Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy...


clockworkjoce

Recommended Posts

clockworkjoce Newbie

i've been doing some minor research into endoscopies, and i have a question for those who have had them for celiac disease. the description states that the procedure is 'minimally' invasive and does 'not have to be preformed through a natural opening', which isn't exactly descriptive. so, just to simplify, how and where do they do it? and, was the experience bad, good, or neither?

thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BostonCeliac Apprentice
i've been doing some minor research into endoscopies, and i have a question for those who have had them for celiac disease. the description states that the procedure is 'minimally' invasive and does 'not have to be preformed through a natural opening', which isn't exactly descriptive. so, just to simplify, how and where do they do it? and, was the experience bad, good, or neither?

thanks.

hey -- not sure exactly that line "not have to be performed through a natural opening" means -- weird.

I had an endoscopy fairly recently, and it was the first "surgical" procedure I have ever had. I went into the hospital and my GI doc performed it - I had met with him prior to the procedure. Anyway, went in, was very hungry since you can't eat, and they took me in the room & gave me a saline IV to hydrate, then I went into another room with my doc & a nurse & she gave me a little bit of the anesthesia, then sprayed a horrible tasting spray in the back of my throat to numb it -- then more drugs in my IV -- and I remember having to turn on my side and them putting something in my mouth to keep it open -- then I woke up in a different room about an hour later! I guess the procedure took about 15-20 minutes - they stuck a tube down my throat, went down to inspect, took a few samples to biopsy in the duodenum region - and then I guess to took a nap for a while!

It was very easy. i was a little out of it for most of the day due to the anesthesia -- and had a slightly sore throat, but was fine and out at a party that evening!

I can vaguely remember coughing durning the endo - but that's it, I was nervous but the whole thing was quick & easy - and I was very glad I did it because it confirmed my celiac!!

Good luck & welcome to this board - it's an amazing resource for information and everyone here is EXTREMELY helpful & supportive!

2kids4me Contributor

Both kids had the endoscopy and I have assisted with its use in veterinary medicine.

It [an endoscope] is a flexible tube with a camera (uses fiberoptics), it is passed down the esophagus and into the stomach where samples can be taken at "antrum" [area near the inlet to the small intestine] and then it is passed further ino the small intestine where samples of the intestine are taken with a needle like instrument.

The samples are then processed in a lab where they look at the cells.

In celiac disease, the flattenen villi are obvious visually, they still take tissue samples so they can see if there are any signs of malignancy. Untreated celiac that has gone on for years can cause scarring as well.

An experienced GI would take multiple samples so that changes in the villi are not missed.

plantime Contributor

For my endo, the doc put a tube down my throat and through my stomach to the intestine. I did not feel like it was horribly invasive, no visible marks were left, and it was started and finished the same day, as outpatient at the hospital. I slept for several hours after I returned home, but had no soreness or tenderness. I know that samples were taken for biopsy, but I didn't hurt from it. I see no problem recommending the procedure to someone else that really wants to know. It was not scary to me, since the nurse had gone over with me what to expect.

dlp252 Apprentice
i've been doing some minor research into endoscopies, and i have a question for those who have had them for celiac disease. the description states that the procedure is 'minimally' invasive and does 'not have to be preformed through a natural opening', which isn't exactly descriptive. so, just to simplify, how and where do they do it? and, was the experience bad, good, or neither?

thanks.

Hum, not sure what the "not have to be performed through a natural opening" means, lol. I've had 3 endoscopes this year...each time I was sedated (I think technically I was awake, but the nurse said it was just enough to breathe, lol) and don't actually remember the procedure at all. After sedation (in my case I had an IV each of the 3 times), they feed a thin tube with a camera at the tip down your esophagus and into the stomach then upper intestine. As I said, I have no memory of the procedure itself, but the doctor showed me the tube/camera before he started, and I had some nice glossy color pictures as souveniers, lol. Afterwards I went into a "recovery" area where I was monitored until I woke up from the sedation. I had no discomfort at any time other than a VERY SLIGHT sore throat, and the pin prick from starting the IV.

happygirl Collaborator

its also not FULL anethesia (sp?) that they use, but a heavy sedation. (to the general person, it doesn't mean to differentiate, because you are "out"...but still)

I've had two endoscopies, plus a colonoscopy, a flex sigmoidoscopy, etc etc---they aren't bad, honestly.

AmandaD Community Regular
i've been doing some minor research into endoscopies, and i have a question for those who have had them for celiac disease. the description states that the procedure is 'minimally' invasive and does 'not have to be preformed through a natural opening', which isn't exactly descriptive. so, just to simplify, how and where do they do it? and, was the experience bad, good, or neither?

thanks.

My experience was great. Got an IV, they gave me some kind of amnesia drug, I woke up three hours later like nothing had happened. Doc told me everything looked great, but that we'd have to wait for the biopsy (which was positive for celiac).

Never even had a sore throat. I wouldn't think twice about putting my kids through it either, if they ever test positive for Celiac like I did. My docs were wonderful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



clockworkjoce Newbie

thanks everyone for replying. it doesn't sound so bad. i don't know, it's a big long word and a big long tube. what can i say, the little things freak me out sometimes... :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.