Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iowa Annual Conference And Sg In E.central Iowa

mari-lyn

By mari-lyn
in Introduce Yourself / Share Stuff

Recommended Posts

mari-lyn Rookie
mari-lyn
Posted

Our support group in Anamosa has about 20 people on the mailing list with 6 - 8 regulars. If interested please contact. Potluck, Thursday, Oct. 19 at 6:30 at Jones Regional Medical Center. Nov. - 2nd Thursday of the month at 1:00. We take off December and resume 2nd Thursday in Jan. at 1:00.

The Annual All Iowa conference is next weekend at the Aegon building in Cedar Rapids. I do not have the email address with me (it is at work) but if interested, again send a reply and I can forward the information to you.

Marilyn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hannahsue01 Enthusiast
hannahsue01
Posted
Our support group in Anamosa has about 20 people on the mailing list with 6 - 8 regulars. If interested please contact. Potluck, Thursday, Oct. 19 at 6:30 at Jones Regional Medical Center. Nov. - 2nd Thursday of the month at 1:00. We take off December and resume 2nd Thursday in Jan. at 1:00.

The Annual All Iowa conference is next weekend at the Aegon building in Cedar Rapids. I do not have the email address with me (it is at work) but if interested, again send a reply and I can forward the information to you.

Marilyn

Hi Mari-lyn,

I live in Wheatland Iowa. It's less than an hour from Anamosa. I am thinking that our family may start coming to your suport group. We believe that one of our daughters and myself have celiac but are waiting on confirmation. If you go to this group then you probably know my grandmother.....her name is Margrett. It turns out that my husband now has Thursdays off so maybe this will work out and it would give my grandparents and other family more of a chance to see there grandbabies. What all do you guys do during these meetings and how long do they last? Would we be required to bring something....at this point our kitchen is not gluten free and I would hate to make somebody sick....but with my grandmas help we plan to be gluten free soon.

Tina

mari-lyn Rookie
mari-lyn
Posted
  • Author

Margaret and LaVern? Yes, we also go to church with them.

October we are meeting for a potluck on Thurs. Oct 19th at 6:30. Whole foods like fruits and vegetables are a great addition. One fellow is assigned lplain potato chips. The hospital provides a meat and we usually have lots of food.

Otherwise our meetings are the second Thursday of each month. Sometimes we take Dec. off. Starting at 1:00 they last about an hour - an hour and a half. No, we do not bring anything, though Margaret usuallly brings something to share and sometimes I make a sample of something that I might have found. But it is not a lunch.

That would be great! I haven't looked here in a few days...sorry for the delay.

Hope to meet you soon.

Marilyn

PS. If we have new members we share stories and introduce ourselves. Get caught up on any challanges from the previous month. Update with any new research....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748
    MandyK
    Newest Member
    MandyK
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      Medication

      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.