Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results Soooonnnn

num1habsfan

By num1habsfan
in Related Issues & Disorders

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

Well, just to remind everyone: Sept. 14th at 4:40 pm is when I get my colonoscopy/barium xrays results!!! :blink: I was ok with it before and calm, but as Thursday approaches closer and closer.....I'm really kinda starting to freak out now. I know I shouldnt, but I'm so scared that its going to show nothing, and I'm trying to think of what I'll ask to have done if they tests show nothing (like ask to be referred out of province, etc).....

And it dont help that I dont really have anyone to talk....my closest guy friend cant talk during the day because he starts work usually by 7 am, and we cant talk at night because when you take in the 1 hr time difference, and by the time I come home from school, hes already sleeping!! And hes the one who ALWAYS makes me strong....

I thought I could turn to another one of my guy friends, but it sure doesnt seem that way, hes been a bit odd lately-including the fact that when he lived in another province he gave me his phone # without me even asking for it, but last night when I asked for his # here in SK he refused to give me it :blink:

So I dont know ... HELP :P

~Lisa~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PaulaG Newbie
PaulaG
Posted
Well, just to remind everyone: Sept. 14th at 4:40 pm is when I get my colonoscopy/barium xrays results!!! :blink: I was ok with it before and calm, but as Thursday approaches closer and closer.....I'm really kinda starting to freak out now. I know I shouldnt, but I'm so scared that its going to show nothing, and I'm trying to think of what I'll ask to have done if they tests show nothing (like ask to be referred out of province, etc).....

And it dont help that I dont really have anyone to talk....my closest guy friend cant talk during the day because he starts work usually by 7 am, and we cant talk at night because when you take in the 1 hr time difference, and by the time I come home from school, hes already sleeping!! And hes the one who ALWAYS makes me strong....

I thought I could turn to another one of my guy friends, but it sure doesnt seem that way, hes been a bit odd lately-including the fact that when he lived in another province he gave me his phone # without me even asking for it, but last night when I asked for his # here in SK he refused to give me it :blink:

So I dont know ... HELP :P

~Lisa~

Hi Lisa,

I am a very new member, so just wondering a bit more about your history?? Why did they do a Colonoscopy ?? Is your Doctor looking for something in particular??

The reason I ask, is that I just had one done, last Wedneday, and when I woke up from the surgery (had to be put to sleep, i was too uncomfortable to be awake) but the nurse told me that it was most likely Celiac Disease and blood tests were ordered??? I didnt think that a colonoscopy showed Celiac disease, so I think it may have something else, but hey I am no doctor so what do i know.

I look forward to chatting with you further, I am very worried about all my testing lately as well, so we can be worried together!! :)

Nantzie Collaborator
Nantzie
Posted

Yea, a guy who will give you one number, but won't give you another number has something to hide, either from you or someone else. File him as an aquaintance.

I hope your appt gives you some answers.

Nancy

jerseyangel Proficient
jerseyangel
Posted

Hi Lisa

I sure hope that your tests will finally give you some concrete answers--I know it's been a "long haul" for you!

Sorry about your friends--although it's not quite the same, you know you always have us here to talk to. You can PM me anytime! :)

trents Grand Master
trents
Posted

Lisa,

A recap about what has led up to this and what you've been struggling with healthwise would be helpful so we get a better idea what is prompting this clonoscopy appointment. I vaguely remember your earlier post(s) but we read a lot of posts and we need a little refresher.

I assume you are having some GI distress. If you are being tested for Celiac disease please know that a colonoscopy will not be helpful. A colonoscopy gives the doctor a look at the colon, i.e., the last part of your intestinal track. What needs to be done for dx Celiac disease is an endoscopy, a scoping of the upper part of the intestinal track, which is the part the disease does damange to. Have you had the antigliadin blood tests done yet? That is usuall the starting point in Celiac dx.

I have had both procedures done at one time or another. They were not painful.

Steve

num1habsfan Rising Star
num1habsfan
Posted
  • Author

PaulaG and trents...I will refresh your memory ;)

I've been in severe constant pains since January 28th of this year(yes, the pains have continued from that day, never faded), even eating 100% strict gluten-free gives me pains. they've seemed to ruled out any other options, so I got in for an emergancy colonoscopy / barium x-rays, because my family doctor and the doc who took the scope/x-rays suspect I have Crohn's disease (not just Celiac)..

Nancy/Patti--yeah the guy issue just sucks..I thought he was a good friend, and it would be nice to have more than 1 potential boyfriend, but I guess thats just not possible for me! I've already text messaged the other one about how I've been feeling, hopefully reply, I'll let you know if he does :P

~lisa~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

OK, I officially cant concentrate in school or on school because of this...I know I'm not supposed to worry but I CANT HELP IT!

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

Hope you're sleeping and not wide awake because of your appt tomorrow. I'm crossing my fingers that they found some answers for you.

Cute picture! I need to get one up one of these days too. With the kids, I'm the one usually taking the pictures and rarely in them. It really is nice putting a face to a name.

Nancy

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Hope you're sleeping and not wide awake because of your appt tomorrow. I'm crossing my fingers that they found some answers for you.

Cute picture! I need to get one up one of these days too. With the kids, I'm the one usually taking the pictures and rarely in them. It really is nice putting a face to a name.

Nancy

Thanks, to both things..I'm not sleeping yet because I'm still doing some homework lol .. but I know when I DO try to go to bed, it wont be easy :blink: I've really been 'out of it' today, even during classes (thank god I left early to get to town, would have never survived til 10 lol)

I promise as soon as I get home from my appointment I will post!

~lisa~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

No, I didnt get results yet but.... 2 1/2 hourssssss til I do :blink:

~lisa~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Well, I ended up spending 2 hours between the the doctors office and the hospital...

The test showed just what I suspected...a big ******* nothing...The doctor in Yorkton (who took the tests)doesnt know what it can be, he suspects some sort of infection...my family doctor is completely clueless, himself...He says its all up to the specialist in Regina now, to suggest what I do...I mentioned about being sent to Calgary if the specialist in Regina cant figure it out, and even my family doctor nodded his head... :(

Then my family doc was nice enough to drive me to the hospital and called one of the ladies from the lab to come and give things for me to take stool samples again (to see if that infection is there or not)...Once I collect enough samples (which will take 6 days at the shortest), then I have to take a prescription of Cipro and Flagyl...

All I feel like doing right now is crawling into a corner and just crying...I know that probably sounds retarded, but this is hard for me to take...The worst part is that I dont even have a friend to come and give me a hug (the nearest lives 2 hours away) :(

I'm really hating life right now...

Time to go attempt some homework, even tho I dont feel like doing it AT ALL, but I am positive my teachers wont accept any of this as an excuse tomorrow when its not done... :wacko:

~lisa~

Nantzie Collaborator
Nantzie
Posted

Oh Lisa... I'm so sorry. It doesn't sound retarded at all. You just need some answers. It doesn't even matter what the answer is I'm sure. You've been going through a lot this year and you've got to be exhausted of everything.

Hopefully the Cipro and Flagyl will help. I've heard that those can be pretty strong on your system, so don't be surprised if you don't feel so great with those. But if you've got an infection somewhere, that will take care of it.

{{{{HUGS}}}}}

Nancy

TCA Contributor
TCA
Posted

Can you have the results sent to a well know celiac specialist to see if they have a clue? Hugs!!!!

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Oh Lisa... I'm so sorry. It doesn't sound retarded at all. You just need some answers. It doesn't even matter what the answer is I'm sure. You've been going through a lot this year and you've got to be exhausted of everything.

Hopefully the Cipro and Flagyl will help. I've heard that those can be pretty strong on your system, so don't be surprised if you don't feel so great with those. But if you've got an infection somewhere, that will take care of it.

{{{{HUGS}}}}}

Nancy

Well, I've been on the Cipro before, 2 or 3 times this year, obviously that didnt do the job, so it cant be a stupid infection like they say ... the worst part of all is I didnt hear from my close friend :(

~lisa~

mouse Enthusiast
mouse
Posted

Lisa, I am so sorry. I can only imagine how hard this is on you, to be going through this alone. But, I can understand that you would want an answer now and any answer will be fine. Then you can cope with it and move forward. Please keep posting here as we will certainly try and give you all the support and caring thoughts that we can. Many Hugs!!!

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Lisa, I am so sorry. I can only imagine how hard this is on you, to be going through this alone. But, I can understand that you would want an answer now and any answer will be fine. Then you can cope with it and move forward. Please keep posting here as we will certainly try and give you all the support and caring thoughts that we can. Many Hugs!!!

Yes, I would take any answer, I dont care how bad it is even. ANYTHING.

Wish you could give me a real hug :P

I know you guys support me, and I love you all sooo much for that, wish I could get more support from the people I personally know, tho!

This will be fun trying to explain to my teachers tomorrow (without breaking into tears)...

~lisa~

debmidge Rising Star
debmidge
Posted

sorry to hear about your frustration with the medical test results and the infection....

Don't stress yourself over this..it'll make you sicker. Stay calm, take the anti biotic and anti viral meds (try to take probiotics too).

I know it's hard to accept "what is" and "what can and cannot be changed." That's my husband's situation too.

Take lots of care,

Deb

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,006
    • Most Online (within 30 mins)
      7,748
    Peg55
    Newest Member
    Peg55
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Celiac getting dentures

      By captaincrab55 · Posted

      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.