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What Do You Do?

Terri-Anne

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Terri-Anne Apprentice
Terri-Anne
Posted

Are there specific moisturizer creams like Vaseline Intensive care that are better than others, or unsafe due to wheat content? Also what does anyone know about Oil of Olay moisturizing body wash?

My son has been coming out of the tub, really quite red, (no, it is NOT from the water temperature being too warm). We heat with wood and the air/environment in our house is quite dry and tough on delicate sensitive skin. I personally use Olay body wash to keep my own skin moist enough to not itch, however I think this may be causing a problem for my son.

His skin seems quite dry at times, especially after an accidental wheat ingestion and reaction, so I am unsure of what to turn to, to use for him.

Any suggestions you may have would be appreciated.

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angel-jd1 Community Regular
angel-jd1
Posted

My parents heat with wood....we keep a humidifier running 24/7!! It really helps.

-Jessica :rolleyes:

seeking-wholeness Explorer
seeking-wholeness
Posted

I have used Johnson & Johnson 24-hour soothing body lotion (or something like that) for myself and my kids, and I haven't noticed any reactions to it.

There is a post regarding Oil of Olay (under gluten-free Products) that implies that traces of gluten MAY be found in the fragrances used in the products (which are proprietary, of course), but that other sources of gluten would be declared on the label.

I hope this helps!

tarnalberry Community Regular
tarnalberry
Posted

You could give him a bit of a rub down with some oil (like jojoba or almond) right after coming out of the tub. (Do it _right_ after, as it will help retain the moisture that his skin has so far sucked up.)

I also found aloe vera helpful when my hands were getting very dry and cracking. I had to use it a lot, but it's non-irritating...

  • 1 month later...
Lagomom Newbie
Lagomom
Posted

For general dry skin and lips, we use olive oil. My 11 yr. old has to use a Rx cream to clear up his dry skin, as his starts with a small patch which grows if we don't catch it quickly enough.

Libby.

AZ

5 of 6 w/celiac disease

flagbabyds Collaborator
flagbabyds
Posted

Vaseline intensive care is not gluten-free it gives me horrible blisters and we called them and they said it "could no be guaranteed..." so i use cetaphil which is good for dry skin and the soap is really moisturizing...

trcrampton Newbie
trcrampton
Posted

I use Calendula First Aid cream from California Baby for our kids. It works great. They have many gluten free products free of harmful chemicals too. Downside..it's pretty expensive. They have a website www.californiababy.com. I also sometimes just use coconut oil that I keep in our pantry for cooking.

Traci

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wclemens Newbie
wclemens
Posted

Terri-Anne, I have used Suave shampoo and conditioner for so many years, and have done so well with it, that when I began bathing my infant grandson who has Celiac. I watered down the shampoo and used it in his bath water and as his shampoo.

It is soothing, soft, and gentle. He continues to have soft, lovely, olive skin, and he smells SO GOOD! Welda

Terri-Anne Apprentice
Terri-Anne
Posted
  • Author

Thanks to everyone for your replies. I don't quite understand why an ingestion related problem can be affected by things which remain external to the digestive system, especially in the case of celiac folks with enzyme problems, but I realize they do.

Thanks for the Suave tip, as I've been struggling with a good shampoo for a couple of years with my little fellow. I will be sure to try it with Logie.

:D

Guest LisaB
Guest LisaB
Posted

Here is another angle, I have had very dry/cracking skin this year, I started taking Pantothenic Acid (B5) for my acne (yes, I have dry skin AND acne :blink: but it makes sense when they are both due to lack of fat metabolism) and my skin is now moist and soft and my acne is clearing up. Experts will tell you that it was long thought that B5 was not a needed supplement, as it is readily available in our everyday diet....but when you have an absorbtion problem, obviously your not getting it. The levels they recommend for acne are very high (I have been taking fifteen 500mg capsules a day, divided up thru the day) so it doesn't hurt to take whatever amount is needed (within reason) to keep your skin in good shape.

This is the good stuff they put in skin care and hair care products to soften and add strength and body, but trust me it works better inside than out! In my research it was stated that no B vitamin should be taken in high doses all along, so a good multi B should be taken too, something that Celiac patients often benefit from anyway.

  • 2 years later...
vampella Contributor
vampella
Posted

Burt's bee's makes great products.

I use baby bee buttermilk lotion for senditive skin of all ages for my DD. I get it at the health food stores.

Char

vampella Contributor
vampella
Posted

ya just noticed that date...duh blonde moment LOL NEVERMIND

Char

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    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
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      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
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