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New To Gluten Free

lesliew

By lesliew
in Related Issues & Disorders

Recommended Posts

lesliew Newbie
lesliew
Posted

Greetings, I just wanted to introduce myself. I discovered after going on the atkins diet for weight loss, that I am gluten intolerant. I have had IBS since I was a teenager and noticed how much better I felt without bread and my symptoms were much better. So now I am off the atkins diet and *trying* to learn to eat gluten free. I don't think I am CS, but I haven't tested either. I don't really have alot of the symptoms, although my sister, who as also recently gone gluten-free does have, although she has had Lyme's before and thinks they are related to that (I am trying to convince her to have the test, esp. since she has had intestinal & weight loss improvement from gluten-free, but her muscle/sleep problems continue. Anyway, I am having such a hard time sticking to gluten-free. I finally broke down and purchased some gluten free products. However, I tend to be sensitive to carbs so I really want to limit them. I also have another 10-20 lbs left to lose. Does anyone else have trouble sticking to the diet? I *always* regret when I cheat and wonder what I could have been thinking, lol. Also, I am still learning what I can and can't eat. I was eating oatmeal for hte fiber and realized that's why my stomach was bothering me so. Does anyone know if methycelluose is ok?( main ingredient in citrucel) It's a main made chemical for fiber. My son also has IBS, but I think it is really encropesis, so I am not sure if I should put him on the diet or not.

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tarnalberry Community Regular
tarnalberry
Posted

As you move from learning all the things you CAN'T have, to all the things you CAN have (and get your house stocked on them) the diet becomes easier. Read around the message board for a while and you'll find a lot of useful advice. It does get easier!

flagbabyds Collaborator
flagbabyds
Posted
WELCOME!!!!! This message board is AMAZING, you will find many useful things, i agree with tiffany, think of what you can have, actually a lot of people loose weight when they go gluten-free so that might help you out a bit, get your whole family tested because it runs in families, go to the site index and you can look at the mainstreem products that are gluten-free. if yoyu hvae any more questions you can pm me
  • 2 months later...
wclemens Newbie
wclemens
Posted

Hi LeslieW,

Welcome to the board! I am five feet tall and have fought the weight problem most of my life. I am intolerant of all grains, milk, dairy, egg whites, and yeast, so I must never touch any of those if I want to breathe (mine comes out as asthma).

Seven years ago I discovered a book called, "The Carbohydrate Addict's Diet," by Drs. Richard and Rachel Heller. It connected weight gain with overproduction of insulin, a factor leading to diabetes, which my mother had. The diet is basically the Dr. Atkins low carb diet 23 hours a day, with a one hour reward meal where you can eat anything you're not intolerant of. This way your body limits the insulin output. I lost about 20 pounds on the diet, and have stayed on it all these years. Today my weight was 106 pounds, and I knew that I could eat anything I wanted during my one hour.

You might want to get that book. Also, stay open to the possibility that you may be intolerant of certain things like Casein (derived from milk) or modified food starch, or some other ingredient in processed foods. I mainly eat as much natural food as possible, and read each and every label, and only eat at certain restaurants that I know I can tolerate. Living with Celiac means being aggressively diligent to take care of your own health, no matter what other people, doctors, acquaintances, or passersby may say. God bless! Welda

pixiegirl Enthusiast
pixiegirl
Posted

Hi I just wanted to say that I do the carb. Addict's diet too. I've been on it for 2 weeks and have lost 5 pounds. I went on it because a friend of mine lost 35 pounds on it and has been on it for the better part of 3 years. He doesn't crave carbs at all now.

And for me the same thing has happened, I do eat carbs at my reward meal but I don't crave them all day long. So far I really like it.

Susan

  • 1 month later...
jenbody2003 Newbie
jenbody2003
Posted

You aren't alone, I was diagnosed in Feb of this year and found it helpful to pack a snack bag before I leave the house. gluten-free Pudding like Hunt's pudding packs, fruit cups, apples, and cheese are some easy grabs. Also, once I was free of gluten...I found that I didn't crave these foods anymore. It used to be an addiction. Almost all of my food allergies disappeared also. I keep easy grabs incase of temptations and I decided that as long as I had my Hershey's chocolate, I could handle the rest! :)

It is a learning process for finding out what is allowed and what isn't, but keep your chin up...it is soooo very worth it!

:D

  • 4 weeks later...
Dustyman Newbie
Dustyman
Posted

Good morning. Just thought I'd check the message board before leaving to have my biopsy for celiac today. Don't know that you'll see this because it's so long after your post (October 16), but WClemens...I have never heard anyone refer to asthma as something that happens to them when they eat wheat. That happens to me too. Now I know I'm not just imagining it. Thanks.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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