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Sooo Exhausted


Anteau25

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Anteau25 Apprentice

Over the past couple years I haven't been able to sleep through the night. I would wake up at least 2 times and sometimes every half hour each night. I was tired all the time, and it just got worse. The thing is that about 2 weeks after I started the gluten free diet I slept 9 hours straight through. Now I am sleeping the whole night through most nights. The problem is that I am still so tired. Last week I slept from 11pm to 11 am, and I was ready to go back to bed 2 hours after I woke up. I never feel refreshed and don't feel like I have much energy. Does anyone have any suggestions as to what is wrong? I am always commenting on how tired I am, so my family/ friends keep suggesting that maybe I'm depressed. Although I do have alot to be depressed about, I know I'm not. I am optimistic and positive. I know there is definately something wrong. Is there any bloodwork that I should ask my dr for? Any suggestions or info would be very much appreciated. Thanks.


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clairew Newbie

Hi im very new here and very newly diagnosed. I have anemia which is associated with celiac, and that makes you very exhausted along with paeleness of skin and a tendancy to be cold amonst other things. You could ask him to check your full blood count.

I hope things get better for you.

Takr Care Claire.

Canadian Karen Community Regular

I am in the same boat as you are......

Have you had your thyroid checked? Perhaps you are hypothyroid. Also, I am really looking into adrenal fatigue and adrenal exhaustion as the cause of my continued fatigue. There was a link posted on here about it and it was VERY interesting;

www.stopthethyroidmadness.com

Another possibility is anemia, as mentioned. I also suffer from chronic anemia.

Karen

CarlaB Enthusiast

I suffer anemia, low thyroid and adrenal fatigue. The thyroid and adrenal fatigue are related. If your cbc/iron blood work comes out normal, google adrenal fatigue -- it's very common for those who have been under the stress of being ill.

dlp252 Apprentice

I'm also exploring the adrenal fatigue thing...I too don't ever feel rested even when I DO sleep...this week haven't been able to sleep at all which is just making it worse. Fortunately I have a new group of doctors who really want to get to the bottom of things (they DO think it may be adrenal though).

Adelle Enthusiast

I have sleep apnea, and I would suggest getting tested for that and other sleep problems. I would say get all of the blood tests (anemia, thyroid etc) u can first, but if u don't find anything, it could be worth looking into. The testing sux, but if u have a sleep disorder, there is a ton they can do to help!

Nantzie Collaborator

There were several surprising things that I never would have thought might be all connected to each other. For me, one of the things that went away was my insomnia. I had insomnia for years. Mine was the not being able to fall asleep variety rather than the waking up after falling asleep. I literally remember being four years old and crying at night because I was so tired but I couldn't fall asleep. As I got older, I chose jobs where I wouldn't have to work in the mornings. Because once I did fall asleep I could easily sleep 12 hours straight and STILL wake up exhausted.

I went gluten-free after negative blood tests and negative biopsy. Now I just FALL asleep. I pretty much turn over, close my eyes and just fall asleep. And when I wake up in the morning (!!!) I'm actually awake with no thought as to how long I'm going to have to stay awake until I get a chance to take a nap. I also wake up on my own after about 8 hours.

If I get glutened, my brain just won't shut off and I experience the same type of insomnia that I had had since I could remember.

I hope you find some answers for your insomnia.

Nancy


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Anteau25 Apprentice

Hey. Thanks for the replies. I do get my thyroid checked regularly because I'm a type1 diabetic. I will be seeing my endocrinologist on the 31st, so I'll be getting my usual bloodwork done. I will discuss anemia, adrenal fatigue, etc. with her. HOPEFULLY I will get some answers right away instead of another wild goose chase!

BRUMI1968 Collaborator

In Chinese medicine, different types of insomnia have diffferent causes: waking up in the night can be your liver. Just another viewpoint.

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    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
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      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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