Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severely Glutened By My Cht... What Can I Do?


Robina

Recommended Posts

Robina Contributor

So I went in for my monthly colonic yesterday... and after my session my CHT gave me the usual probiotic cocktail... I noticed that the color of the cocktail was different... but I didn't think anything of it... and then within an hour of drinking it... all the familiar symptoms came on with a vengeance... severe bloating, cramping, back pain and mucousy poop...

I knew I had been glutened but I couldn't figure out by what... and then I went to her website last night to review the ingredients of the probiotic supplement she gave me... sure enough... barley grass, wheat grass, oats, etc... but I couldn't imagine that she would give this to me knowing I have celiac's (she's also a nutritionist and the one who helped diagnose me)... so I emailed her to ask... sure enough she emails me back this morning apologizing profusely for accidentally glutening me... she said she didn't even consider the ingredients because it was a hypoallergenic formula which typically means that it doesn't contain any of the usual offenders... UGH!!! She recommended that I take some charcoal... but truthfully after being glutened by her I'm not sure I want to try what she suggests... lol...

Anyway I hardly slept a wink last night due to the pain... is there anything I can do to "flush" my system or comfort my intestines? Or do I just simply wait it out like I did when I went gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



spunky Contributor

Ugh. Sorry to hear this happened.

I have found that if I take Digestive Advantage for IBS when I feel gluten symptoms, it alleviates them. I take this only for about one week and then I get back to normal on my own from there.

You can buy that stuff at places like Walgreens or order through Amazon.

It might not help everybody, I'm not even sure about it for myself, since I haven't been gluten free for even a whole year yet, and I'm never sure exactly what's going on. But when I do feel symptoms coming on, this stuff helps me feel better in a day or two.

Hope it's better soon!

Guest cassidy

Sorry you got glutened - and by someone you trust. My mom has celiac too and she glutened me once - it is hard to trust people to give you food after that happens.

Sorry to say it, but time is really the only thing that makes it better. You can take things for the symptoms - like immodium (check which kinds are gluten-free), tylenol for headaches, etc, but nothing makes it go away.

I'm not familiar with what the poster above mentioned. I haven't heard anyone mention it before so I don't know what it is or how it works.

I usually try to eat bland foods, drink a lot of water and take care of myself. I was at a work meeting on Tuesday and despite alerting everyone that I needed gluten-free food, I was still glutened by my "special" meal. I'm pregnant now and my symptoms were actually not as bad as they usually are, but it still hasn't been fun. Running to the bathroom in a meeting is not enjoyable.

I hope you feel better soon and that doesn't happen again. I don't know how new you are to all of this, but it usually takes me a few weeks to feel 100% better. I just say that because I don't want you to be surprised if it takes a while.

Feel better soon!

CarlaB Enthusiast

Sorry you're glutened ... I just wait it out and be sure to stay hydrated.

Be sure you check everything you eat/drink -- even from someone you trust!! Everyone makes mistakes, so let it be your own mistake that glutens you next time!!

Robina Contributor

Thanks so much for your support and knowledge...

I would truly be lost without this forum!!!

I feel better today... but still a little off kilter... I've just been drinking lots of water and carrot juice (known intestinal healer) and just trying to remain calm... I was after all way worse back when I was glutening myself on a daily basis before knowing I had celiac's...

but it's just so cool to be able to come on this board and be able to find answers each and every time... you guys are amazing!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.