Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here And Have A Question


Sherquilts

Recommended Posts

Sherquilts Newbie

Hi all, I have been gluten-free for 7weeks now since being diagnosed with celiac disease. I used to get severe diarreha and then bouts of constipation. Since being gluten-free the diarreha has stopped completely (thank God) but now I am bloated and constipated. How long before this goes away too. By the way, I am lactose free too. Also I have been gaining a lot of weight, some of which I needed, but don't want to gain too much. I eat a lot of salads and fruit. Any one out there have the same problems.

I want to thank all of you for this web site. I have learned so much from reading all the posts. It makes me feel not so alone.

Thanks to anyone who replies to this.

Sincerely, Sheryl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Hi Sheryl,

Just wanted first of all to welcome you. I honestly can't help you with your question though because I haven't gotten to that point yet.... I have chronic diarrhea, always, every day, no matter what.... I am still trying to get to the point where the diarrhea stops! I would LOVE to have a day where I can say "I am constipated!!!!" I honestly think I would celebrate!!

I also have learned many things on this board..... It has helped me immensely. When I first started reading the posts, I thought I was reading about myself.. It was a good feeling to know that I am not alone with this disease....

Have a great day!

Karen

Canadian Karen Community Regular

Also, make sure you don't get Gas-X for the bloating and gas.....

I found out the hard way that it contains gluten......

Karen

burdee Enthusiast

Sheryl: When I first went gluten-free over 3 months ago, some of my symptoms went away, but I continued to have other symptoms, esp. constipation. Sometimes I could determine a gluten source to blame for recurring symptoms, but sometimes I couldn't detect what caused those. I also assumed I was lactose intolerant, because I had problems with milk. I had assumed taking lactaid supplements prevented those symptoms, so I could just avoid gluten to resolve other symptoms. After 2 gluten-free months I received my Enterolab test results which indicated that I was sensitive (antibodies) to CASEIN as well as gluten. Since casein is the milk protein, lactaid (which helps with lactose intolerance) didn't protect me from casein. When I eliminated all dairy products, my chronic constipation went away. However any time I have slips with casein or gluten, I get all my symptoms (cramping pain, bloating and gas) back plus a few days of constipation after those go away. Perhaps you might consider avoiding ALL dairy to resolve constipation.

BURDEE

j9n Contributor

Hi Sheryl, I am having the same symptoms for the last few days. I am pretty sure I am gluten and casein free now but I think I am overloading on carbs and not enough fiber. Since the constant diarrhea has cleared up I have not changed my eating habits. Oh and i discovered an awesome rice pasta (the brand begins with a T and I can not remember what it is) that my whole family agreed was better than wheat pasta. I am going to try carrot sticks instead of chips and nuts, more veggies (perfect time of year for that!) less rice and see what happens.

gf4life Enthusiast
Oh and i discovered an awesome rice pasta (the brand begins with a T and I can not remember what it is) that my whole family agreed was better than wheat pasta.

Janine , was the pasta Tinkyada brand? This is the brand we eat and it is great! I've served it to non-gluten-free folks and they never knew the difference.

We're having it for dinner tonight in fact!

Sheryl ,

Welcome to the site. It is a great sourch of support and information.

I also have recurrent bouts of diarrhea and constipation when I get gluten contamination. These were a few of my symptoms before going gluten-free and only being off dairy completely makes them go away. I also had my testing done through Enterolab and was confirmed to be casein sensitive as well. I was glad to know that, since I would have had a hard time with the diet if I continued to have symptoms!

My suggestion to you about to ease the constipation is to drink a LOT of water. I don't know if there are any meds out there that can help, but I am not having a good time with taking medication right now, so there aren't many I would recommend anyhow. Make sure you eat veggies everyday too. Too much fruit could be causing the bloating, since if your digestion is too sluggish right now the fruit could be fermenting and causing gas. And although it is temping to fill up on meats and gluten-free grains, a light evening meal will help in the long run to avoid more constipation. Salad is always good, just be careful of the dressing, and avoid too many acidic things like tomatoes and oranges, at least for a while. Pineapple is a good choice if you want something acidic, since it aids digestion.

God bless,

Mariann

j9n Contributor

Yes that is it, Tinkyada. It is awesome. I was worried that in order to have spaghetti I would have to cook two types of pasta but my husband siad he would try it. I was so relieved when he enjoyed it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YankeeDB Contributor

I corrected my constipation by adding flax seed to almost every meal. Either put it in a grinder and sprinkle it on or add it whole (but chew thoroughly). Worked wonders for me and it's supposed to be healthy from other standpoints. Might be worth a try.

catfish Apprentice

Sherquilts, I also experienced an increase in bloating and gas due to the fact that I was eating so much more fruit than before the diet. I have just cut that back and it has helped. Also, Beano is good for preventing gas from vegetables. For pasta I have found that Tinkyada is about as good as store-bought gluten-free pasta gets, but if you want a treat use Bette Hagman's recipe from her Gluten Free Gourmet cookbook. It's time consuming to cut pasta by hand (I don't know whether this dough would work in a pasta machine) but it tastes much better than anything you could buy in the store.

Judithg Rookie

I think it's easy to end up with constipation when you go gluten-free--unless you make sure you're still getting plenty of soluble fiber in the form of rice, gluten-free pasta, and other gluten-free products.

All my friends who have gone on the Atkins diet, for example, have ended up with constipation, because they're not eating sufficient grains or soluble fiber. Same thing can happen when you're gluten-free.

Someone mentioned the Tinkyada pasta, and it is fabulous. Lots of other options too.

BTW, I went to an Italian restaurant with friends recently, and there was not one single gluten-free item on the menu. I just ordered tea. The owner of the restaurant was distressed about this and came over and asked me if the reason I wasn't eating might possibly be due to gluten intolerance. I couldn't believe it!! She had Tinkyada pasta just for this situation. I was amazed!

Sherquilts Newbie

Thank you all for your replys. I have tried the Tinkyada pasta and it is very good. I will try to eat less fruit as I didn't eat it before I went gluten-free I always thought that maybe my problem before was from eating fruit so I stayed away from it.

Thanks again everyone.

Sheryl

talblum Newbie

Hi Sheryl,

I have no answer for you. It's just that I've experianced similar phenomenons since I became gluten-free. My bloating has increased and some constipation.

You're not alone.

Let me know if you find out what causes it.

Tal

tarnalberry Community Regular

If you have recently increased your fiber consumption (particularly due to fruits and vegetables), that may explain the increased symptoms...

lesliew Newbie

I am by *no*means very experienced, but I am planning on using Citrucel, it's methycellulose, which is a man made fiber. That might help. Anytime you change how much fiber you are getting things change. Funny, I have gone from constipation to more diarhea. I have been having a hard time being totally gluten free though. (i just cheat when I am tired). Good luck and let us know if you find something that works!

lilliexx Contributor

for anyone experiencing constipation: try psyllium seed. it really cleans out your colon when you are backed up for days. taking it on a reg basis for a few months will really help.

catfish Apprentice

On the topic of fibers (psyllium and Citrucel) it is important to note that these two fibers work very differently! Citrucel is a soluble fiber while psyllium (Metamucil) is an insoluble fiber. The soluble fiber (Citrucel) will help sooth your guts and give them bulk, so it will gently help with whatever ails you (D or C) without causing bloating or gas. Insoluble fiber (Metamucil, wheat bran, etc) is an intestinal stimulant, so it will help clean your guts out in a hurry but it also can cause bloating and gas since it can ferment in your intestines. The two fibers have very different effects on your body and should be taken accordingly.

Due to its soothing qualities I recommend using Citrucel for daily intestinal therapy and Metamucil for those times when you need something strong to purge your system.

MichelleC Apprentice

My doc recommends Benefiber. Worked well for me. Then my dietician had me and ground flax seed, and I phased out he Benefiber. All of that rice and white flour (potato, tapioca) and be binding for sure.

Good luck.

Michelle

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.