Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutenated By My Own Mother!

brizzo

Recommended Posts

brizzo Contributor
brizzo
Posted

My mom cooked corn chowder yesterday and assured me thet is was gluten-free! I even looked over every ingredient myself. Today she called me on my cell and she says, "you're going to kill me!" I forgot to tell you that I used 1 chicken bullion cube in the chowder yesterday. It contained wheat. My heart sank!.... Back to square 1 again. This really sucks!... I mean , my God......by my own mother! Does it ever end? Brizzo

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted

My mother has celiac also and she glutened me when I was at her house. She felt terrible and she felt terrible when I was diagnosed since I got the genes from her. I let her off the hook for both of those, and I know she felt really bad. I have glutened myself many, many times so I know how easy it is to do it.

Sorry you got glutened. Hope you feel better soon.

Guest ~jules~
Guest ~jules~
Posted

My mother glutened me with beef boullion. Which she remembered putting in the roast pan AFTER I got done eating it. Ah, will they ever get it!

tarnalberry Community Regular
tarnalberry
Posted

People don't really think about things they do automatically. Really. Try doing everything with the other hand some time, and you'll see, we all do it. It sucks though. I hope you recover quickly.

darlindeb25 Collaborator
darlindeb25
Posted

Awwwwwwwwww--sometimes you just have to forgive and forget. It sounds to me like both mother's are trying and really didn't mean to make you ill. There is a wonderful soup base called Orrington Farms that you can tell your mom's about. It's the best flavoring I have ever used and it is gluten free. I can't use it any longer because it does contain corn. It's made in Bedford Park, IL and the website is www.orringtonfarms.com it's great. There is another that I found here on Long Island, but I can't remember what it is called. It comes in a little glass jar and is very expensive.

Give your mom's another chance. ;)

IrishKelly Contributor
IrishKelly
Posted
My mom cooked corn chowder yesterday and assured me thet is was gluten-free! I even looked over every ingredient myself. Today she called me on my cell and she says, "you're going to kill me!" I forgot to tell you that I used 1 chicken bullion cube in the chowder yesterday. It contained wheat. My heart sank!.... Back to square 1 again. This really sucks!... I mean , my God......by my own mother! Does it ever end? Brizzo

At least she did it accidentally...i told my mom, "NO DAIRY and NO WHEAT, are you sure i can't cook the dinner?"...and this was her reply as i started in on a helping of her mash potatoes, "it was only a little butter"...so at least your mom did it accidentally. I will say that dinner experience left me to realize that others are absolutely right when they say you are definitely on your own. Don't even trust other family members (unless they are gluten-free too ;) ). It really stinks but i'm totally getting used to it now 5 months later. But yes, i sometimes still get aggravated with these people...usually because i feel they don't take it serious enough, maybe if our faces were to puff up and swell or something they would understand a little more (not that i want that to happen or anything)...i think alot of it has to do with the fact of them not seeing or actually feeling what it's like to be glutened. I don't think people will ever understand unless it happens to them.

happygirl Collaborator
happygirl
Posted

Brizzo,

I'm sorry to hear that you were glutened. It is frustrating! But, we pick up and move on and learn from ours/others mistakes. You might want to tell her to not use anything under any circumstance that has not been approved by you or that you don't know how it was prepared (cross contamination) or you won't eat it (and that sounds harsh but certainly doesn't need to be said in a harsh manner! :P And that rule applies to everyone).

Hope you are feeling ok!

Laura

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
redsdf Newbie
redsdf
Posted
At least she did it accidentally...i told my mom, "NO DAIRY and NO WHEAT, are you sure i can't cook the dinner?"...and this was her reply as i started in on a helping of her mash potatoes, "it was only a little butter"...so at least your mom did it accidentally. I will say that dinner experience left me to realize that others are absolutely right when they say you are definitely on your own. Don't even trust other family members (unless they are gluten-free too ;) ). It really stinks but i'm totally getting used to it now 5 months later. But yes, i sometimes still get aggravated with these people...usually because i feel they don't take it serious enough, maybe if our faces were to puff up and swell or something they would understand a little more (not that i want that to happen or anything)...i think alot of it has to do with the fact of them not seeing or actually feeling what it's like to be glutened. I don't think people will ever understand unless it happens to them.

Not necessarily true, I definetly trust my Mom and my Sister when they cook for me. My mom will even call companies to double check that their items are gluten free. My sister will look up every ingredient she is using on the net or find gluten-free recipes online to make for me (she even makes me cakes, bread, pasta, etc...) But I can see how it can be hard to trust anyone but yourself in food preparation...

Guest nini
Guest nini
Posted

I'm actually glad I do have a visible indicator for others when I've been accidentally glutened, my face breaks out in this weird rash, usually starts out bright red flushed looking and then before I know it I've got little red dots all over my face... (then the vomiting, cramping and "d" start)... the rash usually lingers for a few days after a glutening and I get people looking at me really odd "what happened to you!" the Chiropractor I'm working with now just looks at me and says "glutened again, huh?"

zansu Rookie
zansu
Posted

yeah, it's those things we do automatically....

I've been gluten-free for 2 1/2 years, Hubby was under the weather and asked me to make him some toast. I got some butter on my finger and came REALLY close to licking it off.... :blink:

If I can come that close to glutening myself after 2 1/2 years, cut Mom some slack. I bet she remembers next time (OK, not the "it was just butter" Mom, she's in denial)

sagemoon Newbie
sagemoon
Posted

My Mom has tried to gluten me every time I visit. She just says "Eat around it!" It is very frustrating but I held my tongue the last time and ate only the baked sweet potato. She was insulted, but oh well, that was a lot better than what I wanted to say to her. I called my husband afterwards, all steamed, and he said to just calm down, that my mom lived through the Depression and ate chicken feet for dinner, so give her a break. I can understand her confusion since she did raise me and fed me every day until I left home, but I think she is slowly coming around.

I really wish my face would blow up and turn blue with orange spots when I ate gluten. It would help with unbelievers so much........

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.