Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Trouble Eating Out


Guest dreams25

Recommended Posts

Guest dreams25

I was diagnosed celiac disease in August, and am fine at home but still struggling with eating out, can anyone give me some hints..

As no one treats it serious.. been out twice both times meal was glutened ..

So help..... :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

I'm a big advocate of continuing to eat out and enjoy this aspect of life, however given how recently you were diagnosed, you might want to give yourself a couple months to heal and really learn about the restrictions.

I successfully eat out pretty often and I find the keys are:

1) always be very nice (very important)

2) don't be afraid to speak up. Let them know your restrictions

3) Let your server know why you are ordering the way you are, but in laymens terms. A lot of people don't know what celiac is, and even less people are going to understand what you mean if you say you have a wheat and gluten intolerance. But I find it very effective to say, "I'm really sorry to be a pain, but I'm allergic to anything with wheat or gluten in it, so if you can just make sure they are really careful I'd greatly appreciate it."

I find if you acknowledge that you are asking for them to go above and beyond makes them take the opposite mindset of that's it's no big deal to help you out and they don't want to see you get sick.

Also you may want to order a set of these dining cards. I only used them once but found them to be very effective.

Open Original Shared Link

Guest dreams25

Thanks for that... the cards are a good idea but as i live in Australia.. wouldnt be any good, maybe they have something like that here, will have to investigate ...

Just takes time i guess to get used to all this.. but will get there.. looking forward to feeling better thats for sure.

2wheels4eyes Explorer
...

3) Let your server know why you are ordering the way you are, but in laymens terms. A lot of people don't know what celiac is, and even less people are going to understand what you mean if you say you have a wheat and gluten intolerance. But I find it very effective to say, "I'm really sorry to be a pain, but I'm allergic to anything with wheat or gluten in it, so if you can just make sure they are really careful I'd greatly appreciate it."

I'm very newly gluten-free myself, and have only eaten out a few times yet (and survived the Minnesota State Fair!) But I'm already finding with friends and restaurant staff alike, that calling it a kind of wheat/grain "allergy" simply isn't doing the trick. People listen a lot more carefully and seem to take it more seriously when I say it's a disease, or an autoimmune disease. I.e., friends who a month ago saw me chowing down on waffles and panini are no longer asking why I can't just 'have a little", etc. I could be wrong, but I think restaurant staff are also more careful when they realize it's a big deal. (You probably could go overboard here and make it *too* big of a deal, in which case you might not get served at all because of liability fears. It's a fine line I guess.)

Have other people found this to be the case? Or is going the "allergy" (rather than "disease") route generally considered a more effective way to convey the gist of gluten-free to a general audience?

Carriefaith Enthusiast

You may be better off staying away from restaurants until you heal beacuse of the high risk of cross contamination. The average time for individuals to feel better on the gluten-free diet from polls on this board seems to be about 3-4 months.

Guest cassidy

Eating out can be very tough. I have found that when I'm in situations that I have to eat out with other people the restaurants don't mind if I bring my own food. I always ask and no one has minded. At first I felt funny, but I won't let myself feel pressured to eat out if I don't want to.

When I do eat out here is what I have found to be successful:

- I only eat in restaurants with chefs. Upscale restaurants where everything is made there - not places like Chilis or Applebees where things may be pre-marinaded.

- I ask the chef to come to the table. I ask if they can prepare gluten-free food. If so, how do they do it. I always say "as you know" it is very important that my food be prepared in a clean dish with clean utensils since a crumb will have me sick for days. Sometimes they say they didn't realize that they had to be that careful. I stress how much I'm trusting them and ask them to do their best.

- I usually order plain meat - chicken, fish, steak and steamed veggies. I've started asking for 1/2 the veggies when everyone else gets their appetizer or salad - this way I don't starve. I don't get a salad because they get me sick every time. I think kitchens think that nothing in a salad has gluten so they don't have to make a special one.

I stay away from gluten-free menus with sauces because I feel that there are too many ingredients and chances for cc. I tried the gluten-free menu at Bonefish and just ordered through the server and I got very sick.

nikki-uk Enthusiast
Thanks for that... the cards are a good idea but as i live in Australia.. wouldnt be any good, maybe they have something like that here, will have to investigate ...

Here's a link to some cards you can print off and laminate..

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Corkdarrr Enthusiast

I have been working in the hospitality industry for many years, and I wouldn't trust talking to just the server. And in most restaurants it is difficult to pry the chef from the kitchen, if only because they are busy running the line. (But also because chef's are rather cranky by nature.) So from the restaurant's point of view, PLEASE don't come in on a busy Friday or Saturday nite and start throwing all these restrictions at us. Because we will fail and you will get sick.

My advice would be to come in on a Tuesday or something, and to come in early before the rush has started. Ask to speak to the manager on duty about your restrictions, or the chef if he's available. And be polite - I like both Cassidy's "as you know" talk with the chef, and jkmunchkin's "i'm sorry to be a pain" talk.

Find one or two restaurants in your area that you like and that you visit regularly enough that the management and/or waitstaff knows who you are, and the chef's are familiar with your restrictions. And make sure to leave an above-average tip! You don't want people to fight over who gets stuck with you when they see you coming in the door. And it probably also leads to a better likelihood that something will be cross-contaminated.

I would also defiantely stay away from salads. Especially if it's just a tossed side salad, as most of these are made beforehand with croutons flying wildly about the salad station.

As a newly diagnosed Celiac with only two months under my belt, there are only two restaurants I will eat at. And I know the owners at both of them. The one other time I ate out (at the restaurant I worked at for three years, no less!) I got sick as a dog. Granted, i knew the probability was good. And I REFUSED to throw up my thirty dollar steak. And I didn't. But it still really, really, really sucked.

-Courtney

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.