Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So I Have A Twin Brother Right....

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Probably some of you remember my discussion about my tooth enamel loss. Brother has that also and had to have all his teeth capped. His gums and teeth were in terrible shape.

Now I've had a difficult time convincing my brother that our tooth enamel loss, is clearly something genetic and could be consistent with Celiac. He complains frequently that he hurts all over, is tired all the time..he's on an antidepressant, he takes Xanax...etc....AND he weighs about 30 lbs more than my

170.

Now I think, just because he doesn't have glaring gastro symptoms, he's still displaying a lot of

symptoms of Celiac and it could well be the cause of his pain/fatigue/depression.

I sent him a list of symptoms and he mentioned that he gets mouth ulcers all the time....

Any thoughts on this....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

Yup, it sounds like some of my symptoms and yes Celiac can cause all of that and more.

Now some people don't want to know because they believe if they hide their head in the sand and they can't see you then you can't see them. So he figures if he ignores it and does nothing about it then it will go away. He is so wrong, it will only get worse. He should get tested because not just being your brother but your twin makes him highly probable to being Celiac.

Tell him not to be such a chicken and get something done before this disease leaves him with as little teeth as I have or worse, kills him.

covsooze Enthusiast
covsooze
Posted

I feel for you - me and my sister both have coeliac and we are convinced our father does because of his symptoms, but he had a negative blood test (he didn't have the full panel) and is not willing to take it any further, despite us telling him he could end up feeling so much better. it's a really difficult one.

Guhlia Rising Star
Guhlia
Posted

Jerry, perhaps when you get a positive diagnosis it will motivate him to seek help. If not, just make sure he KNOWS exactly how GREAT you feel after going gluten free. You could mention that you're much less tired, have more energy, etc... Focus on his symptoms that you share... Perhaps this will motivate him.

mommida Enthusiast
mommida
Posted

My sister has some obvious symptoms of celiac disease. i.e. vomiting after some meals and always anemic. :huh:

She is very happy to be thin and be able to eat anything she wants and will not get tested until..... Well I really don't know what would make her ever get tested. :blink:

L.

If your brother is at least looking at the information, listening to you, and asking questions he is doing more than any of my siblings. :ph34r:

eleep Enthusiast
eleep
Posted

I also have a twin brother! He's also got symptoms that look a lot like celiac -- worse anxiety than I've ever experienced, however, and also a tendency to be pigheaded (okay -- I do that too sometimes). He's actually been to the hospital a number of times for what they thought were thyroid issues, but no clear diagnosis ever seems to have surfaced from that.

I sent him my Enterolab results and talked with him about what they meant a couple of times, but I don't think I got anywhere -- as my other brother pointed out, we don't know how my twin could ever handle going gluten free since he seems not to know how to cook at all and lives off of hot pocket-type things.

Frustrating, but all I can do is provide the information, discuss the risks of being an untreated, undiagnosed celiac, and strongly recommend that he see a doctor about this. It's nice to hear about people with siblings who are a little more able to accept their influence!

Kody Rookie
Kody
Posted
Probably some of you remember my discussion about my tooth enamel loss. Brother has that also and had to have all his teeth capped. His gums and teeth were in terrible shape.

Now I've had a difficult time convincing my brother that our tooth enamel loss, is clearly something genetic and could be consistent with Celiac. He complains frequently that he hurts all over, is tired all the time..he's on an antidepressant, he takes Xanax...etc....AND he weighs about 30 lbs more than my

170.

Now I think, just because he doesn't have glaring gastro symptoms, he's still displaying a lot of

symptoms of Celiac and it could well be the cause of his pain/fatigue/depression.

I sent him a list of symptoms and he mentioned that he gets mouth ulcers all the time....

Any thoughts on this....

Sounds like me... err, except the denial part.

Uh oh, typo... I mean to say sounds like he could be a Celiac :D (Celiac causes all of those symptoms).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,539
    • Most Online (within 30 mins)
      7,748
    antoniotorres
    Newest Member
    antoniotorres
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.