Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lab Results Negative For (big Words) But Positive For...

capecodda

Recommended Posts

capecodda Rookie
capecodda
Posted

H. Pylori. Ok..so I do have high H. Pylori but it was multigrain oatmeal that got me to the Drs. and I have many symptoms that really fit with Celiac. The page that uses words like t-Transgutaminase (tTG) IgA...Antigliadin ABS. Amylase, Lipase..etc etc came out negative. My question is, can one still have Celiac with such a shining report? It appears that the Dr knew the correct tests to do. I clearly am responding well and immediate improvement with excluding the bad grains from my diet. Unsure about corn though..as I seem to have a rapid heartbeat after eating that as I did when ingesting the mulrigrain stuff. Could be the H Pylori bacteria is also making digestion harder in general.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


capecodda Rookie
capecodda
Posted
  • Author
H. Pylori. Ok..so I do have high H. Pylori but it was multigrain oatmeal that got me to the Drs. and I have many symptoms that really fit with Celiac. The page that uses words like t-Transgutaminase (tTG) IgA...Antigliadin ABS. Amylase, Lipase..etc etc came out negative. My question is, can one still have Celiac with such a shining report? It appears that the Dr knew the correct tests to do. I clearly am responding well and immediate improvement with excluding the bad grains from my diet. Unsure about corn though..as I seem to have a rapid heartbeat after eating that as I did when ingesting the mulrigrain stuff. Could be the H Pylori bacteria is also making digestion harder in general.

bump. It seems more often than not, from what i read here, that blood work proves negative for celiac though a person may very well have it. Am I correct? TIA.

ravenwoodglass Mentor
ravenwoodglass
Posted
bump. It seems more often than not, from what i read here, that blood work proves negative for celiac though a person may very well have it. Am I correct? TIA.

Yes you are correct. I did not show up in bloodwork and my kids showed a low positive (many doctors would have considered it negative) but we are all clearly and undoubtedly celiac. The best ways to tell are dietary exclusion with no cheating and Enterolab's stool antibody and genetic tests.

plantime Contributor
plantime
Posted

Many times, positive bloodwork only comes around after serious damage is done to the intestines. By paying attention to other symptoms and going gluten-free now, you could very well be preventing very serious illness in the future. An ounce of prevention....

capecodda Rookie
capecodda
Posted
  • Author

Thankyou for the replies! I had a total turn around with eliminating obvious glutens and corn products from my diet. Milk is taking care of the pain from the ulcer so am on the up and up. The GP has referred me to a GI Dr. but not sure how far I will go with that...been through enough at the moment and not interested in endoscopy for the time being!

LonelyWolf307 Rookie
LonelyWolf307
Posted

I've also had problems regarding testing. Because of my symptoms, all of which got progressively worse over a period of about 8 months, and how much a gluten-free diet has helped, I'm certain I'm a Celiac. However my blood test came up negative, and they never bothered to look further into it because it's a "rare" disorder :huh: I think that the only accurate test they can really do is the biopsy, or you could put yourself on the gluten-free diet and see if it improves matters after a month or two. I felt results after only a week or so, and I got worse again when I experimented by reintroducing gluten to my diet (or did so by accident, and found out after the symptoms were present again).

capecodda Rookie
capecodda
Posted
  • Author
I've also had problems regarding testing. Because of my symptoms, all of which got progressively worse over a period of about 8 months, and how much a gluten-free diet has helped, I'm certain I'm a Celiac. However my blood test came up negative, and they never bothered to look further into it because it's a "rare" disorder :huh: I think that the only accurate test they can really do is the biopsy, or you could put yourself on the gluten-free diet and see if it improves matters after a month or two. I felt results after only a week or so, and I got worse again when I experimented by reintroducing gluten to my diet (or did so by accident, and found out after the symptoms were present again).

Months..wow. That's what I am reading here and some folks still have intermittent trouble. My improvements are immediate..from the first baked potato..within 2 weeks the symptoms (aside from the ulcer) have completely calmed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bklynceliac Apprentice
bklynceliac
Posted

yes, it's certainly possible to have it and not test positively. You KNOW however that you have h. pylori, so I would treat that first and see where you stand afterwards. I believe that can be kicked with a couple weeks of antibiotics, which is a lot better than a lifetime of no wheat. So I'd wait to see if you're still sick before comitting to gluten free or paying for enterolab.

capecodda Rookie
capecodda
Posted
  • Author
yes, it's certainly possible to have it and not test positively. You KNOW however that you have h. pylori, so I would treat that first and see where you stand afterwards. I believe that can be kicked with a couple weeks of antibiotics, which is a lot better than a lifetime of no wheat. So I'd wait to see if you're still sick before comitting to gluten free or paying for enterolab.

That's true, but I have had food problems for many years and know that malt causes extreme bloat/gas. Years ago I had diarrhea for a month and they said I had IBS..and when I quit the farina and started eating potatos, it was all uphill. Will have to look inot ulcers too..Maybe you cannot digest grains well with an ulcer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748
    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.