Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter Has Acetone Breath


celiacgirls

Recommended Posts

celiacgirls Apprentice

This past weekend, my 8 year old daughter was complaining that she was always thirsty. Then on Tuesday, my husband noticed she had acetone breath. She has had it before, last January, and they did the blood sugar test in the pediatrician's office and it was fine. They said her bad breath could be from not brushing her teeth properly. I don't really buy that but it did go away until now. She had just brushed her teeth when my husband noticed it. Because of the increased thirst and the acetone breath, I have her scheduled for the blood test again on Monday, when her doctor gets back from vacation.

Are there any other causes of acetone breath that aren't related to diabetes? Even if her blood sugar is ok, could this be a sign she is at risk of diabetes?

I'm already expecting the doctor to think I'm just an overzealous mom. I did tell her the girls are on a gluten-free/CF diet due to Enterolab and she didn't seem overly interested one way or the other, so maybe there is hope she will be ok with this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I don't know about acetone breath, but I notice my kids get very bad breath even right after they've brushed if they have loose teeth, even slightly loose, it's like you can smell the root rotting away.

I'd still have her checked out to be sure, but it's not unusual for a kid to have bad breath.

2kids4me Contributor

This is an excellent link that discusses why a non-diabetic child may have acetone breath.

Open Original Shared Link

a bit from that link:

My six year old adopted son has had acetone breath consistently for several weeks. I've tested his urine with the strips for glucose and ketones twice, and they are both negative. He has had this previously only when he was slightly dehydrated from bouts of nausea and vomiting. He is otherwise perfectly healthy and active and has no symptoms of diabetes. We have a dog with diabetes which is why I am familiar with the signs and the breath odor and have the urine strips. Are there other causes of acetone breath in an otherwise normal six year old? In view of the negative strips should I still have his blood glucose tested?

Answer:

Not everyone can smell acetone, but if you can, the most sensitive vehicle is the breath which may explain why urine testing has been negative. Ketosis in children can occur when the body is unable to get sufficient basal energy needs from the metabolism of carbohydrate and resorts to the breakdown of fat stores with the production of ketones. This can occur because of diabetes, but, as you have noticed, this is most likely to occur when appetite is diminished by intercurrent illness. The same can happen if energy consumption is increased and a child is too busy to eat sufficiently.

I think it very unlikely that what you describe has anything to do with diabetes, but if you have a diabetic dog and the means of measuring blood sugars you might test your son after a period of energetic activity to see if it is low because the phenomenon I have described is called ketotic hypoglycemia.

celiacgirls Apprentice

Thanks. I'm glad to know there are other causes. I think I will get some of those test strips so I can test her when it happens.

prinsessa Contributor

My kids get Acetone breath once in a while. I actually posted about this on this board before. My DD usually only has it when she is sick (and not eating much), but my DS has it a lot more often. I just found out that both of them are gluten intolerant. I wonder if my DS was getting acetone breath because he wasn't absorbing enough nutrients (he is also very skinny). I was also thinking about testing him with strips when I smell his breath like that. Diabetes (both type 1 and 2) run on DH's side of the family. I know children who have diabetes usually get sick really fast, but I still can't help but worry a little. I sure he is fine, but I still worry.

2kids4me Contributor

any person, child or adult that has acetone breath as result of diabetic ketoacidosis is very sick and would be diagnosed quickly - becasue the symptoms would have you in the ER. Vomiting, stomach pain, pale, rapid repsiration, very sluggish, very thirsty / peeing alot and the synptoms would not improve or go away and then come back.

There are other reasons for acetone on the breath (as mentioned in previuous post). Try not to worry. If the child is wanting to eat, chattering away, and interested in things going on around them, picking fights with siblings - then it is not diabetes.

My son was diagnosed with diabetes at age 9 and he wasnt even ketoacidotic yet. The peeing/drinking fatigue precedes the acidosis stage. Even without acetone breath it was clear that something was terribly wrong.

  • 7 years later...
Kim miller Newbie

My daughter had that off and on for 20 yrs.  We finally went to a gastroenterologist who did a hydrogen breath test and then tested her for H. Pylori bacteria which came back positive.  She was put on antibiotics and then heavy doses of acidopholis for years.  When we finally found out she had Celiac and she went gluten free, it went away completely.   It's is such a social problem for someone at any age. Hope this helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

My daughter had that off and on for 20 yrs.  We finally went to a gastroenterologist who did a hydrogen breath test and then tested her for H. Pylori bacteria which came back positive.  She was put on antibiotics and then heavy doses of acidopholis for years.  When we finally found out she had Celiac and she went gluten free, it went away completely.   It's is such a social problem for someone at any age. Hope this helps!

 

 

Just an FYI - you are responding to a post from 2006.  The poster hasn't been on since 2008

GFinDC Veteran

My daughter had that off and on for 20 yrs.  We finally went to a gastroenterologist who did a hydrogen breath test and then tested her for H. Pylori bacteria which came back positive.  She was put on antibiotics and then heavy doses of acidopholis for years.  When we finally found out she had Celiac and she went gluten free, it went away completely.   It's is such a social problem for someone at any age. Hope this helps!

 

Hi Kim,

 

If the h. pylori does come back someday, you can try some natural treatments for it.  DGL and mastic gum are two natural treatments that help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.