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What Should I Do?

Natlay

By Natlay
in Coping with Celiac Disease

Recommended Posts

Natlay Apprentice
Natlay
Posted

These last few days have been horrible. Went off gluten in march, dairy free for years, and went off soy and corn about a month or so ago. Was doing mostly ok eating just fruit, vegetables, and meat as all grains seemed to upset my stomach. But then suddenly I have had D for the past few days no matter what I eat. And I'm losing weight again...just when I had finally started to get back to normal. I'm trying to get a doctor's appointment, but that's going to take a while. Would it be that bad to just not eat today? It's not like anything is staying in anyway :blink: I just don't know what else the problem could be...I've cut out every food I can think of that would be the problem and I am very careful about the things that I do eat (very paranoid about cc :P ) Oh yeah...and I've only slept about 2 hours each night.

Help!! Any ideas?

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jerseyangel Proficient
jerseyangel
Posted

How do you feel otherwise? Could it be a virus? It's that time of year...

Maybe stick with liquids like broth and diluted juices for a day or so and see how you feel. :)

Natlay Apprentice
Natlay
Posted
  • Author

I feel completely fine otherwise...my stomach is the only problem, so I don't think I'm sick.

tarnalberry Community Regular
tarnalberry
Posted

could easily be a stomach virus. they often only give GI distress.

loraleena Contributor
loraleena
Posted

What supplements are you on? Too much vit c or magnesium can give you the runs.

Natlay Apprentice
Natlay
Posted
  • Author

I don't take any vitamins or any medications. I've been eating well lately but I don't think I'm absorbing what I'm eating because (sorry...tmi) I can tell what I just ate after I go to the bathroom.

RiceGuy Collaborator
RiceGuy
Posted

How are your soluble and insoluble fiber intake levels? Without any grains those might be way off balance. Just a wild guess on my part, but can't hurt to mention it.

When you say all grains upset your stomach; what would happen? Or should I not ask that question? :lol: Did you try millet? I read it's supposed to be very easy to digest, nutritious, and very few people are allergic to it.

Depending on the way certain foods like grains effect you, another possibility might be a nutrient deficiency. For instance, vitamin B12 is important for the digestion of proteins, fats and carbohydrates. I've read that Celiacs are often deficient in this vitamin, which would help explain why so many find high fat/carb/protein foods troublesome. You will find some interesting threads by searching the board for "methylcobalamin", which is one form of B12.

I'm sure there are numerous possibilities though, and others may have suggestions which can help you pin down the trouble. Just try not to get caught up in addressing only the symptom (the D), but to locate the cause.

Hope you get relief soon!

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Natlay Apprentice
Natlay
Posted
  • Author

I think my fiber intake is pretty good. I eat a lot of vegetables and fruit. It seems like all grains make me feel very bloated...my stomach sticks out a few inches farther than normal. I never thought of a nutrient deficiency...I'll have to look into that. I can tolerate the D...the worst part is that bloated uncomfortable feeling.

lindalee Enthusiast
lindalee
Posted

Your body cannot heal if you are not sleeping. I took melatonin when I was sleep deprived and it helped me so much. I always make chicken soup to calm things down and an epson salt bath. The magnesium in in will relax you and your muscles so you sleep better.

I am also on no grains. If grains bother you - I would not eat them.

I also eliminated corn. That bothers me.

I also avoid nightshades, soy, dairy except sourcream , butter, yogurt.

Are you drinking good water?

Hope you feel better. :)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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