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Can My Gi Dr. Be Wrong?

EddieJP125

By EddieJP125
in Doctors

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EddieJP125 Explorer
EddieJP125
Posted
:unsure: hey everybody...i've been cheatin with the gluten-free diet here and there...And i feel fine...except for bloating?...can my dr. be wrong about the bloodwork, and biopsy?
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celiac3270 Collaborator
celiac3270
Posted

Eddie,

You're probably just a celiac without a lot of symptoms -- bloating, plus bloodwork, plus a biopsy would mean you surely have it, I would think. Some celiacs have no symptoms; you have very mild ones.

joemoe003 Apprentice
joemoe003
Posted

im like that to...i cheat and i feel fine (i havent been dxed by the doc but im pretty sure i have celiac disease) but remember you may not have symptoms but you are still hurting your self on the inside. jus be strong and try not to cheat!

Boojca Apprentice
Boojca
Posted

Sorry Eddie, but the other two here are right. Some people go their entire lives with no symptoms at all. My son has no "GI symptoms"...none of the diarrhea, bloating, etc..., he just suddenly lost a lot of weight and was very lethargic. He's been gluten-free just over a month now, and he's already gained 5 lbs back!

Anyway, if your blood work said you have celiac disease, you have celiac disease. You are just among the "lucky" ones that don't feel it when you cheat. I say lucky bc I wonder about that sometimes. It would be great for those who DO get those symptoms to be able to flub, or have someone else flub, and not have to pay for it for hours/days/weeks after. But, on the other hand, those who do not have any of those "consequences" tend to think it ain't no big deal and "cheat" and cheat often...and do some serious damage to their insides.

But, as I've said to others before, it's all up to you to decide how strict you are going to be. Just remember, though, you can develop "new" symptoms at any time. So that gluten-filled food you eat could be your immediate ticket to the "montazuma's revenge 5K" to the bathroom!!!

Welcome to the boards!

Bridget

dana-g Newbie
dana-g
Posted

My 11-year-old daughter was biopsied only because I was dx'd with celiac disease. She had NO symptoms, elevated bloodwork. Her gut, however, was a mess. Think I should let her eat gluten? Didn't think so! Stick with the doctor's advice--how lucky you are to have a doctor who actually dx'd you in the first place!

Dana

flagbabyds Collaborator
flagbabyds
Posted

You're probalby just A-Symoptommatic

lovegrov Collaborator
lovegrov
Posted

As others said, if your bloodwork and biopsy were positive, you absolutely have celiac. Mine were all highly positive and I was so ill I was near death, yet when I make mistakes now (I've never cheated on purpose) I don't react.

richard

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kvogt Rookie
kvogt
Posted

I doubt your lab made an error, but it is remotely possible. If you are concerned, repeat the blood work. If your gut doesn't play up too much, you may be working on some other autoimmunde disease in your future, like lupus, rheumatoid arthritis, asthema, or something else equally difficult. Look at your parents, grandparents and their cousins and see what your heritage tends towards. Some of the possibilities of untreated celiac disease are fatal, so I would recommend anyone who is cheating to get serious.

EddieJP125 Explorer
EddieJP125
Posted
  • Author

my grandfather never drank..but died of Liver Cancer when my mother was a teen...but they were from a Korean Ethnic back ground...i know it is rare in the Asians to have celiac disease...but i'm an American born and raised...she doesn't like to talk about it...i'll ask my dr. again for a second bloodwork, and i have been goin through meds for my hernia, hemmroids, and stomach ulcers...which probably is from havin celiac disease, right?....

but i'm done cheating now, b/c i was in sooooo much pain, to the point i was goin to call 911, so i'm done with cheating... :)

itz funny that i would have to call 911 to request medical support when i'm an EMT myself :D

flagbabyds Collaborator
flagbabyds
Posted

Well if you were in so much pain when you were cheating then you know you have it! Why would you get re-tested?

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
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