Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

As Time Passes, Why So Many New Intolerances?


CantEvenEatRice

Recommended Posts

CantEvenEatRice Enthusiast

Hi Everyone,

I just do not understand how a person can continue to develop new intolerances as time passes. I was diagnosed with Celiac 3 years ago and now I feel like I can barely eat anything. I assume some of the intolerances were always there, but now I am getting direct reactions from all sorts of foods. I used to be able to just avoid gluten and everything was fine. Now I cannot eat rice, corn, soy, dairy, tomatoes, bananas, beans....It's driving me crazy! I am afraid that eventually I will be allergic to everything!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Canteveneatrice---

I feel like I am in the same boat with you...I am still determining my intolerances, but no matter what they are---it just doesn't make sense to me. I have been gluten-free/dx Celiac for 2 years now. In the past six months I began having troubles and now think that I have multiple food intolerances. I'm guessing it has something to do with leaky gut and the fact that our bodies went wrong somewhere with gluten and it is a downward spiral. I'm sorry that you are going through this. How did you determine your intolerances? Elimination diet or testing? It seems like there are a growing number of people on this board with more than one (and usually more than two) intolerances. We must be a special group.

So---my big question is...what do you eat?!

RiceGuy Collaborator

I can also relate to your situation. I just found out I can't tolerate nightshade foods like potatoes and tomatoes. At first I thought it might be the rice, but now I'm hopeful that I can continue to eat rice. I have not yet tried though as I'm still recovering from the nightshades :(

Perhaps what happens is the immune system is recovering, but is still on high alert from the glutening it was addressing for so long, so reacts too much. Or maybe it's just the leaky gut, and the body was just too overloaded to react to the smaller stuff. I'm not any more certain than the rest of you I suppose :unsure:

The nightshade thing hit me out of the blue, and like a brick - after what must be a solid 2 years or more gluten-free.

CarlaB Enthusiast

Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

kabowman Explorer

Hey, your list is almost identical to mine, except I can still have rice and nightshades (tomatoes, white potatoes, peppers, eggplant). I can't have bananas either but it isn't in my sig.

I occasionally still have problems and continue to become more sensitive. I figured out why I cannot have most non-dairy milks (rice & nut) is because of the calcium they add - not sure what it is but it doesn't like me. I have the same problem with OJ with the calcium added. Along with some preservatives.

Hubby is a little concerned about what I will be able to eat in another few years if I keep eliminated foods. Well, I haven't really eliminated too many foods recently, just preservatives and additives - the foods have remained the same.

key Contributor

I thought for awhile I was intolerant to all kinds of foods, but I found I was still getting gluten. These are some things I quit doing and it made me feel like a different person! I can't eat out at all. I end up getting sick eating out at least 80% of the time and so it isn't worth it to me. I am not saying I will never eat out, but if I want to feel well, I had to stop. Also, I am not sure, but I did give up my lipstick I was using. There were also some foods that said they were gluten free, but after months of them making me sick, I found out some must be cross contaminated from the plant. If I can eat beans from one can, but not another, that just doesn't make sense. I wish that we could trust companies more.

I do believe people have other intolerances, but for awhile I was thinking I couldn't eat any food without getting sick. Now when I am 100% gluten free, I am fine. It took me over a year to figure all this out and I am still a work in progress. I don't think I handle soy very well either, but I don't avoid it like gluten. I just don't eat large amounts of it.

The one thing I thought was messing me up was caffeine, but I am fine with that too, if I am gluten free.

I hope you start feeling better soon. There is nothing worse then feeling like everything makes you feel sick. It did get MUCH better for me, so there is hope. I was very depressed from being sick all the time. It can really mess with your mind!

Take care,

Monica

gooddawg315 Newbie

hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CantEvenEatRice Enthusiast
hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!

Bananas make me so sick too! I have read that you can eventually re-tolerate foods in the future that you cannot tolerate now. I sure hope that is true because I feel like I can't eat anything anymore! I have a really hard time with brown rice too so I have cut out all rice. I have also cut out dairy. I am hoping that I just feel so lousy due to all the changes and detoxing. However, I haven't been able to tolerate rice for a long time and it actually seems like I can tolerate less and less as time goes on. I am hoping it is just a phase and I will be able to reintroduce foods in the future, but I am not so sure.

RiceGuy Collaborator
Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

Well, for me it was basically what nightshades actually do, only heightened to an extreme. I found out that the poison in nightshades is poison to everyone, only most people don't notice the effects of the typical dose. Take a look Open Original Shared Link for the symptoms. That's what told me I was being poisoned by it. Muscle and joint pains, twitching, spasms, weakness, stiffness, etc. Not to mention the digestive difficulties :(

kbtoyssni Contributor
(like in cereal such as Brown rice crisps or the "gluten free" granola)

Gluten free granola? Oats are usually contaiminated and I've never seen a granola without oats. Is this an oat-free granola that you've found? Anyhow, sorry if you already know about oats, just want to make sure you're not accidently eating gluten :)

  • 3 weeks later...
LoriCF Newbie

I have the same questions for my son. He has multiple food intolerances already (the big 8 except for corn, plus artificial colors, chocolate, strawberries) and since going gluten-free 3 months ago he's becoming more intolerant--citric acid and tomatoes, maybe potatoes? are causing problems (behavioral) too. I'm glad he's not the only one. I feel like a crazy mom, being suspicious of every food he eats!

Lori

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.