Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

As Time Passes, Why So Many New Intolerances?

CantEvenEatRice

Recommended Posts

CantEvenEatRice Enthusiast
CantEvenEatRice
Posted

Hi Everyone,

I just do not understand how a person can continue to develop new intolerances as time passes. I was diagnosed with Celiac 3 years ago and now I feel like I can barely eat anything. I assume some of the intolerances were always there, but now I am getting direct reactions from all sorts of foods. I used to be able to just avoid gluten and everything was fine. Now I cannot eat rice, corn, soy, dairy, tomatoes, bananas, beans....It's driving me crazy! I am afraid that eventually I will be allergic to everything!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Canteveneatrice---

I feel like I am in the same boat with you...I am still determining my intolerances, but no matter what they are---it just doesn't make sense to me. I have been gluten-free/dx Celiac for 2 years now. In the past six months I began having troubles and now think that I have multiple food intolerances. I'm guessing it has something to do with leaky gut and the fact that our bodies went wrong somewhere with gluten and it is a downward spiral. I'm sorry that you are going through this. How did you determine your intolerances? Elimination diet or testing? It seems like there are a growing number of people on this board with more than one (and usually more than two) intolerances. We must be a special group.

So---my big question is...what do you eat?!

RiceGuy Collaborator
RiceGuy
Posted

I can also relate to your situation. I just found out I can't tolerate nightshade foods like potatoes and tomatoes. At first I thought it might be the rice, but now I'm hopeful that I can continue to eat rice. I have not yet tried though as I'm still recovering from the nightshades :(

Perhaps what happens is the immune system is recovering, but is still on high alert from the glutening it was addressing for so long, so reacts too much. Or maybe it's just the leaky gut, and the body was just too overloaded to react to the smaller stuff. I'm not any more certain than the rest of you I suppose :unsure:

The nightshade thing hit me out of the blue, and like a brick - after what must be a solid 2 years or more gluten-free.

CarlaB Enthusiast
CarlaB
Posted

Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

kabowman Explorer
kabowman
Posted

Hey, your list is almost identical to mine, except I can still have rice and nightshades (tomatoes, white potatoes, peppers, eggplant). I can't have bananas either but it isn't in my sig.

I occasionally still have problems and continue to become more sensitive. I figured out why I cannot have most non-dairy milks (rice & nut) is because of the calcium they add - not sure what it is but it doesn't like me. I have the same problem with OJ with the calcium added. Along with some preservatives.

Hubby is a little concerned about what I will be able to eat in another few years if I keep eliminated foods. Well, I haven't really eliminated too many foods recently, just preservatives and additives - the foods have remained the same.

key Contributor
key
Posted

I thought for awhile I was intolerant to all kinds of foods, but I found I was still getting gluten. These are some things I quit doing and it made me feel like a different person! I can't eat out at all. I end up getting sick eating out at least 80% of the time and so it isn't worth it to me. I am not saying I will never eat out, but if I want to feel well, I had to stop. Also, I am not sure, but I did give up my lipstick I was using. There were also some foods that said they were gluten free, but after months of them making me sick, I found out some must be cross contaminated from the plant. If I can eat beans from one can, but not another, that just doesn't make sense. I wish that we could trust companies more.

I do believe people have other intolerances, but for awhile I was thinking I couldn't eat any food without getting sick. Now when I am 100% gluten free, I am fine. It took me over a year to figure all this out and I am still a work in progress. I don't think I handle soy very well either, but I don't avoid it like gluten. I just don't eat large amounts of it.

The one thing I thought was messing me up was caffeine, but I am fine with that too, if I am gluten free.

I hope you start feeling better soon. There is nothing worse then feeling like everything makes you feel sick. It did get MUCH better for me, so there is hope. I was very depressed from being sick all the time. It can really mess with your mind!

Take care,

Monica

gooddawg315 Newbie
gooddawg315
Posted

hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CantEvenEatRice Enthusiast
CantEvenEatRice
Posted
  • Author
hi guys. I have been "gluten-free" since July, and I too am finding out that non gluten foods I used eat all the time now do bother me. Especially bananas! I ate one and the pain was so bad I ended up in the ER! I was told bananas are the hardest fruit to digest by the doctor. Who knew! I also find that certain berries, pineapple,oranges can do it. I also am having a problem with brown rice (like in cereal such as Brown rice crisps or the "gluten free" granola). Is this common at first? I can eat cooked veggies meat etc. Could it be the fiber content? My friend (mom is severely celiac) told me this is your bodies way of ridding the toxins in your system and that eventually you will be able to slowly add these back into your diet. At least that's what happened with her mom. Does this sound realistic? Or once you are intolerant, do you usually stay intolerant? thanks for any input and good luck with your new found diets!

Bananas make me so sick too! I have read that you can eventually re-tolerate foods in the future that you cannot tolerate now. I sure hope that is true because I feel like I can't eat anything anymore! I have a really hard time with brown rice too so I have cut out all rice. I have also cut out dairy. I am hoping that I just feel so lousy due to all the changes and detoxing. However, I haven't been able to tolerate rice for a long time and it actually seems like I can tolerate less and less as time goes on. I am hoping it is just a phase and I will be able to reintroduce foods in the future, but I am not so sure.

RiceGuy Collaborator
RiceGuy
Posted
Really, Riceguy, what are the symptoms of nightshade intolerance? The only nightshade I eat anyway is potato.

Well, for me it was basically what nightshades actually do, only heightened to an extreme. I found out that the poison in nightshades is poison to everyone, only most people don't notice the effects of the typical dose. Take a look Open Original Shared Link for the symptoms. That's what told me I was being poisoned by it. Muscle and joint pains, twitching, spasms, weakness, stiffness, etc. Not to mention the digestive difficulties :(

kbtoyssni Contributor
kbtoyssni
Posted
(like in cereal such as Brown rice crisps or the "gluten free" granola)

Gluten free granola? Oats are usually contaiminated and I've never seen a granola without oats. Is this an oat-free granola that you've found? Anyhow, sorry if you already know about oats, just want to make sure you're not accidently eating gluten :)

  • 3 weeks later...
LoriCF Newbie
LoriCF
Posted

I have the same questions for my son. He has multiple food intolerances already (the big 8 except for corn, plus artificial colors, chocolate, strawberries) and since going gluten-free 3 months ago he's becoming more intolerant--citric acid and tomatoes, maybe potatoes? are causing problems (behavioral) too. I'm glad he's not the only one. I feel like a crazy mom, being suspicious of every food he eats!

Lori

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.