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- Xravith replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Taking Probiotics but Still Getting Sick After Gluten – Advice?
Thank you, really. I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than...- advice
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- trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Taking Probiotics but Still Getting Sick After Gluten – Advice?
As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable...- 1
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- Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Taking Probiotics but Still Getting Sick After Gluten – Advice?
Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend bey...- 1
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- Scott Adams replied to Inkie's topic in Dermatitis Herpetiformis2
Buckwheat
I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free." -
- Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Taking Probiotics but Still Getting Sick After Gluten – Advice?
Hello, I've been diagnosed with IBS since I was little. I’ve visited many doctors because my intestines have always been very reactive to food. I have chronic swelling, and I struggle to gain weight. This year has been worse than others: I started noticing fatigue, loss of muscle mass, and many digestive problems, especially after consuming products w...- advice
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Thank you, really. I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
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As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
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By Scott Adams · Posted
Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
By Scott Adams · Posted
I would only add that cross contamination with wheat may still be a possibility, so it's still best to seek out buckwheat that is labeled "gluten-free." -
Hello, I've been diagnosed with IBS since I was little. I’ve visited many doctors because my intestines have always been very reactive to food. I have chronic swelling, and I struggle to gain weight. This year has been worse than others: I started noticing fatigue, loss of muscle mass, and many digestive problems, especially after consuming products with gluten. My doctor suggested that this might be due to some imbalance of gut bacteria, so I started taking Bifidobacterium Infantis supplements. However, my symptoms have been getting worse every day. I experience nausea, frequent abdominal pain, migraines, and palpitations after eating. I had these symptoms before, but now they are more intense. I thought I might have Non-celiac gluten sensitivity or Celiac Disease, so I took a home test for Celiac, and it came out negative (though there may have been an error—I was nervous and accidentally contaminated the sample with air bubbles). Based on your experiences, should I pursue further medical exams for Celiac? I’m worried about being underweight and about my blood test results, which, even if still within normal ranges, have been declining each year.
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