Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Gluten Issues? Thought I Might Have Ms!


Wonder 1

Recommended Posts

Wonder 1 Newbie

Hello –

I’m so glad that I found this website. You seem like a great group of people!

Over the last four years, I’ve convinced myself that I might have multiple sclerosis (MS), but now I think it’s possible I might have some sort of gluten-intolerance. I am 32year old healthy woman.

I have had the cluster of symptoms listed below, which have come and gone for periods of time over the last four years. I haven’t been able to make any associations between the GI symptoms and certain foods, but I haven't been on the lookout for them. After reading many of the posts, I think I’m going to do the Enterolab tests. Does it sound like I might have a gluten issue?

General feeling of "cloudiness" in my head, often accompanied by headaches behind my eyes

Mild feeling of dizziness

Random tinglings in my hands and feet, sometimes hands and feet are very cold

Frequent diarrhea, after very intense abdominal pains (that make me double over in bed)

Frequent bad gas (sometimes painful)

I am normal weight - not over or under.

Dx with polycystic ovarian syndrome (PCOS) 2 years ago - pregnancy through IVF treatment.

The GI symptoms do not necessarily occur during the times that I have cloudiness, dizziness, and limb tingling.

Thanks so much for your thoughts! In a wierd way, I hope I found out that I have this, so at least I can do something to help my symptoms!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator
Hello –

I’m so glad that I found this website. You seem like a great group of people!

Over the last four years, I’ve convinced myself that I might have multiple sclerosis (MS), but now I think it’s possible I might have some sort of gluten-intolerance. I am 32year old healthy woman.

I have had the cluster of symptoms listed below, which have come and gone for periods of time over the last four years. I haven’t been able to make any associations between the GI symptoms and certain foods, but I haven't been on the lookout for them. After reading many of the posts, I think I’m going to do the Enterolab tests. Does it sound like I might have a gluten issue?

General feeling of "cloudiness" in my head, often accompanied by headaches behind my eyes

Mild feeling of dizziness

Random tinglings in my hands and feet, sometimes hands and feet are very cold

Frequent diarrhea, after very intense abdominal pains (that make me double over in bed)

Frequent bad gas (sometimes painful)

I am normal weight - not over or under.

Dx with polycystic ovarian syndrome (PCOS) 2 years ago - pregnancy through IVF treatment.

The GI symptoms do not necessarily occur during the times that I have cloudiness, dizziness, and limb tingling.

Thanks so much for your thoughts! In a wierd way, I hope I found out that I have this, so at least I can do something to help my symptoms!

Hi and welcome.

I wouldn't want to attempt to diagnose you, but you certainly sound like you have symptoms that many others have on here. And I believe Celiac has been referred to as "the big mimic" as the symptoms can be so varied. Have you tried taking gluten out for a bit to see if you have a positive response? I assume if you are considering Enterolab you are not going to have a biopsy. In that case, it doesn't matter if you are eating gluten or not for the test results to be accurate. (for Enterolab) Keep reading here as well as there are so many knowledgable people here. I wish you best of luck in finding the problem and beginning to heal.

lisa

georgie Enthusiast

Not sure if I can help you or not but I had tingling legs and fatigue and it turned out to be low B12 and further testing revealed Pernicious Anaemia which is also an Autoimmune condition like Celiac. Have you been tested for low B12 ? You should have B12 around 800 or higher.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.