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What Do You Get?


katrinamaria

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katrinamaria Explorer

hey everyone--

i was just wondering what other people get when they are glutened?? for me, it seems D for like the first day and then C for like the next 3-4 days.... is this weird?? i just wanted to compare symptoms and any remedies you guys do to make it any less uncomfortable (if that is even possible...lol).

thanks for takin the time :)

kms


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CarlaB Enthusiast

I get both. Usually d first. My biggest issue is staying hydrated.

jerseyangel Proficient

I get D--with nausea. Quite seriously, I don't believe I've ever had C.

Kody Rookie

Ehhhh... sorry to ask, but what does it mean to get D or C?

Kaycee Collaborator
Ehhhh... sorry to ask, but what does it mean to get D or C?

Diahroea or constipated is what it is all about. Ehhh... as you would say.

I get D, and have probably only had constipation about 5 times total in my whole life.

Catherine

Kody Rookie
Diahroea or constipated is what it is all about. Ehhh... as you would say.

I get D, and have probably only had constipation about 5 times total in my whole life.

Catherine

Ah I see... eww. Well, I get D sometimes but mainly its C. This is embarrasing to talk about, but I don't think I complete #2 when I go... therefore have to use lots of paper towel. That would be part of C right? Anyways, its all screwed up :(

Kaycee Collaborator
Ah I see... eww. Well, I get D sometimes but mainly its C. This is embarrasing to talk about, but I don't think I complete #2 when I go... therefore have to use lots of paper towel. That would be part of C right? Anyways, its all screwed up :(

And I seem to use heaps of toilet paper too, even though it is not constipation. How embarassing!

Catherine


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Kody Rookie
And I seem to use heaps of toilet paper too, even though it is not constipation. How embarassing!

Catherine

didn't going gluten-free fix all of that? because if it doesn't, well, that sucks. Or more precisely, that stinks.

CarlaB Enthusiast

Yea, I go through the paper, too. I'm much more normal, or should I say regular?, but I go through the paper.

jerseyangel Proficient

Gee, I thought it was just me--sometimes I use so much paper, I have to flush twice :ph34r:

aikiducky Apprentice

On good days I could almost do without the toilet paper, seriously. :) But of course I do use it!!! :ph34r::blink::rolleyes:

If I get glutened, I'm like the first poster, first D then several days of C or almost C.

After almost two years of gluten free, the good days far outnumber the bad for me, btw.

Pauliina

TinkerbellSwt Collaborator

I also get D first. I do have days where I get C, but I am not sure why yet. I dont think its gluten, I think its lack of fiber. I am trying to figure it out.

I am like Paulina, on my "normal" days, I almost could go without paper too. (but I dont either! ;) )

Kody Rookie
Gee, I thought it was just me--sometimes I use so much paper, I have to flush twice :ph34r:

hahah, same here ;;

MistressIsis Apprentice

usually immediate D at least 3 runs to the BR & if that doesn't flush everything out then I get the, I feel like I have to but I don't feeling. It's not even C it's just tight & painful

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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