Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouse, Candiankaren, Mtndog I Need Your Help


theprincess

Recommended Posts

theprincess Newbie

Thanks Judy for the TB info.

I don't know what my mom shared with you guys but I have latent (thank goodness) tuberculosis. It is most likely that I caught it from volunteering for Big Brothers Big Sisters. Remember that whole karma thing...where is that!?

BTW: When my mom used to tell me about her friends on the celiac board I thought "man, she used to tell me to stay off chat rooms and NEVER give personal info out. This is sooo different" but now that I've "met" everyone I see how loving and caring you all are. I totally get why she comes here for support. She is a wonderful woman who, unfortunately, has a family that isn't always supportive of her needs (I admit, myself included). Anyway, thanks for being so loving to me and more importantly, to my Mommy.

Ashley


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Hi Ashley!

Your Mom is a beautiful person, inside and out. I am proud to call her one of my best friends, and I have never even met her! LOL! Your Mom has been there for me when I needed it and she truly has a heart of gold.

You Mom has also helped ALOT of people immensely with her knowledge and her PT background. She has improved the lives of many people on here by giving excellent advice and suggestions. She's one smart cookie! (gluten-free, of course!)

Hugs!

Karen

IrishLisa Newbie

Hi Ashley!

Welcome to the board.

Your last post is of particular interest to me, because I'm in a very similar situation myself. I've just had the coeliac panel blood tests done and go back mid Nov for the results and to schedule the appointment for my biopsy.

The most interesting thing is that I was also treated for latent TB in the past. As I was only 11 years old when this diagnosis was made, I really have no idea where or who i contracted it from. I do remeber that my little brother was also tested at the time and his skin prick test was negative. I was the only lucky one..... :unsure:

Good luck with everything

Lisa

theprincess Newbie
Your last post is of particular interest to me, because I'm in a very similar situation myself. I've just had the coeliac panel blood tests done and go back mid Nov for the results and to schedule the appointment for my biopsy.

My doc scheduled my biopsy the same day and I had the test the next week. I'm sorry that they are making you wait. I wouldn't want it dragging out!!

The most interesting thing is that I was also treated for latent TB in the past. As I was only 11 years old when this diagnosis was made, I really have no idea where or who i contracted it from. I do remeber that my little brother was also tested at the time and his skin prick test was negative. I was the only lucky one..... :unsure:

How lucky indeed. BLECK! I'll let you know if I find out anything good. Have they made you take the INH again after being treated as a child??

IrishLisa Newbie

Hi Ashley,

Unfortunately, I'm living in Spain at the moment and suffice to say that things take a little longer here....

Although it's a pain having to wait such a long time, it was my doc that suggested that I be tested - so the flip side is that at least the docs here seem open to the idea that I might have coeliac disease or at least some form of gluten intolerance.

I was prescribed INH for 12 months after the positive skin prick test, few check ups during that 12 month period, was given an a clean bill of health and my gp never mentioned it again. As I understand it, if you take the meds for the suggested period of time, usually 6-12 months, then there is no need for further treatment. At least I hope that's the case anyway!

Lisa

Judyin Philly Enthusiast

Hi Ashley

So glad you've found friends here.

We love your Mom and can't wait till she's back on line.

give her a hug for me

Love

Judy

Rusla Enthusiast

Ashley,

Your mom is a great person, her and I talk often and she is a wonderful friend. Like Karen, her and I have never met as I also live in Canada, but hopefully some day we will.

Now, I have come upon something that may have correlation to your TB case. My grandmother on my mother's side died from TB when my mother was 4 years old. My mothers sister, had no enamel on her teeth to the point you could see through them. She had them all pulled out she. She also told me she has always had problems with wheat and flours, like me, she would be spending lots of time in the bathroom

.My mother is headed for a colonoscopy soon so we will find out whether she has it or not. So far my younger brother's biopsy's came back negative.

So hopefully yours will come back negative.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.