Another Condition Related To Celiac

[elaine33]

  Judyin Philly said:

Welcome Elaine

Who cares what thread you come to join on..we're just glad your here.

Can you tell me what test your dr is doing to prove Leaky gut.

i'm needing to be tested for that also

Good luck

were glad you joined.

judy in philly

Hi Judy, I grew up in Media, by the way , graduated from Penncrest, and still live in Delco.

The test I am having is an intestinal permeability test. I am doing it at home. I have to drink a sugar mixture and then spend six hours collecting all my urine, then mixing it in a few test tubes and sending it back to the lab. My doctor is at the Myrna Brind Center for Integrative Medicine at Jefferson in Philly. He said they will see if I am spilling things I should not be into my urine because my gut is letting through things in bigger chunks than it should be. If this is the case, then I imagine I am going to be allergic or having to avoid a whole lot of foods until we can get this healed, if this is indeed the case. I am gathering they think wheat and/or other food allergies caused this, but this is all very new to me so I might be messing up some of the info right now.

[Judyin Philly]

  elaine33 said:

Hi Judy, I grew up in Media, by the way , graduated from Penncrest, and still live in Delco.

The test I am having is an intestinal permeability test. I am doing it at home. I have to drink a sugar mixture and then spend six hours collecting all my urine, then mixing it in a few test tubes and sending it back to the lab. My doctor is at the Myrna Brind Center for Integrative Medicine at Jefferson in Philly. He said they will see if I am spilling things I should not be into my urine because my gut is letting through things in bigger chunks than it should be. If this is the case, then I imagine I am going to be allergic or having to avoid a whole lot of foods until we can get this healed, if this is indeed the case. I am gathering they think wheat and/or other food allergies caused this, but this is all very new to me so I might be messing up some of the info right now.

Hi

Thanks for the fast rely..

Son whose 31 graduated from Penncrest also.

Wish i could remember the year..wow my brain fog..

this place at Jeff sounds great.

how did you find your way there?

Did you get a celiac disease dx from a gasto or internist or this place?

lots of questions..I've been gluten-free for 16 months and was doing so well and now seems like alot of this 'leaky gut and possible adrenal fatigue' are coming up.

thanks for the info on the test.

can you get this though you personal dr.?

judy

[debmidge]

I don't know if a GI can do what a Proctologist does.....seems like the same territory but only your GI can tell you ......

You might need to go to separate doctors after all....

We are going for a second opinion next week...

[elaine33]

this place at Jeff sounds great.

how did you find your way there?

Well my son and I had been to a ton of different purely medical doctors. Some were totally not helpful and some were trying really hard to be helpful but had no real answers for us. My sister has MS (now I'm thinking she's celiac), and she has done totally holistic therapies including dietary restrictions and has done fairly well. I know my husband is pretty leary of holistic docs, plus I haven't really worked significantly since my health problems started so I needed to find a place that took my insurance for financial reasons. I went online and googled integrative medicines and just gave it a shot. I have been pretty pleased so far.

Did you get a celiac disease dx from a gasto or internist or this place? I actually don't have a diagnosis yet, but this Dr who is an MD is nearly 100 percent that I have a leaky gut. He is going to have me take this test (am waiting on receiving the sugar compound from the pharmacy), and he sent my son to a nutritionist, who also felt I had progressed from wheat/milk allergy into leaky gut. She wants me to start on elimination diet right after I take this Mannitol test (intestinal permeability).

lots of questions..I've been gluten-free for 16 months and was doing so well and now seems like alot of this 'leaky gut and possible adrenal fatigue' are coming up.

thanks for the info on the test.

can you get this though you personal dr.? I don't think I can get this through my personal md. I only go to him for sore throats and flu shots. I am having to pay for the intestinal test but it is only $100.

Hope this helps.

[Judyin Philly]

tHANKS ELAINE

SO MUCH HELP HERE. PLEASE KEEP ME POSTED ON THIS THREAD OR IN A PM OR EMAIL FROM HERE.

HUGS

JUDY