under a bed but any sitting type activity makes it happen....

Its really bad if you dive.... you naturally have your feet above your head and being 100m down and needing decompression to surface while sucking on a tube but not being able to breath is not nice!

You could have a haitus hernia and/or excessive acid production. The latter is very common in celiac disease if undiagnosed.

Either way its something to get checked out.... it could be asthma or acid but very effective meds are available for both. Asthma is usually associated with wheezing but ....

I know its easy to say but don't panic! .... Yeah I know.... but really .. don't panic, it will subside and the worst thing for either is stressing yourself!

Guest Norah022
Guest Norah022
Posted
Do you feel like air want come from your lungs, like it is getting closed off alittle and does your ears or ear hurt do you have a ringing not bad but there all the time.

Yeah it does feel sometimes like there is air but it isgetting stuck in my chest. I have ear problems and have been diagnosed with an inner ear infection before.

Guest Norah022
Guest Norah022
Posted

I have never been told i am anemic and i get a lot of blood tests done.

But the symptoms sound a lot like mine.

I am meeting with my dietician on campus on monday so I am going to ask her about it.

Guest Norah022
Guest Norah022
Posted

So it isn't anemia....Any other ideas :( I am desperate it is getting so much worse

Michi8 Contributor
Michi8
Posted
So it isn't anemia....Any other ideas :( I am desperate it is getting so much worse

Has your doctor ruled out lupus?

Michelle

Guest Norah022
Guest Norah022
Posted

My doctor told me my breathlessness and the feeling of having a lump in my throat or something stuck in my throat (which will not go away and is driving me nuts) is because of allergies.....

anerissara Enthusiast
anerissara
Posted

How long have you been gluten-free? I had breathlessness and dizziness at the peak of my sickness before going off gluten, and it eventually went away. It took a couple of months at least, though. I don't think I was anemic enough to cause those symptoms, they just seemed to be a part of the celiac package as it were. I hope you feel better soon!

Guest Norah022
Guest Norah022
Posted

i have been gluten free for 3 months but this began in march following an inner ear infection...Now the stuck in the throat aspect is the worst

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive. The endoscopy and biopsy is looking for damage to your small intestine. I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy...
    2. Scott Adams
      0

      Gluten-Free Diet Burnout: Why It Happens and How to Get Your Motivation Back (+Video)

    3. Midwesteaglesfan
      - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      At 41 years old I have been fighting fatigue and joint pain for a couple months. My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right. Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist. He was extremely thorough and sat with me and m...
    4. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    5. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,267
    • Most Online (within 30 mins)
      7,748
    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Going for upper endoscopy today

      By Wheatwacked · Posted

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.