Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malnutrition

Guest Norah022

By Guest Norah022
in Coping with Celiac Disease

Recommended Posts

Guest Norah022
Guest Norah022
Posted

Could anyone give me information on how malnutrition shows itself with Celiac's?

I have been having some symptoms and the only thing we can come up with is malnutrition.

Still trying to get a blood test but my school's health services are not be very cooperative and the symptoms are starting to affect my everyday life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Doll
Guest Doll
Posted
Could anyone give me information on how malnutrition shows itself with Celiac's?

I have been having some symptoms and the only thing we can come up with is malnutrition.

Still trying to get a blood test but my school's health services are not be very cooperative and the symptoms are starting to affect my everyday life.

Weight loss, paleness due to anemia, hair loss, white ridges on fingernails, fatigue, etc. are all commonly seen in malnourishment and thus Celiac.

Celiac symptoms can include the above plus gas, nausea, vomiting, diarrhea, bloating, dark circles under the eyes, panic attacks, and burning sensation in limbs, just to name a few.

Some people get severe neurological symptoms (seizures, hallucinations, etc. as well).

Since you're not a new member, you are obviously on the gluten-free diet? If you are and still have weight loss etc. please see your doctor to rule out other conditions or associated conditions. There are other diseases that can cause similar symptoms that will need treatment that is NOT the gluten-free diet, which is why I think everyone should see a Dr. before doing starting gluten-free to treat their own symptoms. Just my opinion.

Guest Norah022
Guest Norah022
Posted

I was diagnosed with Celiac's by a blood test..have been gluten free since the beginning of June but have been showing these symptoms since November. We have rulled out so many things like inner ear infections and allergies.

Malnutrition was brought up because I do have nutrient definciencies and I am showing symptoms of malnutrition but the doctors don'tbelieve me and won't do the blood test.

Guest Norah022
Guest Norah022
Posted

so is it weird that i am gaining weight instead of losing it? When i first went on the diet i dropped 30 pounds but the past 2 weeks i have put on a few pounds....

myserenityprayer Explorer
myserenityprayer
Posted

I would say you should totally get tested. And you can be malnourished while not being underweight. My doctor told me after seeing my low protein levels in my blood and iron deficiency he determined malnourishment. I am also overweight, have been forever. As has been for as long as I could remember losing 20lbs. would finally get me into the normal weight range for my height. Maybe one of these days I can say I am actually healthy (nourished, feeling great, and a "normal" weight).

Definitely get your blood tested. Supposedly the usual test for Celiac Sprue should include a test for iron levels and other things like your protein levels to deterine if you are malnourished.

Guest Norah022
Guest Norah022
Posted

I have been trying to get in contact with my doctor back home, I am at school right now, to find out what they tested when they tested me for celiac's in may but i have been playing phone tag with him.

I am hoping when I go in to Health Services tomorrow and they see that I look like crap they will do the test on their own.

Guest Norah022
Guest Norah022
Posted
Get your Vitamin A and D levels checked. Most Celiac's are deficient in fat soluble vitamins...A, D, E, K.

Can they do that with just a simple blood test?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Norah022
Guest Norah022
Posted

Talked to my doctor at home this morning YEAH!

He said my blood was testing 2 weeks ago and everything was perfect.

He believes I am having these symptoms because of my protein and calcium issues (I dont' get a lot of them) and also says this could be a sign that I was glutened so looks like not only does my stomach get upset but i get weak and lightheaded

lindalee Enthusiast
lindalee
Posted
I would say you should totally get tested. And you can be malnourished while not being underweight. My doctor told me after seeing my low protein levels in my blood and iron deficiency he determined malnourishment. I am also overweight, have been forever. As has been for as long as I could remember losing 20lbs. would finally get me into the normal weight range for my height. Maybe one of these days I can say I am actually healthy (nourished, feeling great, and a "normal" weight).

Definitely get your blood tested. Supposedly the usual test for Celiac Sprue should include a test for iron levels and other things like your protein levels to deterine if you are malnourished.

It is my understanding that if your calcium levels or intake is low you will not lose weight.

mle-ii Explorer
mle-ii
Posted

Probably more information than most want to know, but I found this particular web page to have a ton of info. Though I will admit I haven't gone through it all yet.

Open Original Shared Link

Mike

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748
    Lostcha
    Newest Member
    Lostcha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.