Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can My Gi Dr. Be Wrong?


EddieJP125

Recommended Posts

EddieJP125 Explorer
:unsure: hey everybody...i've been cheatin with the gluten-free diet here and there...And i feel fine...except for bloating?...can my dr. be wrong about the bloodwork, and biopsy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Eddie,

You're probably just a celiac without a lot of symptoms -- bloating, plus bloodwork, plus a biopsy would mean you surely have it, I would think. Some celiacs have no symptoms; you have very mild ones.

joemoe003 Apprentice

im like that to...i cheat and i feel fine (i havent been dxed by the doc but im pretty sure i have celiac disease) but remember you may not have symptoms but you are still hurting your self on the inside. jus be strong and try not to cheat!

Boojca Apprentice

Sorry Eddie, but the other two here are right. Some people go their entire lives with no symptoms at all. My son has no "GI symptoms"...none of the diarrhea, bloating, etc..., he just suddenly lost a lot of weight and was very lethargic. He's been gluten-free just over a month now, and he's already gained 5 lbs back!

Anyway, if your blood work said you have celiac disease, you have celiac disease. You are just among the "lucky" ones that don't feel it when you cheat. I say lucky bc I wonder about that sometimes. It would be great for those who DO get those symptoms to be able to flub, or have someone else flub, and not have to pay for it for hours/days/weeks after. But, on the other hand, those who do not have any of those "consequences" tend to think it ain't no big deal and "cheat" and cheat often...and do some serious damage to their insides.

But, as I've said to others before, it's all up to you to decide how strict you are going to be. Just remember, though, you can develop "new" symptoms at any time. So that gluten-filled food you eat could be your immediate ticket to the "montazuma's revenge 5K" to the bathroom!!!

Welcome to the boards!

Bridget

dana-g Newbie

My 11-year-old daughter was biopsied only because I was dx'd with celiac disease. She had NO symptoms, elevated bloodwork. Her gut, however, was a mess. Think I should let her eat gluten? Didn't think so! Stick with the doctor's advice--how lucky you are to have a doctor who actually dx'd you in the first place!

Dana

flagbabyds Collaborator

You're probalby just A-Symoptommatic

lovegrov Collaborator

As others said, if your bloodwork and biopsy were positive, you absolutely have celiac. Mine were all highly positive and I was so ill I was near death, yet when I make mistakes now (I've never cheated on purpose) I don't react.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kvogt Rookie

I doubt your lab made an error, but it is remotely possible. If you are concerned, repeat the blood work. If your gut doesn't play up too much, you may be working on some other autoimmunde disease in your future, like lupus, rheumatoid arthritis, asthema, or something else equally difficult. Look at your parents, grandparents and their cousins and see what your heritage tends towards. Some of the possibilities of untreated celiac disease are fatal, so I would recommend anyone who is cheating to get serious.

EddieJP125 Explorer

my grandfather never drank..but died of Liver Cancer when my mother was a teen...but they were from a Korean Ethnic back ground...i know it is rare in the Asians to have celiac disease...but i'm an American born and raised...she doesn't like to talk about it...i'll ask my dr. again for a second bloodwork, and i have been goin through meds for my hernia, hemmroids, and stomach ulcers...which probably is from havin celiac disease, right?....

but i'm done cheating now, b/c i was in sooooo much pain, to the point i was goin to call 911, so i'm done with cheating... :)

itz funny that i would have to call 911 to request medical support when i'm an EMT myself :D

flagbabyds Collaborator

Well if you were in so much pain when you were cheating then you know you have it! Why would you get re-tested?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    2. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    4. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748

    Julia Duffee
    Newest Member
    Julia Duffee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.