Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whey?

MallysMama

Recommended Posts

MallysMama Explorer
MallysMama
Posted

Okay, so my 81 year old grandpa was diagnosed with Celiac (on his deathbed - having a last chance surgery to remove something from his pancreas...and then they went "digging" around to see if anything else was wrong - when they discovered no villi in his intestines). It's nice to know where I got this disease from...I'm no longer the only one in my family with it. Had they just done a simple blood test months and months ago (especially after my mom suggested it) - he could be just fine by now. However, he's still on IV's.... and they might be allowing him to start on liquids soon. So - anyway... my mom calls me today and says that they've told him that Whey contains gluten (comes from barley)?! We're completely flabbergasted! No research I've done proves that these idiot doctors are correct. I'm wondering if any of you know what they're talking about?? Whey, in my knowledge, is a dairy product or derivative. But we don't want to give my grandpa false information that could make him sooo sick again. (I'd actually like him to be able to meet my next baby!!) So, any help - and as soon as possible - is greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

To the best of my knowledge, whey, is diary durived and it not connected to gluten.

If he is having a problem with dairy, yes that may be an issue for him.

lindalee Enthusiast
lindalee
Posted

The SCDer's eat whey and they are totally no grains. I hope some others can help.

jerseyangel Proficient
jerseyangel
Posted

You are right--whey does not contain gluten--it is from milk.

MallysMama Explorer
MallysMama
Posted
  • Author

Thanks! Now I just need to convince my grandma that the nutrionist they talked too is Wrong! (Easier said than done!) She said that the nutrionist told them that whey can come from either milk or barley. Which is completely stupid! No information I've found says that. I even looked on the Whey Protein Institute's website!! (www.wheyoflife.org) Argh! Stupid people making my grandpa's new diet more complicated than it needs to be. Thanks for the input, though!! I'll pass on the info!

Ursa Major Collaborator
Ursa Major
Posted
Thanks! Now I just need to convince my grandma that the nutrionist they talked too is Wrong! (Easier said than done!) She said that the nutrionist told them that whey can come from either milk or barley. Which is completely stupid! No information I've found says that. I even looked on the Whey Protein Institute's website!! (www.wheyoflife.org) Argh! Stupid people making my grandpa's new diet more complicated than it needs to be. Thanks for the input, though!! I'll pass on the info!

You're right, and there is another incompetent nutritionist in a hospital, of all places. Whey is definitely ALWAYS derived from milk.

But do you know that casein can blunt the villi as well? And also, most celiacs are unable to digest dairy for at least six months after being diagnosed (even if they're not casein intolerant), because the tips of the villi produce an enzyme called lactase, which helps in dairy digestion.

So, since your grandpa is so sick, it would be a very good idea to eliminate all dairy from his diet for several months, before reintroducing it to see if it causes a problem. He may not get well if he has dairy products at this point. In fact, he needs to start out with a simple, non-irritating diet to heal. And dairy is hard to digest at the best of times.

tarnalberry Community Regular
tarnalberry
Posted

Whey can't be "derived from barley"! It's a milk protein! Open Original Shared Link is helpful as well. "They" are smoking something funny over there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MallysMama Explorer
MallysMama
Posted
  • Author

Yeah, I had already checked the wikipedia site and got their definition. I sent all the info to my mom in an email for her to pass on to my grandparents. I let my grandma know about the dairy being hard to digest at first....thinking maybe that's why they told her to keep him off of whey. That wasn't the case... but she knows about the dairy issues now, at least. I plan on making a visit up there sometime this week - so I can hopefully make sure they got the correct info. Thanks for your help... it's good to know that I'm not the only one who thinks that "nutritionist" is crazy!

debmidge Rising Star
debmidge
Posted

One way to get to the bottom of this is to find out the manufacturer of the product and call their support number and ask about gluten and whey....(by I.V. I think you mean liquid nutrition, not the clear saline/sugar solution hospitals give you to keep you hydrated).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748
    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...