Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Odd Question

Guest KylieSuzanne

By Guest KylieSuzanne
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest KylieSuzanne
Guest KylieSuzanne
Posted

Hello all,

I have a very odd question and wonder if anyone else has this problem. Before going gluten free i was very very sick, dehydrated for months, a little under nourished, and just all around crappy for about 4 months until i finally convinced my mother that something was wrong. During that time, my hair started to fall out, not to the point where i had bald spots, but a lot was coming off. I have very thick curly hair which has now come back. Recently i have been having some problems again and i don't know if it is celiac related, i am going back to the gastro soon. I have very bad kidney pain and now again all of a sudden my hair is starting to fall out again. Could i have a vitamin problem or could it be something else? Did this happen to anyone else? Any input will help, Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Fungal infections, lupus, diabetes, hormonal changes... All these things can cause hair loss as well as vitamin deficiencies. I would definitely bring it up with your doctor.

lancpa Rookie
lancpa
Posted
Hello all,

I have a very odd question and wonder if anyone else has this problem. Before going gluten free i was very very sick, dehydrated for months, a little under nourished, and just all around crappy for about 4 months until i finally convinced my mother that something was wrong. During that time, my hair started to fall out, not to the point where i had bald spots, but a lot was coming off. I have very thick curly hair which has now come back. Recently i have been having some problems again and i don't know if it is celiac related, i am going back to the gastro soon. I have very bad kidney pain and now again all of a sudden my hair is starting to fall out again. Could i have a vitamin problem or could it be something else? Did this happen to anyone else? Any input will help, Thanks!

lancpa Rookie
lancpa
Posted
Hello all,

I have a very odd question and wonder if anyone else has this problem. Before going gluten free i was very very sick, dehydrated for months, a little under nourished, and just all around crappy for about 4 months until i finally convinced my mother that something was wrong. During that time, my hair started to fall out, not to the point where i had bald spots, but a lot was coming off. I have very thick curly hair which has now come back. Recently i have been having some problems again and i don't know if it is celiac related, i am going back to the gastro soon. I have very bad kidney pain and now again all of a sudden my hair is starting to fall out again. Could i have a vitamin problem or could it be something else? Did this happen to anyone else? Any input will help, Thanks!

I had hair falling out due to thyroid, and another time due to an imblance in either calcium or vitamin c I believe.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hello all,

I have a very odd question and wonder if anyone else has this problem. Before going gluten free i was very very sick, dehydrated for months, a little under nourished, and just all around crappy for about 4 months until i finally convinced my mother that something was wrong. During that time, my hair started to fall out, not to the point where i had bald spots, but a lot was coming off. I have very thick curly hair which has now come back. Recently i have been having some problems again and i don't know if it is celiac related, i am going back to the gastro soon. I have very bad kidney pain and now again all of a sudden my hair is starting to fall out again. Could i have a vitamin problem or could it be something else? Did this happen to anyone else? Any input will help, Thanks!

I can only answer from my personal experience but when this happens to me I can usually link it to gluten sneaking in somewhere. You are wise to get things checked out by your doctor, we should never assume gluten is causing everything, but while you are doing that also look for any way that gluten may be sneaking in. If you had positive blood work at diagnosis now is the time to have the panels run again along with checking your B12, folate and iron, blood glucose and thyroid. Look for possible non-food sources also, as an example I became very ill again when we did some work with drywall, I didn't know that drywall and the compound were hidden gluten sources. You also could be more sensitive to CC, either from gluten eaters in your home, toiletries or from lines on processed foods. Not all companies will state if gluten and non gluten items are run on the same lines.

I hope you get this figured out soon I get kidney pain also when glutened and I know it really hurts but somehow not as much as seeing handfulls of hair on my pillow and shower floor. (((((((hugs))))))

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
    2. dixonpete
      0

      Inoculation and video development

    3. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    4. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    5. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748
    Julia Duffee
    Newest Member
    Julia Duffee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.