Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

School Gave My Child A Sack Lunch!


Jodele

Recommended Posts

Jodele Apprentice

To day was a bad day.(bad week in fact) This morning I was so tired that I did not get up in time to fix 2 lunches for my 2 older DDs , so I did it after I got back from taken them to school and took the lunches to school when I picked up my youngest from prek. The office staff said they would get it to them asap. so I went home. When I picked up Melinda and Emily from school Melinda's teacher asked if Melinda brought a lunch today and I said that I droped it off at the office I was running late today for school. I saw that melinda had her lunch bag with her so I thought she got it at lunch but she opened it and nothing had been touch and I ask her if she had lunch at all and she said they gave her a sack lunch and then the office gave her lunch bag. She ate the sack lunch not her lunch I made her. When I got home I called the school and was SO MAD!!! I said to them that I made sure everyone in the school know that my kids have this problem. This better not happen again. I am a stay at home mom and you can call me any time. Sorry for my ranting I know she will be ok but she might be sick tomorrow. Day befor yesterday she was throwing up all day and had the Ds. it was like water and she had 2 acidents with it. She had no fever. I think she got glutened the day before from playdought so no more playdough. I just got my test back from enterolab and it was positive iga 21. So I know that my younger kids have it to. We have been gluten free for 2 weeks now and I am feeling better everyday. It took my oldest dd to find out what was wrong with me. She is my angel.

Thanks for letting me rant.

Jodele


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

YIKES!!! I would be very upset! I hope that it doesn't happen again.

RiceGuy Collaborator

Glad you are doing better so quickly. That didn't happen for me at all. Anyway three weeks is hardly enough time for the gluten-free thing to sink in at the school or anyplace else. You'll need to really push them I'd guess. Plus your kids will learn never to eat what they aren't certain is safe. They will get it - especially when accidents like that lunch bring about illness, while the gluten-free diet gives them a sense of well-being that they can appreciate.

But do keep up the fight with the school, and don't trust them to deliver the lunch to your child. Demand to take it to them personally. It's not a concentration camp! That will also hit home with your child how important it is.

Tori's Dad Apprentice

Our daughters first day of kindergarten is tomorrow so we will be on pins and needles for sure. She was diagnosed in May so we have had all summer to train her to not accept any food that we didn't provide for her.

dad:"Now what do you say if someone offers you food, even if it looks yummy?"

Tori:"I can't eat that because it might make me sick"

dad:"Good girl"

Don't worry, your daughter will quickly get used to not accepting food from others. Hope she gets to feeling better soon!

2Boys4Me Enthusiast
Our daughters first day of kindergarten is tomorrow so we will be on pins and needles for sure. She was diagnosed in May so we have had all summer to train her to not accept any food that we didn't provide for her.

dad:"Now what do you say if someone offers you food, even if it looks yummy?"

Tori:"I can't eat that because it might make me sick"

dad:"Good girl"

Don't worry, your daughter will quickly get used to not accepting food from others. Hope she gets to feeling better soon!

Here's how it went with my son (entering grade two Sept. 5) all through grade one if someone offered him something.

Him: Is it gluten-free?

Them: :blink:

Him: No thanks.

Then he'd go to the teacher and get his treat bag from her desk and have one of his treats. She kept a bag in her desk with Envirokidz bars, Aero bars, Fruit to Go and Rockets.

Smunkeemom Enthusiast

From one of the ladies in my support group

Having lots of experience with schools and special needs, I would suggest typing up a letter for your school principal and director of special services requesting a 504 plan. This is a great plan for kids with special health needs, it is basically a written contract saying what issues your son has and how the school will meet those needs. If they break the contract, it's a civil rights infraction. But remember, you must request in writing, and they must respond in writing. If they say that they don't need it, ask for that in writing as well. Trust me.

she says it keeps them in line a LOT better because they know that if they screw up you have it in writing that they know what to do, it means they were negligent with your kid, and that's not something the school wants everyone and their dog to be talking about, so you might look into getting this done.

oh, and I would be very mad. I would be the mom at the school office "don't you know that your food damages my kid?! how hard is it NOT to posion my kid?"

zip2play Apprentice

If this happens again, my suggestion is you walk the lunches to your children's classes. Hand it to them yourself. Then there is no question. KWIM?

It stinks, but those kind of things can happpen!

How old are your girls? I ask b/c my 4 year old knows what foods I can and cannot have.

Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jodele Apprentice

I have 3 girls they are 4, 5, and 8 years old. Melinda is my middle girl and she is the one i worrie about food. She love food and wants to eat all the time. We just started gluten-free when school started. She was upset that she ate the sack lunch and I talked to her that she could not do that again. It so hard teaching your kid to leason to teachers and do what they say and now I have to tell melinda not to leason to them now. hope I dont confuse her any. Emily my oldest is very good at asking if it is gluten-free and the funny thing is my youngest is very good to. Katie she was over at a friends house last saturday and was hungry so my friend went though her stock of food to find her something she could eat and found popcorn. Katie ask if popcorn was gluten free and my friend said yes and so katie ran around the house yelling "YEA POPCORN IS GLUTEN FREE!!! WE CAN EAT IT!!!" I thought that was so good that she knows she can not have gluten and she is only 4.

It is very trying but I think everything will turn out great. I know I am feeling better now and will only get better from here. I think I gluten my self yesterday with medication. Not feel my best right now and staying close to the bathroom. so I better get off here. and talk at ya later.

Jodele

MaryKyburz Newbie

I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

gfp Enthusiast
I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

Sounds ideal perhaps from his perspective.

I spent most of my time at school at 5-10 trying to get made to stand by myself in the corridor....especially in classes hwere the teacher made me sit next to someone.

Perhaps he's hoping not to be forced to have to eat with other kids????

Nic Collaborator
I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

Hi, since he is high functioning autistic has he been assigned a classroom aid? I had an ADHD child this school year in my class and her lunch time behavior was very reckless and therefore dangerous so we asked the principal to assign her an aid at lunch time as well. I know ADHD is different than autism but is it possible to fight for him to have an aid at lunch time? I am assuming he is classified, if he is go to the child study team with your concerns. He should not be isolated from the class, the school needs to accomodate his needs.

Nicole

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.