Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does It Do Any Good?


Guest Kathy Ann

Recommended Posts

Guest Kathy Ann

I have multiple allergies. As a result I can't use MOST of what is on the shelf because it always has at least ONE ingredient I can't have. <_< But if companies would try to at least avoid the BIG 8 ALLERGENS and leave them out, a lot of us could enjoy more things. I see no reason why a great company with a perfect product otherwise, has to include cornstarch when there are other less allergic ones that will do just as well. That's just one example. Or why does all chocolate have to have soy lecithin when there are other emulsifiers, or cane sugar when beet sugar is less allergenic and just as cheap? Same with eggs being in things and on and on.

Does it do any good to call companies? Would they pay any attention to such a suggestion? Any of you have experience with things changing because you called? It just seems LOGICAL to me that if I owned a food company and wanted to reach the biggest niche, I would AUTOMATICALLY avoid those big allergens so I could reach the most people. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Corkdarrr Enthusiast

I think most businesses let the market dictate. And until they see a major response from the general public requesting the exclusion of major allergens, they are going to keep producing whatever is cheapest. Sad...I know. But it won't do any harm to keep on writing letters and emails and making phone calls.

I'm in school right now for HRTM - Hotel, restaurant tourism mgmt. One of the thigns that keeps coming up is brand loyalty. And I always think of Celiacs and how ever since finding out about my intolerance a few months ago, I will forever be purchasing products by Unilever, McCormick and Kraft, to name a few.

Courtney

Guest Kathy Ann

One of these days the big companies (and little ones too) are going to realize what a HUGE CAPTIVE AUDIENCE the celiac people are. When they see how loyal (by necessity) we are, they surely will conclude that catering to us just makes good marketing sense.

debmidge Rising Star

I get the impression that the companies really don't care...they do what they like anyway despite any word from the contrary. For example, Benefiber from Novartis now contains wheat in a small amount yet they claim it's gluten free. This is a change from their past formula. Now if they've been checking current events (i.e., more people being diagnosed with celiac disease than ever before, etc.) they would never have changed the formula. So who's making these decisions?

I wrote to them & got the form letter response about how they welcome comments both positive and negative (??) "They are one of the best means we have of finding out if we are meeting your needs through the products we market. Your comments are appreciated and will be shared with the appropriate departments."

Yeah, right. If this was really done, then they would NOT have added Wheat Dextrin to the formula.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,500
    • Most Online (within 30 mins)
      7,748

    HDM005
    Newest Member
    HDM005
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.