Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spleen Inflammation With Accidental Gluten?


beelzebubble

Recommended Posts

beelzebubble Contributor

i've noticed that when i accidentally ingest gluten i get a tenderness on my left side right where my spleen should be. do you think it's possible that gluten could cause my spleen to become irritated? i know that it's part of your immune system...

any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

It could be.... I think the spleen and the stomach lie at about the same level, though, so it could be stomach discomfort you're feeling. I don't really know. I'm not even sure, actually, whether the spleen lies in front of or behind the stomach, although I am inclined to place it in front, just behind the ribs. That's a fascinating question you've asked!

natalieb Rookie

Hi, I read your comment about the spleen and it was like you described my exact pain. For seven years prior to being diagnosed with celiac disease I suffered from that pain and it can be gnawing. It is in the upper left quadrant. I believe that what you are feeling is your duodenum. Behing your duodenum is your spleen(I believe). Your stomach opens into your duodenum and my doc told me it can get inflamed. I was always told that I had duodenitis when having an endoscopy. The pain is out of this world when I ingest gluten. My old general physician told me 7 years ago when I complained of that pain that most "depressed" women get a pain in their upper left quadrant. What a crock! If I only knew then what I know now. I do get that pain and I understand 100%. Oh, sometimes, it also goes around the side and back, does yours? It always is on the left though.

RJARED Newbie

I recently started having pain in my left side and going around to my back. Happens a few inches above my waist - I'm high-waisted. Seems to happen if I accidentally eat gluten. I thought it was a pulled muscle, but not reason for it. It had occured to me that it might be my spleen, but your question made me think about it again. Interesting....

beelzebubble Contributor

i'm glad that other people have had similar things. as far as whether or not it is my duodenum, i don't think so. it's a little too low. i have that too from time to time, when i get glutenized (heh), this is slightly lower and slightly to the left of that pain. i thought for a while that i might have a cracked rib or something, if that helps you understand where the pain is. it does wrap around, but not all the way to the back.

  • 5 years later...
0GlutenGirl Newbie

I have been wondering if the pain in my side is related to gluten intolerance. I have been gluten free for just over two months and my health is much improved. However, I often get a pain on my left side above my waist. When it is bad, it circles around the left side of my back. It can be extremely painful. The odd thing is, once I eat a substantial meal it always gets better. If I allow myself to go without food, I feel the pain starting, and it will get worse until I eat. I know I am not the only one who gets this pain because others are reporting the same type of pain in the same place. I would think spleen because of where the pain is, but why does it go away when I eat? I will make an appointment with my doctor. Thank you for sharing your experiences. This is very helpful for me.

ravenwoodglass Mentor
I have been wondering if the pain in my side is related to gluten intolerance. I have been gluten free for just over two months and my health is much improved. However, I often get a pain on my left side above my waist. When it is bad, it circles around the left side of my back. It can be extremely painful. The odd thing is, once I eat a substantial meal it always gets better. If I allow myself to go without food, I feel the pain starting, and it will get worse until I eat. I know I am not the only one who gets this pain because others are reporting the same type of pain in the same place. I would think spleen because of where the pain is, but why does it go away when I eat? I will make an appointment with my doctor. Thank you for sharing your experiences. This is very helpful for me.

If the pain goes away when you eat I wonder if it is stomach pain from perhaps excess acid with no food to digest. Have you tried eating more frequently with smaller meals?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

It's worth remembering that the abdomen is badly innervated and where you feel the pain may not be where it's coming from. Think about heart attacks - you feel the pain down your arm or in your jaw.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.