Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutening Symptoms


slpinsd

Recommended Posts

slpinsd Contributor

OK- I've been gluten-free for about 9 months now. I have made remarkable improvement in digestion and found that I can now handle dairy and many other things I previously reacted to. But sometimes, when I am doing really well- I go into denial- due to the neg. blood and biopsy- I wonder if this whole thing is all a big fluke and if it was something else causing my symptoms originally- like Candida, bacterial overgrowth- that has healed and I really CAN tolerate gluten.

I know you're all going to scream at me, but I was at a bridal shower the other day and managed to not eat hardly anything, because all the food was wheat based (can you say Chinese food?) But there were these tantillizing cupcakes and I thought, well- this could be an experiment to give me confirmation- so I ate a cupcake. It wasn't so bad. Some rumbles here and there but is was soon over. So then I got on this gluten binge. And I thought, I'd already ruined it today, so I would eat some more and see what happens. So on my way home I ate a gyro, and then 3 wheat-laden chocolate chip cookies. I got gut rumbles, some gas, and belching. Then I got the all-familiar stomach ache- like something is poking me inside- below the belly. A dull, pressureful constant pain that kind of feels like hunger, but I just ate. So it's confirmed for me again- I am gluten intolerant- I won't do it again.

That was 5 days ago. My question is- now when I eat anything (things that are Gluten-Free), I am getting the same symptoms. Last night, I ate some Pamela's Brownies that I made from a mix and I got a strong reaction- immediate rumbling, and stomach poking that I began to think I was glutened from them. These past few days, I react to ice cream again. My question is- what is actually happening that makes you react to everything you eat after getting glutened? Does the gluten have to be damaging your intestines? Or is the gluten just inflaming your gut which takes awhile to calm down? Can you get a leaky gut again that quickly after it has healed? For instance- my "lactose intolerance" appears to have vanished- (which leads me to believe my villi WERE previously damaged-but healed) but seemed to come back after one bad glutening. How long do your glutening symptoms last?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacgirls Apprentice

I was recently glutened from cc at PF Chang's and noticed my stomach hurt after eating for a few days. It took me about 10 days to feel normal again. I'm as sure as I can be that everything else I ate was gluten-free. I'm thinking it just takes that long to get over it for me.

eleep Enthusiast

I suspect it's the gut inflammation -- it takes a while for things to calm down. My reactions seem to be delayed by a day or two in any case and they don't "calm" very rapidly -- the GI issues kind of clear up a bit with a does of Immodium, but it takes a couple of weeks for me to feel right again -- and the GI stuff will flare up again on and off -- I think this happens when I don't baby myself in the recovery phase and let myself go ahead and have that cup of coffee, glass of wine or something else that's going to irritate my stomach somewhat. Also, if you think in terms of the autoimmune response, the immune system doesn't just shut itself off automatically -- so it takes a while for your body to get back in balance.

tarnalberry Community Regular

Takes me a full week to recover, and I'll have intestinal pain, on and off, that whole time.

Budew Rookie

I don't usually react to gluten but follow the diet very strictly. Like you I tested it. I ate vegetarian chicken nuggets. Gluten is the meat substitute. I miss those products. It is the only reaction I ever had and it lasted for days. I could not even drink water for a couple days afterward without being sick.

Mom's has had celiac disease for 50 years. I ask her what each exposer does. She thinks it is like picking a scab. Every exposer delays healing.

kbtoyssni Contributor

Well I guess you don't have to wonder if gluten is an issue now! I hope you feel better soon. It usually takes me two weeks to feel better after a glutening. During those two weeks everything upsets my stomach, and it looks like that's happening to you, too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.