Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Down To 97 Lbs.what Is The Name Of Generic Imodium That Can Be Used?


Anne AMP

Recommended Posts

Anne AMP Apprentice

I'm down to 97 lbs. and need help. I don't seem to absorb any food. I only eat boiled beef, chicken, greenbeens, butternut squash, baked pears and baked plumbs and I am not tolorating these. I continue with very loose stoll and diarrhea all the time. All suggestions appreciated. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Anne AMP Apprentice

Please help. Is it normal to have chronic diarrhea while being off off glutens, egg, soy, rice, corn & dairy for 3 weeks now?

Ursa Major Collaborator

Hi Anne, and welcome to this board. I also get diarrhea from potatoes (besides all the foods you listed), so there may be intolerances there you haven't figured out yet. Besides, three weeks off gluten isn't very long, and some people take longer than that to start feeling better.

Plums act like a laxative, and might be part of your problem. Green beans are hard to digest. How did you arrive at those few foods you're eating now, did you do an elimination diet?

Anne AMP Apprentice
Hi Anne, and welcome to this board. I also get diarrhea from potatoes (besides all the foods you listed), so there may be intolerances there you haven't figured out yet. Besides, three weeks off gluten isn't very long, and some people take longer than that to start feeling better.

Plums act like a laxative, and might be part of your problem. Green beans are hard to digest. How did you arrive at those few foods you're eating now, did you do an elimination diet?

I tried to find food I could cook and remove lectins. Don't know if lectins are a problem or not . What foods are you able to eat?

TCA Contributor

You might try cooking with something called MCT (Medum chain Triglyceride) oil. It is easier to break down and can add a lot of good calories for you. We mixed it with my daughter's formula and breast milk to help her gain and it really helps. You have to get a prescription for it, but I highly recommend it. We get it through our home health agency.

happygirl Collaborator

Anne,

I am sorry to hear you are struggling so much. I am very similar to you--I am at 100 lbs right now and have removed most (if not all) lectins from my diet....this is all recent to me (Celiac has been for 2 years, the other stuff is more recent). Make sure you are rinsing/scrubbing everything you are eating as corn (as a derivative) can be used to spray fruits, veggies, meats, etc. Even organic stuff. I might look into taking out green beans---aren't they a legume? I dont know, honestly, but they aren't on my safe list. How are you preparing your food? I can't do any fats or oils right now. I obviously don't have the answers as to what is going on, but I'm just trying to think of things that have helped me. have you read about lectins on Open Original Shared Link

Unfortunately, most doctors don't have a clue about this. PM me if I can help in any way.

Take care,

Laura

Anne AMP Apprentice
You might try cooking with something called MCT (Medum chain Triglyceride) oil. It is easier to break down and can add a lot of good calories for you. We mixed it with my daughter's formula and breast milk to help her gain and it really helps. You have to get a prescription for it, but I highly recommend it. We get it through our home health agency.

The nutritionist suggested olive oil. I think I will ask abouth the MCT. She doen't seem to be very knowledgable. Keeps suggesting that I take corn products which make me very ill.

Anne,

I am sorry to hear you are struggling so much. I am very similar to you--I am at 100 lbs right now and have removed most (if not all) lectins from my diet....this is all recent to me (Celiac has been for 2 years, the other stuff is more recent). Make sure you are rinsing/scrubbing everything you are eating as corn (as a derivative) can be used to spray fruits, veggies, meats, etc. Even organic stuff. I might look into taking out green beans---aren't they a legume? I dont know, honestly, but they aren't on my safe list. How are you preparing your food? I can't do any fats or oils right now. I obviously don't have the answers as to what is going on, but I'm just trying to think of things that have helped me. have you read about lectins on Open Original Shared Link

Unfortunately, most doctors don't have a clue about this. PM me if I can help in any way.

Take care,

Laura

Laura, please tell me what fruits and veggies you eat. Do you eat any meat or chicken. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Anne,

Check out my signature. It gives the most updated overview. Don't do soy or canola (they are lectins!). I don't know about olive oil...it was just easier for me not to try.

I broil all my meat, (or, sometimes grill on foil over the flame), and for shrimp I will boil it.

Have you read up about corn derivatives? They are in everything and might be a problem if you haven't (I don't know, so I'm sorry if you already have!)

if not, read: www.cornallergens.com (full of great info) and check out the delphi forum for avoiding corn. it will be your best resource.

don't use iodized salt-it has corn derivatives.

even pepper bothers me. honestly, the food that is on my list is the ONLY food I am eating---no other ingredients whatsoever.

and, i'm sorry to say this, but most nutrionists, once you get to this point, have no clue.

jknnej Collaborator

Sometimes eating high fiber foods like veggies make your D worse...I would stick to bland foods like plain chicken and rice for awhile and see if your body can tolerate that.

Fruits and veggies are so healthy but NOT necessarily good for someone who has bowel issues. Usually if you find out what's wrong you can add them back in later.

I am so sorry you're feeling this way-have the doctors performed tests on you; colonoscopies and such? I assume they have if you are down to 97 lbs. and I assume they can't help you?

Anne AMP Apprentice
Sometimes eating high fiber foods like veggies make your D worse...I would stick to bland foods like plain chicken and rice for awhile and see if your body can tolerate that.

Fruits and veggies are so healthy but NOT necessarily good for someone who has bowel issues. Usually if you find out what's wrong you can add them back in later.

I am so sorry you're feeling this way-have the doctors performed tests on you; colonoscopies and such? I assume they have if you are down to 97 lbs. and I assume they can't help you?

I had a CT scan last week. Everything looked normal. I can't eat rice. I get a gluten like reaction. They are planning a colonoscopy/ upper endoscopy for next Tuesday. I don't think I'm up to it though. I would have to drink oral phosphate soda and no food for the day. I don't think I am strong enough. I wonder if the chicken and beef are giving me the problems? I started eating vegetarian two years ago because I would get D sometimes when I ate beef.

jknnej Collaborator

Hmmm...have you had a food allergy panel done? If not, I would do that asap.

Talk to your doctor about your strength. You really need to get those tests done; especially with your symptoms. You could have something worse than a food allergy and those tests will tell them for sure.

Wow, so I'm not sure what you can eat if all of those things bother you....What happens when you eat gluten free bread, nuts, corn, potato? Do they make you sick as well?

Also, do you have any problems with acid reflux or anxiety? Both of these used to cause MAJOR digestive upset for me, regardless of what I ate. Once I got them under control I got healthier myself and gained some weight.

Ummm, what else? Could you have a candida issue or a leaky gut problem? Both of those could make you terribly ill as well. I doubt you'd have a candida issue, though, with what you explained your diet to be.

Lastly, it takes some people a long time to feel better once going gluten free, so hang in there. Also, if hidden gluten is getting into your diet via make-up, old pots and pans, soap, products with vinegar,etc, it could be causing reactions. Once you go gluten free even tiny reactions seem to make us very ill.

Budew Rookie

Speaking of make up? What brands are safe?

I too struggle to keep my weight up.

I was frustrated at work by co-worker's lack of compassion.

They thought I was so lucky. Lots of folks only have compassion for people who are overweight.

kimjoy24 Apprentice

I agree not too many people understand that being severely underweight is an actual health issue. I don't have any specific answers for Anne, but would just like to give a glimmer of hope. When I was at my worst, I dropped down to 105 lbs (I'm over 5'8" tall). All of my clothes just sagged on me, I had to wear a belt with everything, for fear that my pants would fall down in public. Then I started the gluten-free diet in earnest, no deliberate digestion of gluten, and slowly but surely, now almost a year and a half later, I'm up to 140 lbs. I'm actually starting to do additional exercises in addition to my daily walking because I'm getting a little flabby in the stomach area.

I never thought I would weigh this much in my life, not that I'm saying it's a bad thing, I'm actually at a normal weight now. But after a decade of suffering from digestive issues, suffering from malabsorption, I just had no idea what healthy was like.

So there is hope, just try to focus on improving little by little, day by day. At some point it just becomes a way of life.

Budew Rookie

Going gluten-free has stabalized my weight too. Now instead of dramatic changes they are gradual and I can focus on calories to keep it in check. Before gluten-free high calories had no effect.

5'6" 112 lbs goal 125

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,974
    • Most Online (within 30 mins)
      7,748

    LRB
    Newest Member
    LRB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.