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Down To 97 Lbs.what Is The Name Of Generic Imodium That Can Be Used?

Anne AMP

By Anne AMP
in Coping with Celiac Disease

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Anne AMP Apprentice
Anne AMP
Posted

I'm down to 97 lbs. and need help. I don't seem to absorb any food. I only eat boiled beef, chicken, greenbeens, butternut squash, baked pears and baked plumbs and I am not tolorating these. I continue with very loose stoll and diarrhea all the time. All suggestions appreciated. Thanks.

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Anne AMP Apprentice
Anne AMP
Posted
  • Author

Please help. Is it normal to have chronic diarrhea while being off off glutens, egg, soy, rice, corn & dairy for 3 weeks now?

Ursa Major Collaborator
Ursa Major
Posted

Hi Anne, and welcome to this board. I also get diarrhea from potatoes (besides all the foods you listed), so there may be intolerances there you haven't figured out yet. Besides, three weeks off gluten isn't very long, and some people take longer than that to start feeling better.

Plums act like a laxative, and might be part of your problem. Green beans are hard to digest. How did you arrive at those few foods you're eating now, did you do an elimination diet?

Anne AMP Apprentice
Anne AMP
Posted
  • Author
Hi Anne, and welcome to this board. I also get diarrhea from potatoes (besides all the foods you listed), so there may be intolerances there you haven't figured out yet. Besides, three weeks off gluten isn't very long, and some people take longer than that to start feeling better.

Plums act like a laxative, and might be part of your problem. Green beans are hard to digest. How did you arrive at those few foods you're eating now, did you do an elimination diet?

I tried to find food I could cook and remove lectins. Don't know if lectins are a problem or not . What foods are you able to eat?

TCA Contributor
TCA
Posted

You might try cooking with something called MCT (Medum chain Triglyceride) oil. It is easier to break down and can add a lot of good calories for you. We mixed it with my daughter's formula and breast milk to help her gain and it really helps. You have to get a prescription for it, but I highly recommend it. We get it through our home health agency.

happygirl Collaborator
happygirl
Posted

Anne,

I am sorry to hear you are struggling so much. I am very similar to you--I am at 100 lbs right now and have removed most (if not all) lectins from my diet....this is all recent to me (Celiac has been for 2 years, the other stuff is more recent). Make sure you are rinsing/scrubbing everything you are eating as corn (as a derivative) can be used to spray fruits, veggies, meats, etc. Even organic stuff. I might look into taking out green beans---aren't they a legume? I dont know, honestly, but they aren't on my safe list. How are you preparing your food? I can't do any fats or oils right now. I obviously don't have the answers as to what is going on, but I'm just trying to think of things that have helped me. have you read about lectins on Open Original Shared Link

Unfortunately, most doctors don't have a clue about this. PM me if I can help in any way.

Take care,

Laura

Anne AMP Apprentice
Anne AMP
Posted
  • Author
You might try cooking with something called MCT (Medum chain Triglyceride) oil. It is easier to break down and can add a lot of good calories for you. We mixed it with my daughter's formula and breast milk to help her gain and it really helps. You have to get a prescription for it, but I highly recommend it. We get it through our home health agency.

The nutritionist suggested olive oil. I think I will ask abouth the MCT. She doen't seem to be very knowledgable. Keeps suggesting that I take corn products which make me very ill.

Anne,

I am sorry to hear you are struggling so much. I am very similar to you--I am at 100 lbs right now and have removed most (if not all) lectins from my diet....this is all recent to me (Celiac has been for 2 years, the other stuff is more recent). Make sure you are rinsing/scrubbing everything you are eating as corn (as a derivative) can be used to spray fruits, veggies, meats, etc. Even organic stuff. I might look into taking out green beans---aren't they a legume? I dont know, honestly, but they aren't on my safe list. How are you preparing your food? I can't do any fats or oils right now. I obviously don't have the answers as to what is going on, but I'm just trying to think of things that have helped me. have you read about lectins on Open Original Shared Link

Unfortunately, most doctors don't have a clue about this. PM me if I can help in any way.

Take care,

Laura

Laura, please tell me what fruits and veggies you eat. Do you eat any meat or chicken. Thanks.

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happygirl Collaborator
happygirl
Posted

Anne,

Check out my signature. It gives the most updated overview. Don't do soy or canola (they are lectins!). I don't know about olive oil...it was just easier for me not to try.

I broil all my meat, (or, sometimes grill on foil over the flame), and for shrimp I will boil it.

Have you read up about corn derivatives? They are in everything and might be a problem if you haven't (I don't know, so I'm sorry if you already have!)

if not, read: www.cornallergens.com (full of great info) and check out the delphi forum for avoiding corn. it will be your best resource.

don't use iodized salt-it has corn derivatives.

even pepper bothers me. honestly, the food that is on my list is the ONLY food I am eating---no other ingredients whatsoever.

and, i'm sorry to say this, but most nutrionists, once you get to this point, have no clue.

jknnej Collaborator
jknnej
Posted

Sometimes eating high fiber foods like veggies make your D worse...I would stick to bland foods like plain chicken and rice for awhile and see if your body can tolerate that.

Fruits and veggies are so healthy but NOT necessarily good for someone who has bowel issues. Usually if you find out what's wrong you can add them back in later.

I am so sorry you're feeling this way-have the doctors performed tests on you; colonoscopies and such? I assume they have if you are down to 97 lbs. and I assume they can't help you?

Anne AMP Apprentice
Anne AMP
Posted
  • Author
Sometimes eating high fiber foods like veggies make your D worse...I would stick to bland foods like plain chicken and rice for awhile and see if your body can tolerate that.

Fruits and veggies are so healthy but NOT necessarily good for someone who has bowel issues. Usually if you find out what's wrong you can add them back in later.

I am so sorry you're feeling this way-have the doctors performed tests on you; colonoscopies and such? I assume they have if you are down to 97 lbs. and I assume they can't help you?

I had a CT scan last week. Everything looked normal. I can't eat rice. I get a gluten like reaction. They are planning a colonoscopy/ upper endoscopy for next Tuesday. I don't think I'm up to it though. I would have to drink oral phosphate soda and no food for the day. I don't think I am strong enough. I wonder if the chicken and beef are giving me the problems? I started eating vegetarian two years ago because I would get D sometimes when I ate beef.

jknnej Collaborator
jknnej
Posted

Hmmm...have you had a food allergy panel done? If not, I would do that asap.

Talk to your doctor about your strength. You really need to get those tests done; especially with your symptoms. You could have something worse than a food allergy and those tests will tell them for sure.

Wow, so I'm not sure what you can eat if all of those things bother you....What happens when you eat gluten free bread, nuts, corn, potato? Do they make you sick as well?

Also, do you have any problems with acid reflux or anxiety? Both of these used to cause MAJOR digestive upset for me, regardless of what I ate. Once I got them under control I got healthier myself and gained some weight.

Ummm, what else? Could you have a candida issue or a leaky gut problem? Both of those could make you terribly ill as well. I doubt you'd have a candida issue, though, with what you explained your diet to be.

Lastly, it takes some people a long time to feel better once going gluten free, so hang in there. Also, if hidden gluten is getting into your diet via make-up, old pots and pans, soap, products with vinegar,etc, it could be causing reactions. Once you go gluten free even tiny reactions seem to make us very ill.

Budew Rookie
Budew
Posted

Speaking of make up? What brands are safe?

I too struggle to keep my weight up.

I was frustrated at work by co-worker's lack of compassion.

They thought I was so lucky. Lots of folks only have compassion for people who are overweight.

kimjoy24 Apprentice
kimjoy24
Posted

I agree not too many people understand that being severely underweight is an actual health issue. I don't have any specific answers for Anne, but would just like to give a glimmer of hope. When I was at my worst, I dropped down to 105 lbs (I'm over 5'8" tall). All of my clothes just sagged on me, I had to wear a belt with everything, for fear that my pants would fall down in public. Then I started the gluten-free diet in earnest, no deliberate digestion of gluten, and slowly but surely, now almost a year and a half later, I'm up to 140 lbs. I'm actually starting to do additional exercises in addition to my daily walking because I'm getting a little flabby in the stomach area.

I never thought I would weigh this much in my life, not that I'm saying it's a bad thing, I'm actually at a normal weight now. But after a decade of suffering from digestive issues, suffering from malabsorption, I just had no idea what healthy was like.

So there is hope, just try to focus on improving little by little, day by day. At some point it just becomes a way of life.

Budew Rookie
Budew
Posted

Going gluten-free has stabalized my weight too. Now instead of dramatic changes they are gradual and I can focus on calories to keep it in check. Before gluten-free high calories had no effect.

5'6" 112 lbs goal 125

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