Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 Years In And The Waters Fine

vallojo

By vallojo
in Coping with Celiac Disease

Recommended Posts

vallojo Rookie
vallojo
Posted

I just celebrated my 10yr anniversary this week and wanted to share with some of you who may be new to this crazy world were living in. It's not the end, when I found out I had Celiac I was 19 yrs old and thought my life was over how could I not eat and drink what my friends ate and drank. There was denial ( Or cheating) I found out very fast this was not the way i wanted to feel the rest of my life. I'm not very good at writing down my feelings so I will keep this short. My friends have been great in helping me cope with this disease and my only hope is that you all have the same. I'm 10 yrs in and I haven't givin up hope that one day food will no longer run my life, and if that day never comes.........then so be it I happy just to be able to share this.

p.s NO GRAIN NO PAIN ;)

Jon

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Hi Jon, and welcome to our board. I've been gluten-free for ten months now, and wonder what it will be like in ten years. It's still hard, especially with all my other intolerances. I am glad you're doing well!

KaitiUSA Enthusiast
KaitiUSA
Posted

Hey welcome to the board. Its always good to get people on here you have been around with it for a while to help out.

CarlaB Enthusiast
CarlaB
Posted
I just celebrated my 10yr anniversary this week and wanted to share with some of you who may be new to this crazy world were living in. It's not the end, when I found out I had Celiac I was 19 yrs old and thought my life was over how could I not eat and drink what my friends ate and drank. There was denial ( Or cheating) I found out very fast this was not the way i wanted to feel the rest of my life. I'm not very good at writing down my feelings so I will keep this short. My friends have been great in helping me cope with this disease and my only hope is that you all have the same. I'm 10 yrs in and I haven't givin up hope that one day food will no longer run my life, and if that day never comes.........then so be it I happy just to be able to share this.

p.s NO GRAIN NO PAIN ;)

Jon

Congratulations! I'm 8 months in and still feeling like garbage. My denial wasn't bad enough to include cheating!!

ianm Apprentice
ianm
Posted

I wish I would have known what was wrong with me at 19 instead of 36. It would have saved me a lot of grief and agony.

IrishKelly Contributor
IrishKelly
Posted
I just celebrated my 10yr anniversary this week and wanted to share with some of you who may be new to this crazy world were living in. It's not the end, when I found out I had Celiac I was 19 yrs old and thought my life was over how could I not eat and drink what my friends ate and drank. There was denial ( Or cheating) I found out very fast this was not the way i wanted to feel the rest of my life. I'm not very good at writing down my feelings so I will keep this short. My friends have been great in helping me cope with this disease and my only hope is that you all have the same. I'm 10 yrs in and I haven't givin up hope that one day food will no longer run my life, and if that day never comes.........then so be it I happy just to be able to share this.

p.s NO GRAIN NO PAIN ;)

Jon

I wish i knew i was glutent intolerant ten years ago when i was 18...now i'm 28 and it's done some damage to me...but i'm a superstar so i'm sure i'll pull through, especially with meeting new people here.

Carriefaith Enthusiast
Carriefaith
Posted

Congratulations :)

And welcome to the board!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I just celebrated my 10yr anniversary this week and wanted to share with some of you who may be new to this crazy world were living in. It's not the end, when I found out I had Celiac I was 19 yrs old and thought my life was over how could I not eat and drink what my friends ate and drank. There was denial ( Or cheating) I found out very fast this was not the way i wanted to feel the rest of my life. I'm not very good at writing down my feelings so I will keep this short. My friends have been great in helping me cope with this disease and my only hope is that you all have the same. I'm 10 yrs in and I haven't givin up hope that one day food will no longer run my life, and if that day never comes.........then so be it I happy just to be able to share this.

p.s NO GRAIN NO PAIN ;)

Jon

Jon, Thanks for posting this. I am 4 years into the diet and the changes have been incredible. I hope you will stick around you could give a lot of encouragement to some of the newbies that are struggling and feeling like there is no end to the changes and the misery. Welcome to the boards. My DS will be living in the Rochester area after he finishes his studies in December, he is an older student so close to your age, maybe you can clue us in on 'celiac freindly' places and things that he can do. He is a big time motor head and pool player and often is at a loss when he moves someplace new. We live a hour away and he had been going to Hennrietta to shoot billiards but hasn't found much else he can do. He has been gluten-free for 3 years and CC worries keep him kind of isolated at times.

happygirl Collaborator
happygirl
Posted

Jon-Happy to have you on board and congratulations on your ten years! That is amazing and I'm sure you will provide much needed encouragement to all. I was dx two years ago at age 23---my first thoughts were, No midnight pizza!!!!!!!!!

And yet, we have both managed to survive. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Watch this space! 😊
    2. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but...
    3. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10). Since then it has gone up to 10. I am not happy with that. I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I...
    4. Mike Maurillo
      0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

      until
      Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
    5. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,219
    • Most Online (within 30 mins)
      7,748
    Cmat
    Newest Member
    Cmat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.