Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamins


Anteau25

Recommended Posts

Anteau25 Apprentice

Hello. I've only posted a couple times. I've been pretty much reading posts and absorbing information. I was just wondering if someone could clarify a couple things for me.

I had my biopsy 6 weeks ago. My doctor told me that there was relatively mild damage to my small intestine. Obviously the longer you have untreated celiac disease the more damage to the small intestine. My question is this- could it possible that I have had celiac disease for at least 4 years even though I only have mild damage? Also, is it possible that I could have vitamin deficiencies? My specialist told me that considering my age (25yrs) and that I have mild damage, I should be ok with just taking a multivitamin every day.

I am also a type1 diabetic (since age 7), so I'm used to seeing a variety of doctors. I've had too many bad experiences and wrong advice. Althogh I am very thankful for being quickly diagnosed by this doctor, I just wanted make sure he was right about the vitamins.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

A multi vitamin would be good to take. Whether you need more than that would have to be determined by your doctor.

I use Freeda vitamins. There is a thread about vitamins that isn't too terribly old. Hopefully others will pipe up with what they use.

All-about-March Newbie

Anteau,

For me it was my vitamin deficiencies that led my reg. GP to consider celiacs. I have several needs for supplements. I take B12, iron, calcium with D and magnesium, C, E and folic acid. Also a multi at night. I use Jamieson (canadian brand I believe) which is free of wheat, gluten, yeast, starch, sugar and lactose.

Are you working with a dietician for your new gluten free diet? My GI doc recommended me to one to discuss the diet and nutritional/ supplemental needs. Most of the initial supplements were from her recommendations, and I see my GP for reg. bloodwork to check on the levels and then adjust accordingly.

Other than intestinal damage, there are so many variables that may cause defieniencies ie: vegitarian diet, other allergies, being female, medications etc...

If you eat a well balanced diet, I would say that a multi would be good for now, and if you have concerns, ask your doc to check your levels for possible deficiencies for you and go from there.

For me B12 supplementation is going to be life long due to familial tendency for pernicious anemia and now celiacs. Calcium as well - all the women in my family have osteoporosis / osteopenia.

Hope you get your answers! Good luck!

emcmaster Collaborator

I don't know about the damage issue - I'm self-diagnosed and had a colonoscopy in July 2005 that didn't return any results (he said everything looked normal)... however, I am pretty certain that the problems I've had since January 2004 can be attributed to celiac.

As for the vitamin, I take Open Original Shared Link. It is free of all allergens and isn't too expensive. I've had good results with it.

LKelly8 Rookie
I had my biopsy 6 weeks ago. My doctor told me that there was relatively mild damage to my small intestine. Obviously the longer you have untreated celiac disease the more damage to the small intestine. My question is this- could it possible that I have had celiac disease for at least 4 years even though I only have mild damage? Also, is it possible that I could have vitamin deficiencies? My specialist told me that considering my age (25yrs) and that I have mild damage, I should be ok with just taking a multivitamin every day.

Yes, yes and yes. :D I had the symptoms of celiac for 6-7 years before diagnosis and had only mild damage on biopsy, and my bloodwork came back normal twice. Damage to the villi are measured using the Marsh Scale.

From the University of Iowa website:

"The Marsh stages scale, derived from a study of patients with known celiac disease who were fed gluten, is used to assess the level of intestinal damage inflicted by celiac disease on each individual patient. Damage starts as an increase in IEL (Infiltrative, Marsh 1), then an increase in crypt length (Hyperplastic, Marsh 2), followed by flattening (atrophy) of the villi (Destructive, Marsh 3). Severe, relentless injury will result in loss of crypts and villous atrophy (Hypoplastic, Marsh 4). Often a patient's symptoms do not correlate with endoscopic or histological damage. Patients with mild symptoms may have severe damage, whereas patients with severe symptoms may have mild damage."

See Open Original Shared Link for the full article.

tiffjake Enthusiast
Hello. I've only posted a couple times. I've been pretty much reading posts and absorbing information. I was just wondering if someone could clarify a couple things for me.

I had my biopsy 6 weeks ago. My doctor told me that there was relatively mild damage to my small intestine. Obviously the longer you have untreated celiac disease the more damage to the small intestine. My question is this- could it possible that I have had celiac disease for at least 4 years even though I only have mild damage? Also, is it possible that I could have vitamin deficiencies? My specialist told me that considering my age (25yrs) and that I have mild damage, I should be ok with just taking a multivitamin every day.

I am also a type1 diabetic (since age 7), so I'm used to seeing a variety of doctors. I've had too many bad experiences and wrong advice. Althogh I am very thankful for being quickly diagnosed by this doctor, I just wanted make sure he was right about the vitamins.

Welcome! Well, I know you said you have been here for a while, but welcome from me! I take GNC's Prenatals. And their sublingual B12. Both are gluten-free, and work for me!

Anteau25 Apprentice

Thank you everyone for responding. Since being diagosed with celiac disease, I have looked back and now see sympotoms as far back as four years. It was only a few months before the diagnosis that I got really sick and vomiting all the time. My dr told me that my bloodwork showed that my "numbers are very high". Then the biopsy showed mild damage. I was a little confused, but it's clearer now. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,833
    • Most Online (within 30 mins)
      7,748

    MamaKH
    Newest Member
    MamaKH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.