Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog

Kody

By Kody
in Coping with Celiac Disease

Recommended Posts

Kody Rookie
Kody
Posted

This is killing me. I don't know how to explain it. I can't think. My head hurts, even when it doesn't hurt, it feels like my brain is dead and I can't use it fully. I feel like it just shuts down on me. Like I said, I can't think.

Today got in my car and forgot to grab the keys, then I went to the store and on my way out I walked to the wrong car and couldn't remember where my car was, because I couldn't think at all. Then I took the wrong turn twice. Brain fog.

Then on my way home I forgot to stop at the post office. Also, talking to a friend today I forgot the todays date twice. It was very embarrasing. I couldn't think at all.

The sad part? I've been this way my whole life. I started this diet a week ago or so but I must have glutened myself, because just when I was starting to feel a little better I suddenly feel normal again, that is, like hell. Constipation has never left me.

Is anyone else like this? Do you say stupid things do stupid things because of brain fog? do you forget what day it is etc?

Also, how am I supposed to go two years gluten-free? I just don't see how its possible anymore. Does my ketchup have gluten in it as well? Honestly, I've been checking the ingredients but it isn't easy when you have a two-page list of 'possibly-glutened' ingredients.

This sickness is making me not care about anything. I'll just continue living life at the minimum until I die. Sorry about the rant, I'm feeling a little emo right now, but does anyone else get this brain fog crap or is it just me??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Corkdarrr Enthusiast
Corkdarrr
Posted
This is killing me. I don't know how to explain it. I can't think. My head hurts, even when it doesn't hurt, it feels like my brain is dead and I can't use it fully. I feel like it just shuts down on me. Like I said, I can't think.

Today got in my car and forgot to grab the keys, then I went to the store and on my way out I walked to the wrong car and couldn't remember where my car was, because I couldn't think at all. Then I took the wrong turn twice. Brain fog.

Then on my way home I forgot to stop at the post office. Also, talking to a friend today I forgot the todays date twice. It was very embarrasing. I couldn't think at all.

The sad part? I've been this way my whole life. I started this diet a week ago or so but I must have glutened myself, because just when I was starting to feel a little better I suddenly feel normal again, that is, like hell. Constipation has never left me.

Is anyone else like this? Do you say stupid things do stupid things because of brain fog? do you forget what day it is etc?

Also, how am I supposed to go two years gluten-free? I just don't see how its possible anymore. Does my ketchup have gluten in it as well? Honestly, I've been checking the ingredients but it isn't easy when you have a two-page list of 'possibly-glutened' ingredients.

This sickness is making me not care about anything. I'll just continue living life at the minimum until I die. Sorry about the rant, I'm feeling a little emo right now, but does anyone else get this brain fog crap or is it just me??

Hang in there, hang in there, hang in there! It WILL get better.

(And you WILL get sick of hearing that.) :P

I still have very noticable brain fog. What scares me is when I'm driving...'cuz I completely zone out. that's just not safe! I am constantly making little stupid errors due to brain fog. Forgetting entire conversations. It's VERY frustrating. And most everyone on this board can relate. It will get better, but everyone's healing time is different.

Try some magnesium for the constipation. I was taking 250mg daily just for good health, and last week I doubled it - my system is moving now!

As per the ingredients...it takes a LOT of research. And it's very frustrating. Because all of us newbies are used to grabbing things to eat whenever and wherever. It's a huge lifestyle change. And it's also a huge pain in the ass to spend 30 minutes googling random things on the internet before I can even go to the grocery store.

But after a while you start building a base of knowledge. You know which brands are okay, and you have a better idea of what to look for. (Talk about brand loyalty!) Kraft and Unilever are the two brands I can think of offhand that are "safe" in that they will always list if there is a gluten containing ingredient.

Lucky for me I love both Thai and Mexican food, which are for the most part gluten-free. My new favorite quick-and-easy are the Thai Noodle Bowls (thai kitchen). They clearly state gluten free right on the package.

I have gone casein free in the last week, and I feel like I'm back at square one, so I can especially relate with you right now. But I know that if I can live gluten-free, that I will learn how to be CF as well. And given time it will become like second nature. But in the meantime, it really sucks.

Just hang in there! And rant all you want. That's what we're here for.

-Courtney

lindalee Enthusiast
lindalee
Posted

Cody, Are you sleeping well? Maybe if you get a little more rest it will help. Try to just eat simple plain food right now so you don't have to worry about the ingredients. Fruits and veggies and meat and yogurt with fruit (blueberries and strawberries) easy stuff. Smoothies are easy also.

I think I gluttened yesterday- ate a hamburger from the freezer that had something on it- I think....yes I have brain fog. You're not alone.

Gonna go fix a smoothie. Take care.

Guest melannen
Guest melannen
Posted

I can definitely relate.

All this weekend I've had horrible brain fog! I'll forget what I'm talking about mid sentence, people have to tell me things several times because it just didn't quite compute. I say things w/out thinking (sometimes very stupid, others very offensive). It sucks!!

But it does get better. I know it doesn't seem like it yet, but just give it time. After awhile eating gluten-free will become second nature to you. It gets easier, I promise :)

Kody Rookie
Kody
Posted
  • Author
Hang in there, hang in there, hang in there! It WILL get better.

(And you WILL get sick of hearing that.) :P

I still have very noticable brain fog. What scares me is when I'm driving...'cuz I completely zone out. that's just not safe! I am constantly making little stupid errors due to brain fog. Forgetting entire conversations. It's VERY frustrating. And most everyone on this board can relate. It will get better, but everyone's healing time is different.

Try some magnesium for the constipation. I was taking 250mg daily just for good health, and last week I doubled it - my system is moving now!

As per the ingredients...it takes a LOT of research. And it's very frustrating. Because all of us newbies are used to grabbing things to eat whenever and wherever. It's a huge lifestyle change. And it's also a huge pain in the ass to spend 30 minutes googling random things on the internet before I can even go to the grocery store.

But after a while you start building a base of knowledge. You know which brands are okay, and you have a better idea of what to look for. (Talk about brand loyalty!) Kraft and Unilever are the two brands I can think of offhand that are "safe" in that they will always list if there is a gluten containing ingredient.

Lucky for me I love both Thai and Mexican food, which are for the most part gluten-free. My new favorite quick-and-easy are the Thai Noodle Bowls (thai kitchen). They clearly state gluten free right on the package.

I have gone casein free in the last week, and I feel like I'm back at square one, so I can especially relate with you right now. But I know that if I can live gluten-free, that I will learn how to be CF as well. And given time it will become like second nature. But in the meantime, it really sucks.

Just hang in there! And rant all you want. That's what we're here for.

-Courtney

what mexican food is safe? don't tortillas have gluten in them?

also, are there any recommended mexican restaurants for celiacs you guys know of?

and lastly, doesn't the brain fog completely go away when you go gluten-free? Like, after a while shouldn't you be normal? Everyone says they're on this diet and they feel better, but they still have brain fog and stuff?

thanks for the support guys. sorry for being so negative.

Guest melannen
Guest melannen
Posted
and lastly, doesn't the brain fog completely go away when you go gluten-free? Like, after a while shouldn't you be normal? Everyone says they're on this diet and they feel better, but they still have brain fog and stuff?

thanks for the support guys. sorry for being so negative.

The brain fog does go away. I was glutened thursday night, which is why I've got it right now. I'm not quite back on my feet yet...

Don't be sorry for being negative! We all need to rant sometimes! It's ok and perfectly normal :)

Kody Rookie
Kody
Posted
  • Author
The brain fog does go away. I was glutened thursday night, which is why I've got it right now. I'm not quite back on my feet yet...

Don't be sorry for being negative! We all need to rant sometimes! It's ok and perfectly normal :)

Ahh that makes me feel so much better knowing that. Thank you!

... I can't wait ...

edit: I just realized how sarcastic this post seemed. I didn't mean any sarcasm, this is as sincere as it gets. promise.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Kathy Ann
Guest Kathy Ann
Posted

I'm right there with you too, Cody. I've had brain fog, or whatever you want to call it, all my life too. And I suspect I'm way older than you are! :D We're going to get better. We just have some damage repair to do. But those brain synapses will reconnect one of these days and we will be new people!! B) I have great respect and confidence in this miraculous human body God created! :)

Guest melannen
Guest melannen
Posted
Ahh that makes me feel so much better knowing that. Thank you!

... I can't wait ...

edit: I just realized how sarcastic this post seemed. I didn't mean any sarcasm, this is as sincere as it gets. promise.

I didn't detect any sarcasm, no worries.

and you're welcome :)

Corkdarrr Enthusiast
Corkdarrr
Posted
what mexican food is safe? don't tortillas have gluten in them?

also, are there any recommended mexican restaurants for celiacs you guys know of?

and lastly, doesn't the brain fog completely go away when you go gluten-free? Like, after a while shouldn't you be normal? Everyone says they're on this diet and they feel better, but they still have brain fog and stuff?

thanks for the support guys. sorry for being so negative.

Cody,

You can get a naked burrito at Qdoba or Chipotle - they both have good websites that clearly list what is and isn't gluten-free. They list their meats as being gluten-free with a cross of CC. I ate at Qdoba last time I was home like four times in one week and had no problem. Gratned, any time you eat out it will be risky. Moe's is NOT gluten-free if you have those in your area. They use a chicken broth in almost everything that contains gluten.

I love to make mexican at home - taco seasoning (i think Ortega or old El Paso, but double check) is gluten-free, and the rest is just meat, cheese, sour cream, lettuce, tomatoes. There's a lot of gluten-free salsa (Newman's own has a ton of gluten-free products and a very clear list online), and then corn chips or corn shells for the tacos.

A good friend of mine has been celiac for a long time, and she's found several restaurants in her area that take care of her quite well. She just makes sure to order her meal w/o the tortilla and stays away from sauces. I'm not that brave yet!

As for lingering brain fog...it seems to be one of my last symptoms to go away after a glutening. And since I'm still new at this...grr. I also suspect it is linked to my devastating casein intolerance.

-Courtney

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748
    TDeb
    Newest Member
    TDeb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.