Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rise In Celiacs Or More Awareness?


up-late

Recommended Posts

up-late Rookie

Is there anything out there on what causes Celiacs or why it is becoming so common? Is it possible it's been around for a long time and we just didn't know what it was?

My uncle on my dads side died as a child from "disentry" (my dad is the genetic link with celiacs) could he have had it and they just didn't know?

I found a site recently that said celiacs was one of the undesclosed side effects of new medications taken for depression and athritis, the site was a legal one starting class action against the pharm company who manufactured them, I have taken almost all the ones the stated as causing it as well as manifesting other side effects mentioned on the site. Could it be the excessive perscription culture, negligent pharm companies or GM, pesticides and overprocessing of our food coupled with profit driven companies that is responsible or has it been around longer and we just did not know about it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast
Is it possible it's been around for a long time and we just didn't know what it was?

ABSOLUTELY!!!!!

Heck, some doctors STILL don't know what it is. Once they "get a clue" and start learning how to recognise and diagnose, more people will be able to get a diagnosis and save themselves years of problems!

Guest nini

It's been around for a long time, it's still unbelievably undiagnosed and misdiagnosed entirely too often.

sure the other factors may serve to either trigger the onset or aggravate symtoms but I doubt seriously that any of the factors you mentioned could CAUSE celiac.

AndreaB Contributor

If you read any of Dogtor J's stuff, he has done a lot of research and says that dysentry is really celiac. It poses the same symptoms. His site is Open Original Shared Link. I believe the article is "The Answer". It is very long but the part about dysentry is within the first 12 pages I believe of the part of the article called "Why is the Plane of our Health in a Death Spiral?".

Very interesting reading as you have time. I'm only about 1/2 way through that big article so far. :P

gfp Enthusiast

I think its a whole combination, simply by saying its very very rare stopped diagnosis of many...

Also because of the way foods are manufactured today its impossible to miss it out.

When I lived in Africa I was mostly gluten-free because 99% of what I ate was fresh fruit, meat and veg so I only got gluten in large doses... so if you stop eating bread and pasta for a week in an environment like that you notice wheras if you try gluten free in the West today ytou are not gluten-free because of all the hidden gluten so this makes it even more evasive. This is not even including pharmacuticals containing gluten !!

Saz Explorer

Hey there.

There does seem to be many more people with allergies. I don't think that all people who don't eat wheat are celiac though. I have heard of people who while they don't have anything diagnosed, say that they just don't feel "right" if they eat a lot of bread etc.

In regards to "triggers. " My understanding is that if you are 20 and are diagnosed as celiac, you have had it all of your life, the symptoms just may not have shown up before now.

I would be interested to know what exactely causes it in the first place, there is no history of it in family.

up-late Rookie

The Dogtorj article made a lot of sense, just skimming through it I noticed the exact things I was thinking about, it just made sense.

I've been worried about what the big companies have been doing to our food for some time. My grandmother couldn't buy seed that would regenerate with the next crop. A family friend had an orchard and Coles told him what to grow, he had to graft their (Monsanto had a hand in this) strains into his crops or they wouldn't buy them, he could not guarantee his crops would not be cross pollinated tainting both his organic crop and their bogus crop, then they used a propoganda campaign to claim the new strains were the only ones suitable for commercial comsumption, imagine that centuries of hortoculture wiped away in one foul sweep by a multi national, of course their product is nutritionally inferior and tastes like it's been sitting in the back of my feezer for 10 years but hey it has a higher yeild. The farmers here are still at war with the compaines who want to introduce GM canola siteing that even if they don't grow it cross contamination from GM crops in the area will destroy their crop, the companies have even come under suspicion for releasing GM crop and growing it under the disguse of the real thing in order to do just that. It's a serious problem, what happens if all our natural crops end up being wiped out and then we have no choice but to eat food that will harm us?

With the tastelss food, packaging and processing I wonder how like it will be before we are mimicking bad 70's sci-fi popping steak and three veg pills instead of eating real food.

I'm getting off topic here :wacko: but I wonder if they can get away with doing that, what else has slipped by.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
The Dogtorj article made a lot of sense, just skimming through it I noticed the exact things I was thinking about, it just made sense.

I've been worried about what the big companies have been doing to our food for some time. My grandmother couldn't buy seed that would regenerate with the next crop. A family friend had an orchard and Coles told him what to grow, he had to graft their (Monsanto had a hand in this) strains into his crops or they wouldn't buy them, he could not guarantee his crops would not be cross pollinated tainting both his organic crop and their bogus crop, then they used a propoganda campaign to claim the new strains were the only ones suitable for commercial comsumption, imagine that centuries of hortoculture wiped away in one foul sweep by a multi national, of course their product is nutritionally inferior and tastes like it's been sitting in the back of my feezer for 10 years but hey it has a higher yeild. The farmers here are still at war with the compaines who want to introduce GM canola siteing that even if they don't grow it cross contamination from GM crops in the area will destroy their crop, the companies have even come under suspicion for releasing GM crop and growing it under the disguse of the real thing in order to do just that. It's a serious problem, what happens if all our natural crops end up being wiped out and then we have no choice but to eat food that will harm us?

With the tastelss food, packaging and processing I wonder how like it will be before we are mimicking bad 70's sci-fi popping steak and three veg pills instead of eating real food.

I'm getting off topic here :wacko: but I wonder if they can get away with doing that, what else has slipped by.

I think its pretty much endemic and pervasive to the point that most people never read a label, let alone wonder what they are eating.

Before diagnosis I was firmly in the "a few additives can't hurt" camp. Just having to read labels made me aware just how much additives are in food but it goes way beyond this. Food has become a battle to sell the lowest quality products cheaper than anyone else. Its over abundance in Europe/US has stopped us appreciating it as a 'luxury' item and reduced it to for many people an inconvenience.

I recently posted that most "fresh" fruit is kept in biologically sterile cold stores and sprayed with many things (including candida) just to keep it in a place it can be distributed in the most efficient way but this isn't isolated, the whole food industry is based on putting things in tins and packets and adding chemical preservatives because it saves cents on distribution over fresh produce.

par18 Apprentice
Is there anything out there on what causes Celiacs or why it is becoming so common? Is it possible it's been around for a long time and we just didn't know what it was?

My uncle on my dads side died as a child from "disentry" (my dad is the genetic link with celiacs) could he have had it and they just didn't know?

I found a site recently that said celiacs was one of the undesclosed side effects of new medications taken for depression and athritis, the site was a legal one starting class action against the pharm company who manufactured them, I have taken almost all the ones the stated as causing it as well as manifesting other side effects mentioned on the site. Could it be the excessive perscription culture, negligent pharm companies or GM, pesticides and overprocessing of our food coupled with profit driven companies that is responsible or has it been around longer and we just did not know about it?

I think Celiac has probably been around as long as gluten. There is more awareness now but not as much as should be. The fact that so many people take prescription drugs for just about everything make it difficult to determine just how many people may be affected. It appears a large segment of the population either cannot or will not cook meals at home so that would make it difficult to determine which food items individual persons cannot tolerate. What I would like to see is some type of facility that a person could go to for a brief stay and just have the diet altered to find out if health issues were related to what someone is eating. Most of the diet type places I have heard of are only for persons to lose weight. This could be some type of "diet elimination" center in which diet is the "only" treatment. Probably could not get an endorsement from the drug companies or fast food industry though. Would only need a doctor onsite in case someone has an allergic reaction to a food. There would not be any more risk than if someone ate something at home they did not know affected them and had to go to the ER. Might also be a lot cheaper than having to go somewhere like the Mayo Clinic to find out the same thing. Then places like the Mayo Clinic could be used for people who really needed it. Just a thought.

Tom

marciab Enthusiast
What I would like to see is some type of facility that a person could go to for a brief stay and just have the diet altered to find out if health issues were related to what someone is eating. Most of the diet type places I have heard of are only for persons to lose weight. This could be some type of "diet elimination" center in which diet is the "only" treatment. Probably could not get an endorsement from the drug companies or fast food industry though. Would only need a doctor onsite in case someone has an allergic reaction to a food. There would not be any more risk than if someone ate something at home they did not know affected them and had to go to the ER. Might also be a lot cheaper than having to go somewhere like the Mayo Clinic to find out the same thing. Then places like the Mayo Clinic could be used for people who really needed it. Just a thought.

Tom

I was thinking the same thing. I would love to be able to do this for those who are too sick to try this on their own. Think we can get the NIH to sponsor it ?? ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.