Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Trouble Eating Out


Guest dreams25

Recommended Posts

Guest dreams25

I was diagnosed celiac disease in August, and am fine at home but still struggling with eating out, can anyone give me some hints..

As no one treats it serious.. been out twice both times meal was glutened ..

So help..... :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

I'm a big advocate of continuing to eat out and enjoy this aspect of life, however given how recently you were diagnosed, you might want to give yourself a couple months to heal and really learn about the restrictions.

I successfully eat out pretty often and I find the keys are:

1) always be very nice (very important)

2) don't be afraid to speak up. Let them know your restrictions

3) Let your server know why you are ordering the way you are, but in laymens terms. A lot of people don't know what celiac is, and even less people are going to understand what you mean if you say you have a wheat and gluten intolerance. But I find it very effective to say, "I'm really sorry to be a pain, but I'm allergic to anything with wheat or gluten in it, so if you can just make sure they are really careful I'd greatly appreciate it."

I find if you acknowledge that you are asking for them to go above and beyond makes them take the opposite mindset of that's it's no big deal to help you out and they don't want to see you get sick.

Also you may want to order a set of these dining cards. I only used them once but found them to be very effective.

Open Original Shared Link

Guest dreams25

Thanks for that... the cards are a good idea but as i live in Australia.. wouldnt be any good, maybe they have something like that here, will have to investigate ...

Just takes time i guess to get used to all this.. but will get there.. looking forward to feeling better thats for sure.

2wheels4eyes Explorer
...

3) Let your server know why you are ordering the way you are, but in laymens terms. A lot of people don't know what celiac is, and even less people are going to understand what you mean if you say you have a wheat and gluten intolerance. But I find it very effective to say, "I'm really sorry to be a pain, but I'm allergic to anything with wheat or gluten in it, so if you can just make sure they are really careful I'd greatly appreciate it."

I'm very newly gluten-free myself, and have only eaten out a few times yet (and survived the Minnesota State Fair!) But I'm already finding with friends and restaurant staff alike, that calling it a kind of wheat/grain "allergy" simply isn't doing the trick. People listen a lot more carefully and seem to take it more seriously when I say it's a disease, or an autoimmune disease. I.e., friends who a month ago saw me chowing down on waffles and panini are no longer asking why I can't just 'have a little", etc. I could be wrong, but I think restaurant staff are also more careful when they realize it's a big deal. (You probably could go overboard here and make it *too* big of a deal, in which case you might not get served at all because of liability fears. It's a fine line I guess.)

Have other people found this to be the case? Or is going the "allergy" (rather than "disease") route generally considered a more effective way to convey the gist of gluten-free to a general audience?

Carriefaith Enthusiast

You may be better off staying away from restaurants until you heal beacuse of the high risk of cross contamination. The average time for individuals to feel better on the gluten-free diet from polls on this board seems to be about 3-4 months.

Guest cassidy

Eating out can be very tough. I have found that when I'm in situations that I have to eat out with other people the restaurants don't mind if I bring my own food. I always ask and no one has minded. At first I felt funny, but I won't let myself feel pressured to eat out if I don't want to.

When I do eat out here is what I have found to be successful:

- I only eat in restaurants with chefs. Upscale restaurants where everything is made there - not places like Chilis or Applebees where things may be pre-marinaded.

- I ask the chef to come to the table. I ask if they can prepare gluten-free food. If so, how do they do it. I always say "as you know" it is very important that my food be prepared in a clean dish with clean utensils since a crumb will have me sick for days. Sometimes they say they didn't realize that they had to be that careful. I stress how much I'm trusting them and ask them to do their best.

- I usually order plain meat - chicken, fish, steak and steamed veggies. I've started asking for 1/2 the veggies when everyone else gets their appetizer or salad - this way I don't starve. I don't get a salad because they get me sick every time. I think kitchens think that nothing in a salad has gluten so they don't have to make a special one.

I stay away from gluten-free menus with sauces because I feel that there are too many ingredients and chances for cc. I tried the gluten-free menu at Bonefish and just ordered through the server and I got very sick.

nikki-uk Enthusiast
Thanks for that... the cards are a good idea but as i live in Australia.. wouldnt be any good, maybe they have something like that here, will have to investigate ...

Here's a link to some cards you can print off and laminate..

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Corkdarrr Enthusiast

I have been working in the hospitality industry for many years, and I wouldn't trust talking to just the server. And in most restaurants it is difficult to pry the chef from the kitchen, if only because they are busy running the line. (But also because chef's are rather cranky by nature.) So from the restaurant's point of view, PLEASE don't come in on a busy Friday or Saturday nite and start throwing all these restrictions at us. Because we will fail and you will get sick.

My advice would be to come in on a Tuesday or something, and to come in early before the rush has started. Ask to speak to the manager on duty about your restrictions, or the chef if he's available. And be polite - I like both Cassidy's "as you know" talk with the chef, and jkmunchkin's "i'm sorry to be a pain" talk.

Find one or two restaurants in your area that you like and that you visit regularly enough that the management and/or waitstaff knows who you are, and the chef's are familiar with your restrictions. And make sure to leave an above-average tip! You don't want people to fight over who gets stuck with you when they see you coming in the door. And it probably also leads to a better likelihood that something will be cross-contaminated.

I would also defiantely stay away from salads. Especially if it's just a tossed side salad, as most of these are made beforehand with croutons flying wildly about the salad station.

As a newly diagnosed Celiac with only two months under my belt, there are only two restaurants I will eat at. And I know the owners at both of them. The one other time I ate out (at the restaurant I worked at for three years, no less!) I got sick as a dog. Granted, i knew the probability was good. And I REFUSED to throw up my thirty dollar steak. And I didn't. But it still really, really, really sucked.

-Courtney

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Ginger38's topic in Related Issues & Disorders
      23

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      33

      Severe severe mouth pain

    3. - Bogger replied to Bogger's topic in Related Issues & Disorders
      2

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

    4. - trents replied to Charlie1946's topic in Related Issues & Disorders
      33

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,083
    • Most Online (within 30 mins)
      7,748

    AASpahic
    Newest Member
    AASpahic
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Ginger38,  Are you taking a B Complex vitamin?  Vitamin D?  Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine.  
    • knitty kitty
      There's simple dietary changes that can be done to improve Barrett's esophagus.  There are vitamins that improve Barrett's esophagus --- most of the B vitamins! Reducing sugary foods and drinks will help.  A diet high in simple carbohydrates can deplete Thiamine and other B vitamins needed to process them into energy. Eating green leafy vegetables helps.  Green leafy vegetables are high in Folate and Riboflavin.       Dietary sugar and Barrett’s esophagus https://pmc.ncbi.nlm.nih.gov/articles/PMC5725502/#:~:text=The major finding of the,and sugar consumption [13].     Dietary intake of vegetables, folate, and antioxidants and the risk of Barrett's esophagus https://pubmed.ncbi.nlm.nih.gov/23420329/    Intakes of dietary folate and other B vitamins are associated with risks of esophageal adenocarcinoma, Barrett's esophagus, and reflux esophagitis https://pubmed.ncbi.nlm.nih.gov/24132576/    Associations between dietary folate intake and risks of esophageal, gastric and pancreatic cancers: an overall and dose-response meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC5689728/     Dietary vitamin B intake and the risk of esophageal cancer: a meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6225909/#:~:text=A statistically significant%2C inverse association,an increased risk of EC.    Intake of Dietary One-Carbon Metabolism-Related B Vitamins and the Risk of Esophageal Cancer: A Dose-Response Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6073467/    Dietary riboflavin deficiency induces ariboflavinosis and esophageal epithelial atrophy in association with modification of gut microbiota in rats https://pubmed.ncbi.nlm.nih.gov/32458157/    Association of Vitamin D and Parathyroid Hormone With Barrett's Esophagus (parathyroid needs Pyridoxine B6) https://pubmed.ncbi.nlm.nih.gov/30180151/   "let food be your medicine, let medicine be your food. "
    • Bogger
      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my doctor recommends it first over Reclast. Reclast is introduced into a vein thus bypassing the stomach which avoids all those stomach issues. But, once it’s in me, it’s there for a year or so. Any complications can’t be undone. With Reclast, I’m concerned about not being able to treat dental issues, several weeks of bone pain and the chance, although rare, of kidney damage. Plus all those other dozens of common side effects. It’s a very effective drug but looks pretty complicated to deal with. Hopefully I’m not just being a big chicken. In 2018 I fell and broke my ankle in two places. It took three screws to put it back together which is normal for that surgery. There was no mention of any difficulty or signs of bone loss. Thanks to my dog, I fell about a month ago onto a concrete floor with thin carpet. I landed on my left hip, then my spine, one vertebrae at a time, then clunked my head on the door frame. Twisted my wrist too. It was all in slow motion waiting to feel a crack that didn’t happen. Went to the ER tho. Amazingly, I didn’t even see any bruises. Thanks again for that link. I need to read through it some more. My doctor’s appt is next week when I’ll make the big decision.   
    • trents
      But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary. 
    • Caligirl57
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.