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Gi Doctor Anti-enterolab


Mamato2boys

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Mamato2boys Contributor
So where are you at in terms of the diet? Getting close to phasing out the foods in the pantry yet? Let me know when you have and I'll e-mail you a list of alternative products you might enjoy. Half the battle is finding the alternatives that you like. After that....it gets much easier. ;)

We're getting close. In the next day or so he'll finish up the last of his Rice Dream, so I'll start him on the gluten-free Wild Oats rice milk and need to re-stock snacks and lunch ideas for Ryan. I found some hot dogs at Walmart that are organic and appear to be gluten-free by Applewood Farms. I also pack him gluten-free/DF Ian's chicken nuggets, safe whole foods...but the menu is still pretty "naked" for lack of a better word. I could definitely use more ideas. Ryan's birthday is coming up on the 13th, and I'm starting to put together a gluten-free menu for the day. DH wants to do barbecue brisket, I've found a gluten-free cake recipe (it's not dairy-free though, if you have a good yellow cake recipe that's GD and dairy free, I'd love it).

I was thinking this morning too that our generation didn't have food allergies like this generation does. Our generation didn't have near the amount of immunizations, or the combinations. Makes me wonder if there's a correlation there. B)


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CarlaB Enthusiast
I was thinking this morning too that our generation didn't have food allergies like this generation does. Our generation didn't have near the amount of immunizations, or the combinations. Makes me wonder if there's a correlation there. B)

Personally, I think the immunizations have a lot to do with it, but also the stress. We're all, children included, under much more stress than we were a generation ago. Plus, our food is much less pure, much more junk food, and even the good stuff has a lower nutritional value than it used to. I think it all adds up to health problems. If we hadn't had all the stress on our systems to develop our leaky guts, I'd bet our gluten intolerance would have never been triggered!

AndreaB Contributor
I was thinking this morning too that our generation didn't have food allergies like this generation does. Our generation didn't have near the amount of immunizations, or the combinations. Makes me wonder if there's a correlation there. B)

I think it has a lot to do with immunizations. We didn't have this many when we were kids. I believe that my son's 2 month shots springboarded his reaction to gluten and soy. He probably still would have reacted down the line, since my other two and myself have celiac/gluten intolerance.

Mamato2boys Contributor
(btw.. you can read all about this in this thread... Open Original Shared Link ) After that.. we fully took him off of gluten, I know it saved his life!!!

Kristie

Oh Kristie.....what an absolutely HORRIFFIC story !!! :o I am so sorry you and your son had to go through that ! I'm really glad he's much better now - good for you for sticking to your guns !

prinsessa Contributor

My son has had soft stools his whole life. I don't know if they would be considered diarrhea, but they aren't solid. I asked his doctor about it and she said it is probably normal for him. She didn't want to do the Celiac blood test, but she did because I kept asking her about it. The blood test came back normal, but I decided to try Enterolab because I still think there is a problem (and my blood test came back normal even though I know I am sensitive to gluten). He has dropped off the charts for weight several times and that worries me.

I read in someone's post that their child cries everytime they have to have their diaper changed. My son does the same thing. He always says that it hurts. Before I went gluten free it hurt sometimes I went to the bathroom too. Like I ate too much spicey food. I am hoping to get his tests back this week. I also tested my DD because she has complained of stomach aches and has had diarrhea for no reason (that I can tell). We will see what happens.

Mamato2boys Contributor
My son has had soft stools his whole life. I don't know if they would be considered diarrhea, but they aren't solid. I asked his doctor about it and she said it is probably normal for him. She didn't want to do the Celiac blood test, but she did because I kept asking her about it. The blood test came back normal, but I decided to try Enterolab because I still think there is a problem (and my blood test came back normal even though I know I am sensitive to gluten). He has dropped off the charts for weight several times and that worries me.

I read in someone's post that their child cries everytime they have to have their diaper changed. My son does the same thing. He always says that it hurts. Before I went gluten free it hurt sometimes I went to the bathroom too. Like I ate too much spicey food. I am hoping to get his tests back this week. I also tested my DD because she has complained of stomach aches and has had diarrhea for no reason (that I can tell). We will see what happens.

You may have seen my post that went over Ryan's whole history - Ryan used to cry whenever he knew it was time to change his diaper because it always hurt him so badly (that's when he was drinking soy milk and had the diaper rash from he** because of it). I'm so sorry your son goes through that too. Let me know what your test results are !

AndreaB Contributor

Yes,

I would like to know everyone's results also.


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    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
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    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
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