Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling For The Holidays :(


emcmaster

Recommended Posts

emcmaster Collaborator

I'm apologizing in advance for the lengthy post.

It's very hard for me to travel because of my food problems. I can't eat out anywhere and there are very few packaged products that I can safely consume, so I cook everything I eat (or eat it in its natural state, like apples).

My husband wants to go to stay at his "adoptive" parents' (his best friend's family, who he has spent holidays with for the last 12 years) house in Pensacola for Christmas. I'm all for that, except it will mean I have to cook and freeze 5 days worth of food and find a way to take it. That's not the problem. The problem is I'm very uncomfortable with literally taking over someone's freezer, refrigerator and, esentially, kitchen, for almost a week. The AMOUNT of food I have to bring with me is ridiculous (unsurprisingly, it takes a huge quantity of low-fat vegetable-based food to meet daily calorie requirements) so they will have to clean out their fridge and freezer ahead of time. And even though I can prepare the food before we leave and freeze it, it still means I will be in and out of their kitchen every hour or two, interrupting anything they're doing in there.

I really like these people and I would love to spend some time with them, but I'm incredibly uncomfortable taking over their kitchen for almost a week. And we can't really afford to rent a hotel room with a kitchenette for 5 days.

My husband thinks it's ridiculous that I am uncomfortable taking over someone else's kitchen. To be fair, I understand where he's coming from - he does things I think are irrational, too, and he's normally very supportive and incredibly careful about keeping me gluten-free. But I can't help having a disease that makes eating difficult and then feeling self-conscious about inconveniencing other people.

Is there another option that we're not seeing? I feel like this is a lost cause. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

These are the things that we never thought we would have to think about when we were diagnosed with Celiac! What a strange world we live in.

Couple thoughts run through my mind, although I'm sure you've already thought of them.

Can you call the family and discuss your concerns? Talk openly with them, explain the situation, see the response. They might (and probably will be) extremely gracious---they just want you, and don't care what food you come with. (that is the case with my family and my husband's family, luckily). They'll probably feel bad that you are even worrying. (although we understand)

Do you have to prepare everything before hand? What about shopping down there and picking some stuff up? Making your meals each day (or at least some)? When I go places, I bring a lot, but I also pick stuff up at the store. (I have multiple intolerances and do not eat ANY processed foods at all. None. Not fully sure what you have-but sounds similar in terms of lack of processed foods)

And I know it sucks-what I (and you!) would give to be 'normal.' But, thats not the case for us! We are special :). So, in order to live a normal life, we must do what we must. This is what you HAVE to do-its not a choice! So, don't apologize for being you. They really just want to see you and spend time with you. I had a hard time with this, as well. Then it becomes a new version of normal. My biggest thing that keeps me going---I tell myself that I will do everything and anything to not miss out on life because of my eating issues. In five years, what will you remember? Do you want to remember not spending a wonderful holiday together, but that you stayed home (I know that prob won't happen!) because you were too worried? Or do you want to remember a wonderful family holiday and that you were so lucky to have a safe food environment?!

Hope this helps, a bit. Let us know. xo

tarnalberry Community Regular

Well, why doesn't someone call them and ask if it's a problem? If they are his 'adoptive parents' and you are his wife, they might be hurt if you *don't* come use their kitchen for five days! :) Talk to them. You've got three months to work on this one. Use that time. And look into some foods that don't need to be cooked - bean salads, cold soups, etc.

Jestgar Rising Star

My guess is they'd be thrilled that you trust them enough to ask this of them. You are making your visit easier for them because they don't have to worry about poisoning you. And if anyone in the house enjoys cooking they might have fun learning some of your recipes.

Do ask them about it. Maybe plan some stuff to bring and some stuff to make there. Aim for food you can cook in foil or on/in parchment.

Bring a selection of gluten-free "treats" and have a tasting party.

It's a holiday! Have fun with your food and your situation.

jerseyangel Proficient

Hi Elizabeth,

I had a similar situation last summer. I obsessed and worried about it for weeks before! Everything turned out fine--I shouldn't have worried--and you shouldn't either :)

What I did was cook more than I really needed for meals some nights for the couple of weeks before. I'd make myself up a serving and freeze it immediately. I also brought other foods that I'd need with me. Another option would have been to go to the grocery store up there, but I didn't want to take the time to do that. (Little time--lots of people to visit!)

As for worrying about taking over the kitchen--all I really needed to do once there was use the microwave, and throw together salads. I never cook breakfast for myself anyway, and I baked what I needed and brought those things.

I found that my family and my husband's, too, were just glad to see us. What I thought was going to be a big problem , no one even blinked an eye at!

To put your mind at ease, do call and be open and ask--I'm sure that they will be happy to share a bit of their kitchen with you! :)

emcmaster Collaborator

Thank you all so much for your kind responses. I feel much better about the situation now. I'm going to call and talk to them about it. :)

Lollie Enthusiast

Glad to hear you are going to call! And that you feel better! I had a similar experience just this past August. We live in TX and had to travel to OH to visit my husbands family and gradma's. I took alot of things that I thought I wouldn't be able to find, and then shopped for fresh veggies and fruit when I got there. No body cared! I took over about three different kitchens while I was there. Because we switched houses continously! Everybody was just interested to know about celiac. And I think they liked not having to cook dinner for all of us. I did all the cooking. And that made me happy because I didn't have to worry about being sick! It was a win win situation!

Good Luck!

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.