Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sooo Exhausted


Anteau25

Recommended Posts

Anteau25 Apprentice

Over the past couple years I haven't been able to sleep through the night. I would wake up at least 2 times and sometimes every half hour each night. I was tired all the time, and it just got worse. The thing is that about 2 weeks after I started the gluten free diet I slept 9 hours straight through. Now I am sleeping the whole night through most nights. The problem is that I am still so tired. Last week I slept from 11pm to 11 am, and I was ready to go back to bed 2 hours after I woke up. I never feel refreshed and don't feel like I have much energy. Does anyone have any suggestions as to what is wrong? I am always commenting on how tired I am, so my family/ friends keep suggesting that maybe I'm depressed. Although I do have alot to be depressed about, I know I'm not. I am optimistic and positive. I know there is definately something wrong. Is there any bloodwork that I should ask my dr for? Any suggestions or info would be very much appreciated. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



clairew Newbie

Hi im very new here and very newly diagnosed. I have anemia which is associated with celiac, and that makes you very exhausted along with paeleness of skin and a tendancy to be cold amonst other things. You could ask him to check your full blood count.

I hope things get better for you.

Takr Care Claire.

Canadian Karen Community Regular

I am in the same boat as you are......

Have you had your thyroid checked? Perhaps you are hypothyroid. Also, I am really looking into adrenal fatigue and adrenal exhaustion as the cause of my continued fatigue. There was a link posted on here about it and it was VERY interesting;

www.stopthethyroidmadness.com

Another possibility is anemia, as mentioned. I also suffer from chronic anemia.

Karen

CarlaB Enthusiast

I suffer anemia, low thyroid and adrenal fatigue. The thyroid and adrenal fatigue are related. If your cbc/iron blood work comes out normal, google adrenal fatigue -- it's very common for those who have been under the stress of being ill.

dlp252 Apprentice

I'm also exploring the adrenal fatigue thing...I too don't ever feel rested even when I DO sleep...this week haven't been able to sleep at all which is just making it worse. Fortunately I have a new group of doctors who really want to get to the bottom of things (they DO think it may be adrenal though).

Adelle Enthusiast

I have sleep apnea, and I would suggest getting tested for that and other sleep problems. I would say get all of the blood tests (anemia, thyroid etc) u can first, but if u don't find anything, it could be worth looking into. The testing sux, but if u have a sleep disorder, there is a ton they can do to help!

Nantzie Collaborator

There were several surprising things that I never would have thought might be all connected to each other. For me, one of the things that went away was my insomnia. I had insomnia for years. Mine was the not being able to fall asleep variety rather than the waking up after falling asleep. I literally remember being four years old and crying at night because I was so tired but I couldn't fall asleep. As I got older, I chose jobs where I wouldn't have to work in the mornings. Because once I did fall asleep I could easily sleep 12 hours straight and STILL wake up exhausted.

I went gluten-free after negative blood tests and negative biopsy. Now I just FALL asleep. I pretty much turn over, close my eyes and just fall asleep. And when I wake up in the morning (!!!) I'm actually awake with no thought as to how long I'm going to have to stay awake until I get a chance to take a nap. I also wake up on my own after about 8 hours.

If I get glutened, my brain just won't shut off and I experience the same type of insomnia that I had had since I could remember.

I hope you find some answers for your insomnia.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Anteau25 Apprentice

Hey. Thanks for the replies. I do get my thyroid checked regularly because I'm a type1 diabetic. I will be seeing my endocrinologist on the 31st, so I'll be getting my usual bloodwork done. I will discuss anemia, adrenal fatigue, etc. with her. HOPEFULLY I will get some answers right away instead of another wild goose chase!

BRUMI1968 Collaborator

In Chinese medicine, different types of insomnia have diffferent causes: waking up in the night can be your liver. Just another viewpoint.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,583
    • Most Online (within 30 mins)
      7,748

    Caleb.rice
    Newest Member
    Caleb.rice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.