Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spleen Inflammation With Accidental Gluten?

beelzebubble

By beelzebubble
in Related Issues & Disorders

Recommended Posts

beelzebubble Contributor
beelzebubble
Posted

i've noticed that when i accidentally ingest gluten i get a tenderness on my left side right where my spleen should be. do you think it's possible that gluten could cause my spleen to become irritated? i know that it's part of your immune system...

any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


seeking-wholeness Explorer
seeking-wholeness
Posted

It could be.... I think the spleen and the stomach lie at about the same level, though, so it could be stomach discomfort you're feeling. I don't really know. I'm not even sure, actually, whether the spleen lies in front of or behind the stomach, although I am inclined to place it in front, just behind the ribs. That's a fascinating question you've asked!

natalieb Rookie
natalieb
Posted

Hi, I read your comment about the spleen and it was like you described my exact pain. For seven years prior to being diagnosed with celiac disease I suffered from that pain and it can be gnawing. It is in the upper left quadrant. I believe that what you are feeling is your duodenum. Behing your duodenum is your spleen(I believe). Your stomach opens into your duodenum and my doc told me it can get inflamed. I was always told that I had duodenitis when having an endoscopy. The pain is out of this world when I ingest gluten. My old general physician told me 7 years ago when I complained of that pain that most "depressed" women get a pain in their upper left quadrant. What a crock! If I only knew then what I know now. I do get that pain and I understand 100%. Oh, sometimes, it also goes around the side and back, does yours? It always is on the left though.

RJARED Newbie
RJARED
Posted

I recently started having pain in my left side and going around to my back. Happens a few inches above my waist - I'm high-waisted. Seems to happen if I accidentally eat gluten. I thought it was a pulled muscle, but not reason for it. It had occured to me that it might be my spleen, but your question made me think about it again. Interesting....

beelzebubble Contributor
beelzebubble
Posted
  • Author

i'm glad that other people have had similar things. as far as whether or not it is my duodenum, i don't think so. it's a little too low. i have that too from time to time, when i get glutenized (heh), this is slightly lower and slightly to the left of that pain. i thought for a while that i might have a cracked rib or something, if that helps you understand where the pain is. it does wrap around, but not all the way to the back.

  • 5 years later...
0GlutenGirl Newbie
0GlutenGirl
Posted

I have been wondering if the pain in my side is related to gluten intolerance. I have been gluten free for just over two months and my health is much improved. However, I often get a pain on my left side above my waist. When it is bad, it circles around the left side of my back. It can be extremely painful. The odd thing is, once I eat a substantial meal it always gets better. If I allow myself to go without food, I feel the pain starting, and it will get worse until I eat. I know I am not the only one who gets this pain because others are reporting the same type of pain in the same place. I would think spleen because of where the pain is, but why does it go away when I eat? I will make an appointment with my doctor. Thank you for sharing your experiences. This is very helpful for me.

ravenwoodglass Mentor
ravenwoodglass
Posted
I have been wondering if the pain in my side is related to gluten intolerance. I have been gluten free for just over two months and my health is much improved. However, I often get a pain on my left side above my waist. When it is bad, it circles around the left side of my back. It can be extremely painful. The odd thing is, once I eat a substantial meal it always gets better. If I allow myself to go without food, I feel the pain starting, and it will get worse until I eat. I know I am not the only one who gets this pain because others are reporting the same type of pain in the same place. I would think spleen because of where the pain is, but why does it go away when I eat? I will make an appointment with my doctor. Thank you for sharing your experiences. This is very helpful for me.

If the pain goes away when you eat I wonder if it is stomach pain from perhaps excess acid with no food to digest. Have you tried eating more frequently with smaller meals?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

It's worth remembering that the abdomen is badly innervated and where you feel the pain may not be where it's coming from. Think about heart attacks - you feel the pain down your arm or in your jaw.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,439
    • Most Online (within 30 mins)
      7,748
    AGordon410
    Newest Member
    AGordon410
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By Scott Adams · Posted

      Thank you so much for sharing your story with such honesty and detail. Please know that you are not alone in this struggle, and your experience, while incredibly challenging, is more common than those "gluten-free miracle" stories on social media would have you believe. It's completely understandable to feel isolated, but your diligence in tracking your symptoms, following up with scopes, and working with professionals is truly commendable. It's encouraging that your villi have healed, which proves you are successfully avoiding the large-scale damage of gluten; however, it's clear your immune system remains in a heightened state of alert. Your intense reaction to the quinoa flakes is a classic sign of this hypersensitivity. Given the reputable brand, it's highly unlikely to be gluten cross-contact. It's much more probable that you are reacting to the quinoa itself—perhaps due to a separate intolerance, its saponin content (which can irritate some sensitive guts), or cross-reactivity, where your immune system mistakes similar protein structures for gluten. Your nutritionist's plan for a simplified, grain-free (except rice) baseline is an excellent strategy. The goal is to calm your nervous and immune systems down completely before slowly testing individual foods, like avocado or even quinoa in its whole form, to identify the true triggers. Remember, healing from years of damage takes time, and setbacks are part of the journey. Be kind to yourself; you are doing everything right by continuing to investigate and advocate for your health. Your path to feeling better may be more complex, but it is absolutely valid.
    • Scott Adams
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Scott Adams · Posted

      When you are first diagnosed it is very normal to feel overwhelmed and depressed about the vast dietary changes that a 100% gluten-free diet entails. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. There are a couple of things that can help you feel like you have "regained control," and the two that I recommend are learning to read ingredient labels so that you can shop with confidence, and the other is learning to become a good cook (if you aren't already). If you can master these two, then you have regained control of your diet, and can eat safely and recover. To help this site has extensive recipes and cooking sections: https://www.celiac.com/celiac-disease/gluten-free-recipes/ https://www.celiac.com/celiac-disease/gluten-free-cooking/ The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.        
    • Scott Adams
      bread

      By Scott Adams · Posted

      Thanks for sharing this! Bread machines are still the way to go if you want outstanding gluten-free breads.
    • Scott Adams
      Major Glutening

      By Scott Adams · Posted

      What you've described is every celiac's nightmare, and it's very frustrating to be failed by a product that was specifically labeled as safe. It would be great to know which product it was so others here can be warned. Six weeks of inadvertent exposure is a significant insult to your system, and it's no wonder that after two weeks you are still feeling the effects. The body, especially the nervous system when dealing with ataxia, needs considerable time to calm the inflammatory response and begin to heal. It's common for a major glutening to take several weeks to even a few months for symptoms to fully resolve, so be patient and gentle with yourself—you are on the right track. The anxiety and panic are also a very real, physiological part of the reaction for many of us, compounding the feeling of helplessness. What you're feeling is not a step back to your pre-diagnosis state; it's a severe but temporary flare. Focus intensely on the basics now: rest, hydration, and simple, whole foods. You have not undone all your progress. Your body remembers how to heal; it just needs time and a safe environment to do so. You are not alone in this.
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      Thank you for mentioning that.  My main reaction to gluten seems to be related to the skin and breaking out.  So, I'll definitely take that under consideration when trying to figure out how to better supplement calcium.  I'm trying to use lower oxalate and lower histamine greens like broccoli, baby bok choi, collards and Lacinto kale.  Recently, I've been getting migraine reactions to spinach, possibly from the histamine.  I do use Malabar spinach (not related to spinach) but only a leaf or two in foods and I don't think it has a high calcium content.  I should check into longevity spinach and Moringa again.  Some gardeners in our area grow them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.