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Do I Have Celiac

dennymel

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dennymel Rookie
dennymel
Posted

Hello, I am brand new to this forum. I have been ill with anemia, fatigue, joint aches and IBS for over 12 years. My doctors did multiple blood tests and then diagnosed me with Chronic Fatigue Syndrome and Fibromyalgia. I work a full day, but am always fatigued and ready to go back to bed. My joints ache all the time and my back is very bad.

I recently went to Utah on Business and got Elevation sickness. Due to this, I didn't eat for 2 days and I felt GREAT???? I thought, why would I feel this good with no food and naseau? I started to read on food allergies and it seems Celiac hits every one of my symptoms. I have had no tests yet, but have already started eating Gluten Free and do feel better already....

I'm hoping Finally that I found out what is wrong with me....can anyone see my symptoms being aligned with Celiac Disease? My jaw and face finally feel at rest. before I was always clenching my teeth during the day and at night....I'm scared this another diagnosis that will go by the weigh side????

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CarlaB Enthusiast
CarlaB
Posted

Welcome!

If you want to go through the testing you need to keep eating gluten. This is VERY important. It does sound like it's quite possible, especially given your dietary response. Dietary response is a valid diagnostic tool, so if you want to stay gluten-free and feeling better, then just do it. If you want testing done, go back to eating gluten again immediately!! Keep in mind, the tests are well-known for having false negatives and there are many of us around here who were diagnosed by dietary response.

Noel1965 Apprentice
Noel1965
Posted

Hi Dennymel - I would get checked for Celiac - it sounds very possible. What caught my interest is you say your face hurts? I have the same thing - thought it was a side effect from antidepressants but maybe not? Very interesting......hope you feel better soon!

dennymel Rookie
dennymel
Posted
  • Author
Hi Dennymel - I would get checked for Celiac - it sounds very possible. What caught my interest is you say your face hurts? I have the same thing - thought it was a side effect from antidepressants but maybe not? Very interesting......hope you feel better soon!

Yes, I am also on anti-depressants-Paxil 20mg. So it could be that. But I'm still on them and eating gluten free and my teeth and jaws do feel a bit better....might be something.

lucaswe Newbie
lucaswe
Posted

To get diagnosed with the blood test or endoscopy, you would need to go back on gluten before being

tested. The other alternative is genetic testing. Since celiac is a hereditary disease, there are certain

genetic indicators that are common amonng people with celiac. I know there are mail order testing sites

doing the genetic tests, and some hospitals, like Children's Hospital of Philadelphia, that do the test.

Bill

Ursa Major Collaborator
Ursa Major
Posted

If you want an official diagnosis, but don't want to go back to eating gluten, the best alternative would be testing through Open Original Shared Link. It will still be accurate up to a year after giving up gluten. It is also more sensitive than the current mainstream testing.

You have the very same symptoms I've had for most of my life. Unfortunately, I've found out that I am intolerant to a lot more than just gluten. But giving up all those foods is worth it to not need heavy duty painkillers like codeine any more.

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