Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ingredients - New And Old Lists


trober

Recommended Posts

trober Rookie

My 4 year old daughter was diagnosed 3 months ago and so far has gained 7 pounds and grown 2 1/2 inches eating gluten free. We know we are doing something right with the diet BUT I have all these ingredient lists that are contradicting each other? The Living Gluten Free for Dummies by Danna Korn, published in 2006, has a list that says vanilla, maltodextrin, caramel color and others are OK. The list from the Texas Children's Hospital says those are questionable. We haven't allowed her to have anything with those ingredients BUT it would be easier and cheaper if we did! Mrs. butterworths versus real maple syrup, cheetos versus tortilla chips etc...

Any idea if there is a list that is a true compilation of ingredients that are safe????

Thanks- I find great info from you guys!

Theresa in Texas


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I'm not sure so I'll just throw some things out there.

Vanilla in alcohol. Don't know what kind of alcohol. Non-alcohol vanilla, you would need to check on the source of natural flavors if they are in there. I buy non-alcohol vanilla. I'll have to check the brand.....I buy it at Wild Oats.

Maltodextrin. I think that is ok.

Caramel color. Also need to check the source.

Basically, just call the company of the product you want to buy and check see what they say.

TCA Contributor

Andrea's right about calling companies. I try to stick with brands that will always list gluten. There is a link to another thread in my signature line and in that is a list of companies that will list wheat, rye barley or oats if they are used. Cheetos are fine, btw. Most maltodextrin is from corn, but I check it out first. I think you probably have a lot of options out there that would be more cost effective. Hope the company list helps!

Guest nini

are you in the US? If so Maltodextrin is almost always corn, if it's not, it HAS TO BE LABELED that it's from a wheat source. Also, McCormicks Vanilla is fine, I use Flavorganics Vanilla extract because they clearly label the bottle gluten-free. Frito Lay's puts out a huge list of their products that are gluten-free. I believe I have a copy of it in my newbie survival kit. If you haven't already checked out my newbie survival kit, all you have to do is click on the link below in my signature for my web page and at the bottom of my web page there is a link for the direct download of the newbie survival kit in zip format or you can download the individual files by clicking on the link for newbie survival kit files. (fyi the updated Delphi forums gluten-free list is only in the individual files, the older Delphi list is in the zip file)

lovegrov Collaborator

The newer lists are more accurate. I would trust Danna. Maltodextrin almost never has wheat and when it does it must say so (in the U.S.). I don't know of anybody who has ever found caramel color with gluten, and more if not all experts consider it universally gluten-free. I've never found a vanilla with gluten. The alcohol used to extract it is distilled and the alcohol content, if any, is miniscule. Artificial colors are gluten-free and I don't think I've ever found an artificial flavor with gluten. Gluten in natural flavor is extremely, extremely rare and if it's wheat it has to be listed now. Annatto is unquestionably gluten-free. White or distilled vinegar is gluten-free (malt vinegar is not). MSG is gluten-free. Some bleu cheese are not started on bread and even the ones that are are probably gluten-free.

However, since you mention pancake syrup, there ARE some syrups that have hidden barley, which doesn't fall under the allergen law. Call the company.

richard

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.